tired & achey

[irishunicorn180]

has anyone had the symptoms of constantly being tired ( even with enough sleep) all the time & being achey all over before tx is started? i have been this way for a little over a week. is this normal? im type 2b & viral load is just over 1 million. i was lucky that i cought it this soon in the game. i've havent had any symptoms that i know of until this. i would get tired but usually i had not had enough sleep so i thought it was from that.any information would be great. my luv to all & i hope everyone is doing well. hugs to all.

[irishunicorn180]

thank u for all the advice. the only problem with telling my family is that i live with my brother & sister, im a RECOVERING addict & they are both pot heads. they dont even understand why i go to meetings. plus whenever 1 of them gets pissed at me they throw up everything up in my face that i have done in my past. thats why i dont want to tell them. i have great peole close to me that r in the fellowship that i am in that are here for me & i can talk to them. i have beem alot about all this with them. they have helped me alot with dealing with this. but thanks again for the advice & info.
god bless to all

[NJDrummer]

Yeah I remember for the first couple years after I was diagnosed...my mom treated me like such ****. I almost felt like I got quarantined in the house.  She wouldn't let me keep any hygene products in the bathroom. She made me use only one cup and wash it and keep it in my room away from other cups, etc etc. As if it wasn't bad enough that I found out about getting the Hep C, I felt even worse by how I got treated. Over the years she has lightened up a bit, but it was rough at first.

Not telling you what to do, but telling them might help.  Then if you need some help or need someone to talk to when feeling a little down, they will know why and stuff like that.  You do need to keep the meds refrigerated though.. Not exactly sure what the purpose is..don't really care, I just do what I am told lol.

I was achy and tired a lot before I started treatment. Didn't really know why, or even associate it with having hep.  But from reading this site the past few months(cause I joined before I got my meds) a lot of things are making more sense to me now.

[GSDgirl]

before I was diagnosed I had what I thought the flu, then depression, then I honestly felt like I was being lazy.  I now know the problem was the HCV.  But sitll over 6 months post TX I am still achey and tired after 8 - 8.5 hours of sleep.  I think that if I could just sleep until I wake up naturally it might be different.  But having a kennel and dogs needing fed, kennel needing cleaned, ponies & chickens to feed that would not be fair to them.  Not everybody still has the tired achey morning feeling but I do.

I told my family what "might" happen on TX just so they would know.  They were very supportive & helped when I needed it the most.. Good luck on your TX!!

Denise

[Marcia2202]

Yes, I did. I was mostly in bed or at home for more than 6 months before starting tx, suffering from extreme fatigue and joint and muscle aches. I did travel to India for 2 weeks, because we had already booked our tickets, but I was lying in bed most of the time I was there, too. Managed to see the Taj, but that's about all.

Since starting tx, I can hardly get out of bed at all, especially the last two weeks. 10 -15 minutes max at a time. It feels like I am a jelly fish filled with led. Kind of a feeling of being half dead and half alive. But fortunately the joint aches have almost gone and the muscle aches have diminished too. And I don't have any rashes etc...

But everyone reacts different to tx. Some have a very difficult time and many can get around and even work while treating. Not me...

The important thing is not to get depressed about it and to take a day at a time. That's what I've done for the last 8 months now, take a day at a time and accept that I might be in bed for another year.

God bless,

Marcia

[scruples]

You are very right, most of the time if people get aware of your disease then they tend to see YOU as disease and consider yourself dangerous for them. I also dont keep my meds in my house. I used to go to the medcine store (which is specific for Hep medicine) and get meds from there and they also provide the services of qualified Nurse etc so i get shot from there and keep my meds with them, No doubt they have better arrangement to keep the meds.

As far as the question of not telling to your family is concerned, Well I wont Call it impossible but its really HARD to conceal from them. These meds do have SX (mild to severe) and some person constantly need counselling and support from their family. I dont feel Sx much, it just a tiredness all over the day, a very negligible rise in the body temp after 5-6 of the shot and weakness. These are the things which can easily be concealed from the person living with you. You can also try that but if your Sx get worse , do tell your family coz you need a support from them otherwise they will tend to engage you in routine life and your energy level may not support you.

Lets hope for the best  

[irishunicorn180]

thanks for the info. i do have another question, i was seeing on here about having to put meds in fridge. why is that?i really didnt want to tel my family & if i have to refridgerate the meds then i guess i will have to tell them.

[scruples]

"has anyone had the symptoms of constantly being tired ( even with enough sleep) all the time & being achey all over before tx is started? "
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Yes thats very common thing, normally its considered as one of the symptom of HCV. Me too used to be tired and exhausted all the time even i take good sleep of 6-8 hours a day before Tx. Moreover apart from this tiredness, joint pain & Aches and mood swing / short temper are also common symptoms.