UPDATES FOR THE CHART

[frijole]

My friends.  It has been awhile and I would like to update the stats chart.  For those who don't know, I have been keeping some basic statistics on members who started treatment from about last June forward.  I started keeping stats only on genotype 1s who were doing triple therapy, but it has expanded to everyone.  Many of you have now completed therapy and are still UND.  A few are actually SVR.  

To view these charts - please click on my profile and go to pictures.

If you have started recently and I don't have you down, this is what I want:
Previous treatment info (relapser, break through, nonresponder) and how many treatments
Biopsy results (grade & stage),
Start date
Treatment (type of PI or other)
beginning viral load
all VL results
What has been done for anemia, how low has your hgb gotten
Other severe sx (side effects)
End date
number of tx weeks

[BoceprevirGal]

Hi, Bean. I went and had a filling done, a few days before tx, and had them cleaned a couple months before then.
  But since I am only treating, for another 17 weaks, I was trying to hold off on the cleaning, because my platelets are a bit low, around 90..(huge excuse)..but also, my mouth is sensitive right now, and also, I forgot to include, in my long list of sx, that my tongue is so sore!
  The tooth that hurts(and smells) has always given me trouble...the crown was put in, at Western Dental, and I stopped going to that Clinic. Now I go to my Dads' dentists, and hi is so much better.
  I was just going to try another round of antibiotics, like Amoxicillin though, because my throat and ear hurt, on the same side as the tooth ache....just kind of putting it off (which I always advice new-comers on here NOT to do)
    

[frijole]

Thanks for all the info.  I wanted to ask if you have had your teeth cleaned regularly as that is usually what gives off that decay smell.  It is recommended to get teeth cleans more often than usual on tx because we lose the saliva in our mouths that in antibiotical.  I just had mine cleaned last week and had 3 gum line fillings done yesterday.  In February while on treatment I had to have a root canal.  Our teeth really take treatment hard.  I have the dysgeusia too - mouth always tastes bad and food tastes bad but, unfortunately, I am still eating -- no weight loss this treatment.

And thanks for the complement on posts.  I have been absent the last month or two but intend to post more now

bean

[1swimmer]

Yo bean, nice to meet you. I was looking at your charts today, with interest.
Here goes: start date 4/8 with 4 week lead in for boceprevir.
                  Liver status, F0 via the fibrosure test.
                 VL 8.47M on June 2011
                  No previous treatment
                 So far no problems w INF and Riba

Wbcs dropped after 1st week
Hog actually rose a bit
Platelets dropped from 199 to 193  and I keep on swimming! Cheers to you.

[BoceprevirGal]

Ahhh, ya makin me work here~ But I love that name, frijole bean, for some reason...I always enjoyed reading your posts, before I joined the forum, because the name was so recognizable.
   Okay, lets see:  I'm genotype 1a, treatment naive. My VL was 700,000, pre-treatment. My biopsy had me at Stage 2 Fibrosis. My platelets were lower than normal range, pre treatment, at 120(000) My AST/ALT was way more elevated then my usual elevations, at 400/500. Oh, also, I have known about the Hep C for 20 yrs.
   So, at 4 weeks I was UND, and my enzymes were back to normal. Fopr some reason, at 8 weeks, my labs didn't show a VL, but my enzymes were still in normal range, so I didn't freak out, but gonna ask my Doc about that tommorow.
   I developed early-onset hemolytic anemia at 6 weeks, my HGB was at 10., at 4 weeks. By 6 weeks, I was having difficulty breathing, and my HGB was 9.9.  It got worse, and at week 8 my HGB was at 9.4, and I recieved my first Procrit shot, a 40,000 unit dose. I have had 3 more since then, and finally managed to get a deep breath, about 2 and a half weeks, after the first Procrit shot~
  Tommorow will be my 11th Inf shot, but my Doc isn't testing my blood, until week 12.
   My other side effects were: the Inf shot makes me tired and achey, the day after, so I take that day to stay in bed, By the next day, I am fine again. The Victrelis gave me "dysgeusia"...I have the worst taste in my mouth, and my teeth tast terrible!
   I also developed a tooth ache, right after the Victrelis was introduced, and my teeth started tasting decayed, and my Doc prescribed Penn VK for it, but it didn't do anything. I think I'm resistant to the Penn VK, so if the pain gets worse, I will ask My Doc to prescribe a stronger Antibiotic, but I'm trying to hold off, to avoid having to take an extra med~
  My psychiatric symptoms started with me coming on here, acting fairly manic, posting too much, etc. Then I developed anxiety, but got over those two symptoms. Simultaneousl, I tend to cry, in the morning, when I'[m at the restaurant, waiting for my eggs to come. (low blood sugar maybe) At night, I feel over-tired, but not sleepy. If people bother me when I'm tired, I can RAGE, but try not to scream, because my throat is sensitive, and prone to getting sore.
   All this from memory, no brain fog here!  Also, congrats on your successful treatment!

[marivirginia11]

whoops so out of it forgot the other info you requested started tx march 23,2012
Biopsy results (grade & stage),1,2

Treatment (type of PI or other) pegasys, riba, incivek
beginning viral load 951000
all VL results<43 DET nonquantitative
What has been done for anemia, how low has your hgb gotten 9 after 4 weeks
Other severe sx (side effects) nausea, extreme fatigue, fogginess
End date
number of tx weeks

012, ia

[marivirginia11]

week 4 <43DET nonquantitative, treated with procrit at 5 weeks, riba lowered from 1200 mg to 800 mg.