Aa
Trying to find out why my joints ache
I stopped my treatments on September 17th. I am having so much pain in my joints and muscles. Even my feet hurt! Has anyone had this problem before? Thank you to all that wrote about brain fog. I thought I was going crazier than I was before treatments began.
For all of you who are just beginning try to hang in there. Your life is worth it.
SH
For all of you who are just beginning try to hang in there. Your life is worth it.
SH
I had that crazy stuff going on with my joints...I did think it was a sign I didn't clear, and I didn't, but it may have been from coming off the meds...guess I'll never know.
Redrodeo...what did you treat with the last time?
Redrodeo...what did you treat with the last time?
Its very strange. I had been treated 2x before and relapsed but never had any post tx symptoms. This last time(3rd try) I finished in May and was immediately hit with severe joint pain, swelling etc. Never had anything like that. Thought I had. RA, physical knee damage, hypothtroid, OA, I was very alarming. But now here it is a little over 6 months post and I am still negative and all those symptoms are slowly going away. Interferon and riba are very dangerous drugs. I still have moderate depression. I did taper to some extend. Who knows but I was glad to know other people had the same experiences. So things are improving and I beat that little ***** HCV's *** after 3x.
Red
Red
Sunshine585
Sorry to hear of the joint pain but is in the after the fact most realize their not quite finished the journey yet and it is sad to see this because it can be avoided by an extra 4 weeks of interferon on a descending scale. MerryBe is correct that it is part of the backlash from the sudden stop of the interferon and is also correct that doctors and insurance companies have not connected the dots on this one. It is even sadder to see that some people may have cleared the virus down to undetectable levels (whatever that may be), for duration of time only to have it rear its ugly head after treatment stops because of the peripheral virions that may have escaped the constant high levels of the interferon that makes their way back to the liver, not it all cases but I am sure that there is enough evidence to suggest this if looked into from a research point of view which will not happen because of cost factors and the suppose new drugs coming out which are showing remarkable data but even then there are those who fall through the cracks and relapse in spite of them. I did use the taper technique described on the health page under merryBe’s thread HepReseasher on various topics for there is some very good information on the thread of tapering and in spite of the pro’s and con’s of the topic it worked for me because I had not experienced some of the prevailing events put fourth here on the forum.
For me it was opportunity presenting it self at the right time in that because of the year end new enrolment period in which one hand did not know what the other was doing I was able to get the extra four weeks of meds in order to follow my own end of treatment plan and the timing could have not been better for it all to come together in that moment.
Until more research dollars are channeled into the cause of post TX symptoms and relapses everyone who treats for hepc has a 50/50 chance of achieving SVR and equally chance having prolong after effects of the meds taken. I think this is and has been a very good topic of discussion here on the board and if anyone could (and there are a lot of very smart people here on the forum) put all the pieces together in a chronological view of events say from virus, to virions, to med interaction etc, ect, it would be a very interesting read but then again this is how the board evolves such as that of the virus.
jasper
Sorry to hear of the joint pain but is in the after the fact most realize their not quite finished the journey yet and it is sad to see this because it can be avoided by an extra 4 weeks of interferon on a descending scale. MerryBe is correct that it is part of the backlash from the sudden stop of the interferon and is also correct that doctors and insurance companies have not connected the dots on this one. It is even sadder to see that some people may have cleared the virus down to undetectable levels (whatever that may be), for duration of time only to have it rear its ugly head after treatment stops because of the peripheral virions that may have escaped the constant high levels of the interferon that makes their way back to the liver, not it all cases but I am sure that there is enough evidence to suggest this if looked into from a research point of view which will not happen because of cost factors and the suppose new drugs coming out which are showing remarkable data but even then there are those who fall through the cracks and relapse in spite of them. I did use the taper technique described on the health page under merryBe’s thread HepReseasher on various topics for there is some very good information on the thread of tapering and in spite of the pro’s and con’s of the topic it worked for me because I had not experienced some of the prevailing events put fourth here on the forum.
For me it was opportunity presenting it self at the right time in that because of the year end new enrolment period in which one hand did not know what the other was doing I was able to get the extra four weeks of meds in order to follow my own end of treatment plan and the timing could have not been better for it all to come together in that moment.
Until more research dollars are channeled into the cause of post TX symptoms and relapses everyone who treats for hepc has a 50/50 chance of achieving SVR and equally chance having prolong after effects of the meds taken. I think this is and has been a very good topic of discussion here on the board and if anyone could (and there are a lot of very smart people here on the forum) put all the pieces together in a chronological view of events say from virus, to virions, to med interaction etc, ect, it would be a very interesting read but then again this is how the board evolves such as that of the virus.
jasper
I'm glad to hear that someone else thinks that the sudden drop affects you. I am actually feeling worse now than when I stopped a wk+ ago. Fluish and joint pain.
merrybe any studies that you know of, on weaning of tx as opposed to abrupt halt?
merrybe any studies that you know of, on weaning of tx as opposed to abrupt halt?
it's considered a backlash from the sudden drop in interferon levels.
One resident doctor in this forum suggests gradual withdrawal or tapering off the interferon, but its hard to get docs and ins to go along with that.
the good news is after a while your spleen should kick in and start making normal levels of INF on its own...but the time it takes is different for each. For the whole of tx your spleen had no need to make any and you had high levels, which helped suppress things that normally inflame the joints.....it will take some time to regain a balance.
stay hydrated, and you could try adding condrotin/glucosamine for a while.
If the pain doesn't subside soon ask you liver doc for a mild antiinflammatory, and get checked and screened for rheumatic conditions etc by having an ELISA and/or other labs your doc suggests.
One resident doctor in this forum suggests gradual withdrawal or tapering off the interferon, but its hard to get docs and ins to go along with that.
the good news is after a while your spleen should kick in and start making normal levels of INF on its own...but the time it takes is different for each. For the whole of tx your spleen had no need to make any and you had high levels, which helped suppress things that normally inflame the joints.....it will take some time to regain a balance.
stay hydrated, and you could try adding condrotin/glucosamine for a while.
If the pain doesn't subside soon ask you liver doc for a mild antiinflammatory, and get checked and screened for rheumatic conditions etc by having an ELISA and/or other labs your doc suggests.
I had the same issues with joint pain. The meds are so strong and it does play on your good cells which can impact other parts of the body. I relieved my pain by working out more, but not to the extreme. There is a cream that can help with the pain, and it used for those that have arthritis. Talk to you doctor, and try to get back on the meds. Good luck...K
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