UND and EOT numbers for triple Tx

[hepc4Sandi]

I am 7 days post EOT. 12 weeks Triple Tx Sovladi, Pegasys, Ribavirin.
Just got back from my EOT meeting with my doctor today—and I am also UND!

For those who like stats and numbers:

The HCV RNA QN test using COBAS® TagMan® HCV, v.2.0 (limit of detection (LOD) and LLOQ is 15 IU/mL)
HCV Not Detected.

ALT is 41, AST is 50.

HGB 10.3 / Platelets 139 / WBC 2.4

I went walking at the zoo for the first time in 12 weeks today, and wasn't exhausted at the end. My mental energy is improving all the time, physical energy is improving slowly, really just the last 2 days. Appetite is returning too.

My skin is really giving me a lot of problems this week it seems hyper sensitive. Like it really hasn't healed at all in 3 months. But that should subside as the drugs exit my body, and my blood levels even out. Will go to dermatology if it drives me crazy. Have a follow-up with opthamology later this month too. Will have a 1, 3 and 6 month follow up blood and viral load tests. My doctor will be retiring in 2 months, but will turn me over to a new doc, whom I will meet, next month for follow-up consults, and for yearly monitoring.

I do want to let people know that the treatment really wasn't that bad, (though it was interesting that my doctor was surprised when my husband and I were telling him that each and every time I got the Interferon shot, it would just knock me out for a day or two, not just the first time or two, but every shot).

He said that the Navy was now starting off-label with Sovaldi and Simeprevir for the more seriously ill patients. I thanked both him and his nurse for believing in me that I could do this.

Thank you fellow dragon slayers on this website for you support. You were more help than you will ever know. Knowledge really is power!

Sandi

[Mmorgan856]

I'm soo excited for both of you,  both so close, an going through this treatment pretty close in times, I just know you two are so thankful for each other an everyone else that helps in this forum.  I've got a lot of encouragement from so many people here an we're so blessed to have this forum.  Hector has been a Godsend not just to me, but everyone going through this fight.  I wish you both a great Hep C free life.  Not if but WHEN you get your results of SVR , please don't be strangers in the forum...take care.  Mary

[hepc4Sandi]

Hey Jo, so you are just over 9 weeks into Tx, how are you feeling? Your Tx end is in sight also, only 3 weeks to go too. Then the great vigil for 12 and 24 weeks begins. Best wishes to you too. Sandi

[hepc4Sandi]

Hi Sue, hang in there you are almost done. I found the last 2 weeks the hardest. I was the most tired, and felt saturated by the drugs, kept telling people I felt toxic by then. The good news is the Tx end is in your sights. Plan on taking it easy after you are done. I started feeling better mentally right away, and could sleep better right away too. But the physical stuff takes a while to recover from.

[nursehepc]

When I was conveying to a friend that the closer it seems that we come to milestones....the clock seems to slow down as folks wait and count days till the end of each milestone...  She stated that it sounded like pregnancy...where the first 8 mos fly by and the last 2 mos take forever... I told her that sounds about right...  You have come so far...and now you are waiting for THE results... Distraction...is essential...  I know it is for me...I can drive myself crazy at times (grin)...  Best Wishes...Jo

[sue4hula]

Here's hoping and praying your UND status continues!  I think all Hep C warriors deserve medals for courage and bravery.  

13 more days of Sovaldi/RIBA/Interferon for me. Feeling okay, but tired.  

Please know we are all waiting with you and hope to celebrate your SVR with you soon!

[hepc4Sandi]

Went in for my 12 week EOT viral load test this week. Should get results on August 7 or 8. Very nervous, hope I am still UND. Have been power walking at the zoo 3 days a week, doing hard yard work. Have a sweet tooth. Skin has recovered, can be in the sun just fine now. Bruising is not as bad, but is not normal still. Hair is still falling out, and doesn't seem to growing hardly at all. People tell ,e my color looks better. Stopped the vitamins, felt bloated from them. Feel sometimes maybe my gallbladder, but it might be from the yard work, sawing and pulling stuff. Am anxious about my status, am having a hard time being "happy." Taking one day at a time. Making lunch dates and working a lot. What will my future hold for me?