Aa
Will I make it?
I am in my 17th week of treatment (24 week total). My RBC and Hemoglobin are really low. Hemoglobin hovers between 8.5 and 7.8. My blood pressure hovers around 78/41 but does come up to 83/50 after recommended 2 units of blood for the transfusion every 2months. I have survived through blackouts, peeling skin, horrible rashes, weight loss of 25 lbs and fevers with nausea and vomitting. The doctor has decreased the Ribavirin to 600mg for the next 4 weeks, but I have chest pains, can't breathe due to shortness of breath. My specialist and my gp are not available now until middle of January 2013. I just don't think I am going to make it at this rate.Could I reduce the Ribavirin to 400mg for awhile?
All of these nice friends helped me get through the 24 weeks . There is some on here that are more educted about this than our dr's. It got really hard for me the last 2 months but with the help of this forman an the nice people here and, and my dr's I made it. I did my last meds the end of June had my 6 month check up on Dec, 17 and got UND back I said thank you God for helping me stay strong each day. Just say Jesus help me make it through this day. Dont give up .We all are thinking good thoughts and praying for the best
bbj
bbj
I am there for you buddy!! It is a long haul but the payoff is massive!
My sons reminded me of what I used to tell them when they were little boys and felling ill. At the time, GI Joe was all the rage (actions figures, cartoons, movies, etc). I would say that their bodies contained the GI Joes and that the battle with the illness was like fighting an enemy. They would be laying in bed ill and I would have them say to themselves " Go Joe! Go Joe! " several times. Funny how I took that phrase and used in my circumstance, but dropped the "e" on the end of Joe.
We can do this.
My sons reminded me of what I used to tell them when they were little boys and felling ill. At the time, GI Joe was all the rage (actions figures, cartoons, movies, etc). I would say that their bodies contained the GI Joes and that the battle with the illness was like fighting an enemy. They would be laying in bed ill and I would have them say to themselves " Go Joe! Go Joe! " several times. Funny how I took that phrase and used in my circumstance, but dropped the "e" on the end of Joe.
We can do this.
Jomcc
I really appreciate your note.
Week 14 starts on Wed 3rd Jan (same day as your appointment) when I take interferon 135mms and meet with new herpatologist and get full blood work.
I need you to help me crawl across that finish line with you too buddy!
Love to all the brave and wonderful friends here.
Pete
I really appreciate your note.
Week 14 starts on Wed 3rd Jan (same day as your appointment) when I take interferon 135mms and meet with new herpatologist and get full blood work.
I need you to help me crawl across that finish line with you too buddy!
Love to all the brave and wonderful friends here.
Pete
The reduction of the Riba to 400mg has made a difference after only 1 week!! I can eat and keep the food down, I am actually hungry at times, walk without fear around the apartment (used to have to stop,drop and sit when lightheadness came on), have so much more concentration. I didn't notice any change until today, but wow it brought me to tears of joy almost. I will struggle on so as not to waste all these weeks of discomfort and money, I must crawel across the finish line!!
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The most important part of the treatment is the first 12 weeks,if you were compliant in doing all your meds in those first 12 weeks and you were UND then the rest of the treatment just a mop up.The problem is you don't know if had achieved an RVR which is a good predictor for a SVR.I which case it would be important to finish the 24 weeks even with a dose reduction.On SOC one of the independent predictors for a SVR is the 80/80/80 rule which means patients who took more than 80%
of their prescribed IFN, more than 80% of their prescribed RBV,
and are treated for more than 80% of the planned treatment
duration)