severe muscle cramps

[niki12]

I have a question regarding muscle cramps (pre tx)  I wake up at night with charlie horses and am constantly having some sort of muscle cramp.

Can anyone tell me what causes this or what I can do to stop.  I am only starting tx in January.

Thanks,

[vextor]

Cramps

[GoofyDad]

Hi Don,

Read about <a href="http://moon.ouhsc.edu/jgeorge/Calvin.htm">this poor old chap</a>....drinks such as tonic water and Schweppes Bitter Lemon....contain quinine.  Although ....low, it is enough to cause severe low platelet counts and critical bleeding in patients who are sensitive...

I'm doing pretty well, thanks. The sides are cooperating and things are OK. I'm going through some severe issues at home, and that's going to be hard to manage on tx, but like you said, I'll just need a bigger shovel.

I won't complain, look at you and your Dad's issues. Glad it was a success for him and send him our best. I'd like to hear that, "Hey Dad, the internet said to say Hi"!

Anyway, you keep posting your inspirational stratorisms, and I'll keep trying to be funny. We'll hit the finish line togther.

  

[jmjm530]

That all makess sense. I've skipped some scheduled CBC's recently as well for similar reasons. :) And how you feel is as important as the numbers. The body will adjust over time to lower Hgb levels. So do I get my scheduled CBC today? I don't want to know...I want to know...I don't want to know...I want to know... :)  BTW have they checked your iron stores yet? Forgive any duplicate questions but you understand the anemic fog. :)

-- Jim

[GoofyDad]

There was a comment about quinine for cramps earlier. Just want to point out that can be an issue with low platelets. I have a link on another computer - ask me or google, it if interested.

[strator]

Thanks guy, I hadn't thought about any interaction with blood levels. I haven't found the info stuff I had a while back on cramps. For all I remember quinine might just be an old time fix. Maybe I'll google tomorrow. Right now I'm burnt out. Was up at the hospital all day while my Dad had surgery on his spine. All went well. Just one of those days when I really miss a good nap or 2 or 3. How you feeling anyways?
Don

[NYgirl]

Jim

They started me on 40,000 for two or three weeks and the hgb didn't go DOWN anymore but it did not go up from NINE and I was still feeling BAD (I mean I started at almost 15).  

I am going to get my CBC tonight after work. I skipped last week. I really didn't want to know. I got obsessd with NUMBERS and not so much of what my body was feeling.

Like if someone SAID I had a 9 I would feel BAD even IF I really rebounded up to 11 or something you know?

and look.....yesterday I felt pretty good...

I am a psychological psycho it would turn out ;-)