Hep C Trust, Post tx survey

[James10500]

http://www.hepctrust.org.uk/Resources/HepC/HCV%20Reports/Post%20Tx%20Survey%20Report%202010.pdf

[Susan_1a_CC]

Thank you for catching my mistake - my critical faculties are failing already ;) - just kidding.  I agree with your 2 cents worth.

This report, along w/ the survey of long term aftereffects that is being done here on medhelp,  does leave me wondering if longer term undesired effects either haven't been taken seriously or no one has yet looked closely at them (busy overcoming the virus.)  I have no problem w/ agreeing to tx knowing that recovery may take some extended length of time, I do have a problem not being fully informed.  I am not accusing anyone of malicious withholding of information although it has been my experience at 2 different medical facilities that difficulties of tx were downplayed.    

[eureka254]

No, the report states that 90 people of the 500 had cirrhosis, not 90%...
Regardless, it would be interesting to compare hcv treatment statistics to other 'major therapies' for other conditions.  Part of me also thinks that if we were to survey any specific population after being exposed to a constant stressor for 24-48-72 weeks in time, just as many of them would say they felt better as compared to worse a year later.  My two cents worth, anyway.

[Susan_1a_CC]

If 90% of the 500 people had cirrhosis than is really any wonder that it took up to two years to start feeling better?  It's like having a broken leg, getting the cast off and expecting to run a marathon, or even 2 miles - it's just not going to happen right away.  Or, at least thinking so makes me feel better about this report.  I'd still like to confirm that they meant cirrhosis and not fibrosis.

[James10500]

I felt the same way !  Now I'm not sure I want to stop tx...lol.

[Susan_1a_CC]

Feel a bit like I got punched in the stomach after reading that article.   Geesh, I didn't go into this thinking that I might actually regret it...

One thing that stood out for me, was on pg.7 under cirrhosis, they suggested that 90% of the 500 respondents where dx with cirrhosis.  Am I correct in thinking that cirrhosis is stage 4?  If so, perhaps this is significant to the findings of a longer term recovery after tx?  I'd really like to see more conclusive findings on the aftermath of tx.

[Trish77]

Very interesting study.  Thanks for posting that.

[IMstacie]

This was interesting.  I found it particularly interesting that the most frequently reported pre-treatment symptom was fatigue.  I remember being fatigue for a long time, to the point of complaining to the doctor about it.

thanks