I have had great results. Dr gave me 2 shots and reduced RIBA to 800 for a couple of months while I waited on ins. Went from 8 to 9 and up to 11 now w 20 units of procrit. I worried about RIBA reduce, but like you - refused to even think of stopping!
Hang in there. You're Soooo close! Btw- no aide effects for me either.
Screaming- I remember ur struggle. The blood transfusions are nice too, huh? Lol. Never in my dreams could I imagine myself saying that..
Karen :)
Thank you all so much. I think I will wait a bit to see what my new labs come back as. I can walk a little farther now and stand a little longer, so I'm hopeful that I will not need the procrit. I only have 6 weeks of this nightmare left, so I'm starting to see the light at the end of the tunnel, and I so badly want to complete the treatment.
To Indy531, my doc wanted me to stop treatment as well, but we decided to see what happened with the reduction in Ribavirin.
i loved Procrit it saved my course of treatment. I was on it 69 weeks and had no adverse affects just a raised hemo.
reducing my riba was the best way i found to get my hgb up...the procrit seemed to work but still needed to reduce riba....i wish i could have been in the 9s but that wasn't happening ..was 7s and 8s....i think if i was up to 9.6 i would wait a week or two checking blood work every week...why take anything you don't have to..........billy
Yesterday my hgb dropped a full point to new low of 8.6; hep doc started by saying if hgb dropped more he would stop tx-Oh No, Mr. Bill!! I asked him to consider rescue drugs and he brought up transfusion; I think he was more than interested in my commitment to the tx process-I did explain that getting from 1 room to another left me gasping. He dropped Riba dose by one-third. I'm going to try some frozen what grass juice, which I have read can help hgb and begin B12/Folate suplements today. Rescue drugs are very expensive for ins. co's. and they often drag their feet.
I didn't have any kind of reaction to the procrit except for the fact it never worked for me, I stayed at 8.1 the majority of the first few months then a week before Christmas I had a transfusion 2 pints and hgb went to above 11 and felt much better. They may start you on a small dose to see how you respond and frequent blood work. good luck