When I got to the point I couldn't stand up for more then a minute I knew I needed a transfusion. I did feel better rather quickly, but am sliding down. Now on increased procrit and decreased riba and feel better. I have no regrets about the transfusion myself. My docs are against transfusions, but this happened on the week end and I went to the ED. I had an HGB o 8. I know others have gone lower. Everyone has their own tolerance level for low HGB. It's more then a number.
bee
I am sorry to hear you have had to transfuse, but I hope it helps. What did your hemoglobin get down to? THe Victrelis is lowering my HGB a lot faster than the SOC I did years ago, but I just started procrit so hope it will do the job.
Take it easy
frijole
I made it through and have been resting the past couple of days. I know some people feel instantly better after a transfusion, but I didn't. I actually felt about the same, until the next afternoon. Think I was just exhausted from the long process/day. Will go for labs tomorrow to re-check my HGB. Thank you for your kind words, prayers and support.
Hugs =)
Bee
really, sometimes we just have no choice if we want to stay on treatment. Do what ever it takes that you can stand. Sounds like you have a good doc who is willing to help you make sense of everything. Your in my thoughts and prayers for a good outcome with the transfusion!
You just do whatever you have to do to feel better! I have NO regrets about mine. I'm still going n blowing! Even took labs out to 2 weeks. You're gonna do fine.. You are a fighter! Making me smile... Xoxoxo Karen :)
You are the only one that knows your circumstances.....I will be praying for higher lab values and more energy for you and of course UND:-)
Big Hug for YOU
Vann