Aa
new to forum
dr cecilI am a vet that has been diagnosed with hep c in 2005 I have went thru treatments of ribavarin 6 pills adaypeg/interferon 180mg weekly injection. all of which iowa va medical center determined a medical failure because my viral load went from 6000 to < 50 after I year and 3 months my labs are as follows inr 1 alpha fetoprotien 16.5 glucose 126
urea nitrate 9 creatine0.74 sodium 139 potassium 3.5 chloride 106 co2 26.6
anion gap 6.4 eGFR 88 free throxine 1.21 tsh 19.7 total bilirubin 0.7
direct bilirubin 0.3 alkp 173 alt 80 ast 101 total protein 7.1 albumin 3.4
where do igo from here is there anything i can do cant get on liver transplant list till liver fails even tho i am in stage 5 of corrohsis please contact me at ***@****
urea nitrate 9 creatine0.74 sodium 139 potassium 3.5 chloride 106 co2 26.6
anion gap 6.4 eGFR 88 free throxine 1.21 tsh 19.7 total bilirubin 0.7
direct bilirubin 0.3 alkp 173 alt 80 ast 101 total protein 7.1 albumin 3.4
where do igo from here is there anything i can do cant get on liver transplant list till liver fails even tho i am in stage 5 of corrohsis please contact me at ***@****
Now that was funny, laughing and giggling at the same time. oh , humor, isn't the greatest thing .
Debbie
Debbie
Meki- my mom always told me that I was *special*. Later in life, I found out that a nice man named Jerry Lewis helps *special* kids... is that the same as wonderful?
--Billyboy
--Billyboy
OK, the filters got the email. Silly me. Go to his home page, and click on "contact Dr Cecil". Ive heard he tries to answer mail promptly.
Good luck, and keep us posted--
Bill
Good luck, and keep us posted--
Bill
Hi Mimipat;
I’m sorry to hear of your situation. I think you might have inadvertently posted this to the wrong website. Dr Ben Cecil is a practicing clinician in the Louisville, KY area; and is an HCV advocate for vets as well as incarcerated individuals.
Here is the address to his website; you will want to cut and paste this message and send it directly to his e-mail.
http://www.hepatitisdoctor.com/ (site)
***@**** (email)
Take care,
Bill
I’m sorry to hear of your situation. I think you might have inadvertently posted this to the wrong website. Dr Ben Cecil is a practicing clinician in the Louisville, KY area; and is an HCV advocate for vets as well as incarcerated individuals.
Here is the address to his website; you will want to cut and paste this message and send it directly to his e-mail.
http://www.hepatitisdoctor.com/ (site)
***@**** (email)
Take care,
Bill
"I have went thru treatments of ribavarin 6 pills a day peg/interferon 180mg weekly injection. all of which iowa va medical center determined a medical failure because my viral load went from 6000 to < 50."
Can you explain this in more detail, please. What genotype are you? How long did you treat? What was your baseline viral load (before treatment)? Did you become undetectable - at what week of treatment? Did you then stay undetectable until the end of treatment, and relapse post treatment? Stage 5 - can you state the range of that biopsy?
Our options if failing treatment are either to wait for better drugs to be approved (there are protease inhibitors in trials now), or try to get into a trial study for relapsers ourselves, or try retreating with a more aggressive approach, ie longer duration, higher doses of interferon and/or riba.
Good luck! Zazza
Can you explain this in more detail, please. What genotype are you? How long did you treat? What was your baseline viral load (before treatment)? Did you become undetectable - at what week of treatment? Did you then stay undetectable until the end of treatment, and relapse post treatment? Stage 5 - can you state the range of that biopsy?
Our options if failing treatment are either to wait for better drugs to be approved (there are protease inhibitors in trials now), or try to get into a trial study for relapsers ourselves, or try retreating with a more aggressive approach, ie longer duration, higher doses of interferon and/or riba.
Good luck! Zazza
Did you want the Q/A section for the physicians.???
This is the "sharing side" of the forums, but just "unschooled" - other than thru experience - people trying to help each other understand and get thru what life has given them.
This will probably be the only time in my life that I get to tell Meki "wrong". LOL
If you are brave enough to want to put your email out there, you need to 'spell it out'.
ie: johndoe at msn dot com. I've not tried it but have seen it lately and understand that that is the only way that it (and websites) will go thru. (?) Gotta be smarter than the average bear. lol.
Welcome to the forums. There are absolutely awesome people here with a wild variety of experiences, adivce and opinions. We are all just "going thru it" in one form or another and trying to keep each other held up and knowledgeable. ALWAYS take any "advice" with the knowledge that we are also pts, as you are and ALWAYS talk with your Dr. about your concerns before changing any meds., treatments, etc.
Hopefully someone with more knowledge than myself (tho' I wish my labs looked that good) will post with some solid help for you. The best thing to do, as others have said, is "read, read, read and read some more". There is really good info. out there.
Geri
This is the "sharing side" of the forums, but just "unschooled" - other than thru experience - people trying to help each other understand and get thru what life has given them.
This will probably be the only time in my life that I get to tell Meki "wrong". LOL
If you are brave enough to want to put your email out there, you need to 'spell it out'.
ie: johndoe at msn dot com. I've not tried it but have seen it lately and understand that that is the only way that it (and websites) will go thru. (?) Gotta be smarter than the average bear. lol.
Welcome to the forums. There are absolutely awesome people here with a wild variety of experiences, adivce and opinions. We are all just "going thru it" in one form or another and trying to keep each other held up and knowledgeable. ALWAYS take any "advice" with the knowledge that we are also pts, as you are and ALWAYS talk with your Dr. about your concerns before changing any meds., treatments, etc.
Hopefully someone with more knowledge than myself (tho' I wish my labs looked that good) will post with some solid help for you. The best thing to do, as others have said, is "read, read, read and read some more". There is really good info. out there.
Geri
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