taken off incivek because of rash

[marivirginia]

Today my Doc immediately took me off incivek and sent me to a dermatologist. I have literally been at the doctor all day. It is 10 days early but, I am UND as of 8  and 10 weeks. They told me I had enough in me and to continue Tx. Has anyone had this experience? And if so did you maintain SVR? The rash got much worse this past weekend.
Mary

[Dee1956]

Hello, 3 of the people who stopped early have responded, there is another I know of MsDragonSlayer also had to stop tx completely by 11 weeks.  6 months after finishing she is also SVR.  There was another woman on the web that had to stop early and she is SVR.  As a prior relapser I think you will do well.  You were very close to the 10 weeks.  I am a prior relapser and am UND at 3 months post
Best of luck to you
Dee

[Gerbils]

I agree with you; I can't imagine taking them both. You wouldn't switch now even if they did that (which I don't think anyone has done that). It is either Incivek or Victrelis. You are far enough in to the treatment that you are committed at this point. Your rash is a big deal and you need to be very careful and stay in close contact with your doctor. Ceanothus is right the effects of incivek will continue for probably at least several days after you stop taking it so if the Dr. says stop you should follow that instruction. The rash can start to accelerate rapidly. Take care.  I am sorry you have the rash but please keep us posted so we know you are ok.
G

[marivirginia]

I am a relapser ..SOC is incivek...I am not sure about switching but, I yhink in Atlanta they are starting a clinical trial using both drugs...can't imagine

[LadyFoxx]

Thats why I picked th Victrelis can they switch you?  I dont know much about switching meds on treatment I just know that rash is like the devil from what I am reading.  If its an option you may want to do that I have to take it 7 months instead of the 6 on the inv like you guys are taking.

[marivirginia]

Thx saelon..I am actually going back to doctor in the morning..but I feel better knowing what you shared..better not take chances though..I'll still go to doc...let you know what happens....all the itching came back eeek!! rash red and spreading...not a pretty sight...hope you are feeling ok

[ceanothus]

It is really common for the rash to continue getting worse for a little while after stopping the Incivek. I only had a mild rash but I also found it got worse for the first 5 days after Incivek, and then started getting better gradually. Actually, all of my incivek symptoms got worse for the first 5 days before getting better, but then I was rewarded at the 7 day point by feeling not just better, but downright GREAT for at least 10 days. Eventually the interferon/ribavirin side effects caught up with me and that great feeling turned back to crap, so be ready for the possibility of feeling great for a little while so you'll be able to take good advantage of that period before it fades away again.

Remember that my experiences did not include a really severe rash, so if you get worse for a few days that could be much more dangerous than it was for me. I think you should keep in close contact with your treating physicians until it is really getting settled down.