teleprivir and waiting????

[jt57]

Had my biopsy yesterday.  The Dr. said that my tissue "looked good" and he wanted me to think about "waiting" for treatment.  He is doing a teleprivir  trial starting this summer for 1b patients that have never had any previous treatment. We were going to start immediately on the current SOC.  I'll get my actual results on Wednesday, so I will actually have more to go on then.

What do you guys think?  Is the teleprivir an injection, or a pill?  How about side effects?  

I am hoping that the doc stating my tissue looked good is indicative of a good report!!!!  

Appreciate all the support out there!  I was really scared about the biopsy, but this forum convinced me I needed to do it.  You guys are a great support system.. I'll do my best to contribute what I can to the forum as well!!

Jean

[moahunter]

There are advantages and disadvantages to trials. The big advantage seems to be cost. Additionally, you may get access to a better treatment, long before other people. The disadvantages can include an inability to modify your treatment regime, and additionally, that you are in effect a guinea pig for the rest of us. The worst case scenarios include unanticipated side effects, or developing resistance to a future treatment. Whatever you decide, good luck with it!

[working dog]

you don't even know what your bx results are yet...sounds to me that you may do ok with your results...if you do good why not wait for tx in the future?....i know i get anxous to tx but have waited two years now and i think i'll wait a little longer to see how things go with all the new stuff out there...keep in mind lots of folks have sx after tx...some do real well...maybe if i was a better geno to tx i might go for it..but 1a i would at least think about waiting a couple years...i know whether to tx or not depends on lots of things though.....billy

[beatrice57]

Your comment on telaprevir is interesting - is it already on the market or are you on a special study? can you tell me what SOC stands for (french girl and not familiar with a lot of abreviations used in this forum!)
thank you

[jt57]

My doctor is wanting to put me in a study trial for telaprivir.  It is not on the market yet.  I am a 1b, and it seems to be my best chance for clearing the virus.

Jean

[copyman]

SOC = Standard of Care (regular treatment drugs) in this case the regular drugs are interferon & ribavirin

[ouc]

I am geno 1b stage 1 1mil VL.On 9/25/08 I am starting PHASE  3  STUDY OF TELAPREVIR IN COMBINATION WITH INTERFERON AND RIBAVIRIN TREATMENT . Need some feedback from anybody who has completed
PHASE 2 STUDY.