happy to find this forum

[hope1315]

hello everybody!i am so happy to find  this forum!i read some of the questions and answers and first of all i would like to wish eb is cured and has the strength to go on with their treaments!my sister has hep c for about twenty five years .she is now 44.she first learnt about it twenty yrs ago and had her 1st treatment without success.six yrs later she had another treatment with riba but no success again.eight yrs have gone by but she doesnt want to have another treament cause she had some side effects and is afraid.she is genotype 1 and i think thats the most difficult to be cured,isnt it?we live in a small country and unfortunately there is no info or help for hep c whatsoever.its awful !it is like being all alone and have nobody!you r so lucky that you have one anather and ask and give courage.i read in your forum about the trials of the new treatment and i think thats amazing!i hope eth goes well for eb!do you know when the first results of the trial will be known?excuse my bad english and my errors pls.

[hope1315]

thank you dannyboi7 you are so so helpful!i will just browse the forum and come back later with any questions. thank god i know some english and i can get some help  from this forum .!

[Dannyboi7]

no worries-

those are acronyms

tx -means treatment

UND-means virus is undetected,this acronym is used while someone is on treatment when they get  blood tests to see if the virus is present in the blood.

Here is a weblink explaining most of the terms used for people with hepatitis c

Hepatitis C Acronyms/Abbreviations
Hepatitis C Acronyms and some Definitions:


http://www.medhelp.org/tags/health_page/3466/Hepatitis/Hepatitis-C-Acronyms-Abbreviations?hp_id=3

[hope1315]

thanx Dannyboi7!thats very good news!im so happy to  to have found you.i was very dissapointed with the interferon treatment due to the side effects!
its a little difficult for me to understand some of the things u r writing..eg what does tx or und mean?

[hope1315]

thanx alot Idyllic!this forum is really a bless!the news about the new treatments are so good!my sister does not want to vist her doctor or do exams yet.i hope she changes her mind soon cause im very worried.do you think her liver will be in a bad state after so many yrs?im so afraid!thank god she doesnt drink or smoke but she is in a bad psychological state and doesnt take care of herself very much.how often should one take a biopsy?is it a dangerous examination?what other exams should one do when he has hep c for many yrs?

[Dannyboi7]

Welcome to the forum,no worries about your grammar skills english is also my second language.People here won't hold it against you.Try using an english spell check;)

    Genotype 1 are no longer the hardest to treat when they go on the triple therapy treatments,the success rates are pretty high.And with the new treatments coming in a couple years it will be in the 100% range.I know the side effects on interferon base treatments can be hard but with the triple therapy it's worth it in the end.

Wishing you the best to you and your sister

Dannyboi7

[Idyllic]

I do not blame your sister for being reluctant to treat again ~ especially after two failed attempts. The thing is there has (finally) been much development in Hepatitis medication when it comes to treating.

Your sister has more options now and may have even more in a few years (hopefully less) from now. There are "all oral" medications in trials that are producing incredible results with WAY less side effects and shorter treatment durations.

I encourage your sister to see her liver doctor and find out where she is with her fibrosis.