Victrelis

[rockymoe]

i am on 5th day of triple treatment. I find the Bocep intensifies all theSOC sides and I have been very nauseaous and the taste in the mouth *****. I find if I take them with a few Jr mints it helps. Right now the Halloween candy is out so they have those little boxes out. i saw someone put on her toast! You won't catch me doing that, i find it hard enough to get a piece of toast down with cinnamon butter on it. eating is not something i enjoy right now everything taste the same which is no taste☺

[spectda]

I had a very different experience when the Victrelis was added. I had virtually no immediate change in how I felt except the taste was obviously terrible. After a couple of weeks I had really rough intestinal pain which lasted for another couple of weeks and stopped. HGB, ANC and Platelets all went to hell, but that all started with the lead-in. Those particular blood values were all normal prior to tx.
-Dave

[sandysf]

On timing, my understanding is every 8 hours.. so it doesn't HAVE to be at 6 am.   I wake up every night to go to the bathroom and I like to sleep in late, so my schedule is   11:30 am (with lunch),  7:30 pm (with dinner) and then 3:30 am.. ( i set a bedside alarm, but normally wake up before it anyway cause I can never sleep the entire night without going to bathroom)  So it works perfectly for me.   I found the bad taste and dry mouth dissipated after about one month of Vic.    HGB tanked to 9.2 by week 6 of Vic and at week 14 of tx, my riba was reduced from 1000 to 800 for two weeks.  It helped immensely.  

[sandysf]

Oh.. the other side effect that has become increasingly worse, is hair loss.  I have been losing it at a pretty steady rate since the first few weeks, but the past two weeks has been much worse.  I had a pretty thick head of hair, good thing.. because I have lost at least half of it.  I see why people just say to heck with it and shave their heads.. I am constantly shedding and hair is all over my house!  On the up side, my eyelashes are nearly twice as long.. go figure!    

[rockymoe]

So how are you doing? I am having shortness of breath and muscle fatigue.I have a two story home and by the time I get to the top I'm sucking pond water. Went for labs today checking to see if I've crashed or not

[rockymoe]

I have a question for you? How is it for you being the spouse of someone on treatment? As the one on treatment it's like you have to live it to know it. I know I am like a different person when I'm on treatment and just wondering how it feels with the shoes on the other feet. My husband tries very hard to over look things but I know it gets to him,

[brianmo]

Wow, sounds like I have Fun stuff to look forward to. Interesting that the bad taste in mouth seems to be a SE when the Vic starts but I have had it since my first injection Thursday night. It wasn't more then 30 secs after the shot and my mouth tasted like metal. Everything else does also. In four days I have lost a half lb. I been doing peppermints and cinnamon gum. It helps. Besides for that I feel fine. A little hyper, almost like to much energy but I have been assured this will dissipate.

U2GF....over to the right of page on bottom Is a list of most viewed pages. In that list is a list of acronyms.

Mo
Mo