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Avatar universal

Victrelis & Telaprevir, keep cool 6am in the morning

Just like to post this tip out to all those who have started or about to start treatment on Victrelis or Telaprevir,
As the drug has to be kept refridgerated and taken every 8 hours you are likely to have to get up approx 6am in the morning to take a dose of your treatment and can be a NUISANCE getting up turning on the lights to get to the main fridge.

Last week i purchased a "Portable Fridge & Warmer" $35.00 on ebay just to fit on the bedside cabinet, it will hold several small bottles of water along with your dose of medication.
This is a Big Relief just turn around open the door and get your drink and medication turn out the light and back to sleep.

I enclose a link of what is available on ebay at present copy and paste into the very top browser:

http://www.ebay.com/sch/Inside-the-Home-/159888/i.html?_nkw=mini+fridge+%26+warmer&_catref=1&_trksid=p3286.c0.m1538

I am sure if you look around you may find one more local but would like to share the tip for all those on or due to start treatment.

Good Luck to all on Treatment


Cliff
Best Answer
1711722 tn?1356487554
Oops!  Just read your profile.  My training nurse told us to have a 'robust' breakfast, since we are fasting all night while sleeping.  Having a bigger breakfast helps minimize some of the morning G.I. sides.  Plus, taking different meds (so, the RIBA and VIC) at least 30 minutes apart, gives your system time to process things separately.  As for the metallic taste....she recommended Big Red gum.  They say the cinnamon helps.  Others here have suggested sour hard candy.  Ginger candy is for the nausea (and AJ says Coca Cola does the trick) but may also help with bad taste (not sure).  Best to you and your fiancee'!  That is so sweet you are there/here for her.  Thanks for your post.
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Avatar universal
I agree, bedside refig is great for the Victrelis.  Keep in mind though, you need to take the Victrelis with food as in some kind of snack, not just liquids and the Incivek must be taken with 20 grams of fat so it's not like you can just roll over, drink some water or juice and then go back to sleep.  Wish it was that easy!  

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1711722 tn?1356487554
Hey Cliff.  Good idea.  But I'm curious.......you are eating breakfast with the pills, right??  It's better to give your stomach a buffer, first thing in the morning, so maybe some yogurt or something in the fridge too. Needless to say, ignore this if you are already doing this :)

Also, you said very shaky legs.  When did this start for you??  Before or after adding the VIC?  I haven't added the VIC yet but am a bit shaky, but I also have Vertigo.  Thanks
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Avatar universal
Always stored in my fridge is two bottles of water, Bottle of Victrelis & a variety of two small choclate puddings which is taken with the medication.  
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Avatar universal
Hi beeblessed,

I am not on treatment for Hepatitis C my Fiance is, i am over from the Uk to Texas caring for her while on treatment.

Her legs have become very weak and shaky only while on treatment.
Walk to the bathroom and back and her legs start shaking.
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Avatar universal
you are eating breakfast with the pills, right??  It's better to give your stomach a buffer, first thing in the morning.

She mainly takes two or three spoonfuls of pudding only just to get rid of the metallic taste in the mouth which the capsules cause,

But the metallic taste never goes away while on treatment.
Helpful - 0
789911 tn?1368636783
16.2 Storage and Handling
VICTRELIS Capsules should be refrigerated at 2–8°C (36–46°F) until dispensed. Avoid exposure to excessive heat. For patient use, refrigerated capsules of VICTRELIS can remain stable until the expiration date printed on the label. VICTRELIS can also be stored at room temperature up to 25°C (77°F) for 3 months. Keep container tightly closed.

Is your doc going to prescribe more than one months supply at a time?   Seems like an awful lot of trouble and extra money  to buy a fridge to keep by your bed. I guess I've been on Riba too long now to think rationally.  

@ willbb.  And also..I was beginning to feel the guilt.  "That's why I didn't get und. at 4 weeks"    ugggh!
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