Side effects

[tjrusert]

I'm finishing week 42 of a 48 week tx.  Do sx  get worse the longer you are on tx. In the last few weeks, I've forgotten more,ate less,and am tired all of the time. The fatigue is the worst thing.  I sleep all of the time. It's hard for the husband because he is alone all the time. Heck even my cats wait outside my door. I don't let them in often because I want to sleep and they want love. I give them a lot when I'm up. But I feel like I'm missing more and more things lately. I see the Dr on Tues

[ceanothus]

Oh boy, I feel that rotten already and I'm just finishing week 30 of 48. My husband has been constantly worrying about me and has to spend most of his time alone - even when I'm awake I am pretty withdrawn much of the time because I just dont have any ability to concentrate for long and I have an exceptionally short attention span. I used to be able to turn on some mental sparkle to get some lively conversations going (at least part of the time), but not anymore. Now I'm as exciting as a lump on a log. I sure hope it doesn't get much worse or I could be comatose by the EOT.

[bbj2856]

I agree wek 19 /24 last few weeks are totaly wiped out no energy food is so awful tasting lost about 20 pounds since i starteed and  I have to force my self to eat. so I can take the meds itis hard and I am glad u can sleep . I cant even get that pleasure. If I had animals I doubt I could even handle that.  My poor hubby just keeps saying what can I do for u are u ok ....I know he is worn out from fooling with me. God Bless us all an may our prayer for UND be for ever....................

[Dawn703]

You are almost there congrats to you and hang in there. What is weird is my cats, since I have been on treatment, have been following me all over and when I am in my bedroom they pace up and down the hall and cry at  the door. My fiance just this morning said he thinks they know I am sick or at least know something is wrong since I have not been as attentive to them. That said I'm surprised my fiance has not been doing the same as the cats since he is extremly neglected. LOL

[orphanedhawk]

I think the meds build up in our systems making it harder as time goes by.
You're close to the finish line now.
Hang in there.

[frijole]

Except for the cats, I could have written that post myself.  My husband too has lost his wife. All I want to do is sleep.  I did shot 39 Friday night.  I don't know why the eating is off, but I think it is all those weeks of Victrelis.  Everything tastes bad to me. I don't even want to go to the grocery store.  My hemoglobin will not stay up in the 10s even with procrit.  I may have to riba reduce for awhile.  If I do anything physical at all I have to take a nap -- ha ha, I took 4 naps yesterday, Saturday!

I remember my first treatment I just breezed through it until about week 36 -the end was harder for me then too.  Hang in there.  It will pass
bean

[tjrusert]

Thank you for the encouragement. I thought the end would be easier but it's a good thing that I feel this way now instead of in the middle of tx. It would have been hard to continue. With the end in sight it makes it easier to tolerate. And congrats on ending your tx. I'm so glad you are feeling better. I don't get on the forum very often but I appreciate all the wisdom and encouragement I've gotten from ppl here. I know I've only suffered with this illness for about 3 1/2 years but it feels like a life time.

[belle19]

my 44th-46th weeks were harder.  then i turned a corner.  i just had my last shot last night and may 24th is my EOT.  hang in there.  you can do it!!  best wishes.  belle

[his3707]

Your near the end of treatment. That is really wonderful news!  I think the last 4 weeks were so hard for me.  It seemed like everything was coming to a head,  but after the last shot, within a week, I started noticing improvement.  I am 5 weeks post treatment and am feeling pretty darn good.. I got my 4 week post treatment VL and I am und.  That is the goal and the reason we put ourselves through all this.   Hang on! Its almost over!!  Early congrats to you!