Congratulations! You'll find a lot of support and great tips on this site. The anticipation was almost worse than the 1st shot. I'm Gen 1a also. I'm heading toward my 3rd injection and managing much better than I thought. Some SE are a pain and a hassle. Low grade fever n aches, hair loss, yeah and getting creative w/ all the fat intake. lol. I'm having to make myself rest most days. Others I drink green tea w/ ginger for nrg and nausea.
Go for it!
opps, i keep forgetting stuff. the most import part of the visit is the informed consent. it consist of a description of the trial and side effects. you will be asked if you have any questions, and then be asked to sign.
all - thanks for sharing your experiences.
hrsepwrguy - the first visit is probably a screening visit. it will likely consist of blood work, physical, psychological questioner, ekg.
UC Denver called and they have all of there drugs in. I go for my first visit on thursday, not sure if treatment will start then or not. I already have all of my blood work, biopsy and need to treat letter from GI in order, so I guess here I go. Lets hope for a SVR, you guys are great and I will keep you posted.
Thanks
Keith
I started triple therapy 2 weeks ago, the first shot was the worst flu like systoms, chills, cild sweats, tired, feels like you have a fever but you dont.
The incevik and riba pills just make you tired, the hardest part is eating the 20 grams of fat at 6,2 and 10 oclock. I started mixing a protein shake with whole milk and a tablespoon of peanut butter, i figure thats about 28 grams of good fat and much easier then tring to eat a meal. Everyones sides are different, the first shot was definetly the worst the second was much easier. the second shot i took two aleve about two hours after and didnt feel as bad.
Good luck Joe
The anal stuff in my opinion is caused by the incivek and the food you eat. So if you have a problem think of what may be causing it and stop eating that food. also you may want to add yogurt to your diet.
I'll be going into my 4th week soon of triple therapy withi incivek. Light sides , tired a bit and achy occasionally. It's not bad at all so far. Don't worry, just do it. About insurance, that was a big worry for me too. Vertex was wonderful in getting the drug in my pharmacy and I was approved without a problem. I wish the same for you.
Doctor should assign an advocate to help you get drug approval, it wasn't something I could do on my own. Make sure you have a doctor who is experienced in treating hep c.
Good luck
Keith, I also will be starting on the triple trip soon, likely in mid September, hopefully. No insurance, but the ID folks say they can get all 3 free for me, I'll have to pay visits and testing, etc. I'm not lookimg forward to it, but I think I've waited enough, time to take the plunge. I still wonder how my system will handle it, mainly because I have no spleen which causes my WBC and platelets to always be off the charts. Also have waited due to lesions on kidney and liver, last CT said they had not changed much, but, "appearance remains indeterminate", another CT or MRI in 6 months. I hope all goes well for you, when do you start? Keep us posted, and welcome.
well it is indeed a small world. i am looking at the same trial, just need to keep the 'ol platelets above 100,000.
eric
I am very lucky and live close to Denver Co where they have a clinical trial that is the triple drug therapy, that is studying effects of a wieght based ribovirin dose compared to a standard mg dose
Keith
im due to start in sept waiting for insurance approval.....my viral load is only around 106,000 dr thinks i should clear in a week but still wants me to do 48 weeks since i am type 1 TT
my dr also said he thinks ins companies might start denying treatment naive patients because of the cost
we're delighted to have you. like you, i ain't got no wiggle room left.
blessings
eric
Thanks for the welcome and the info. The side effects sound nasty but I am already at late stage three bridging fibrosis so here we go. I am glad I found this forum.
Thanks
Keith
opps, i for got to say Welcome to the Forum!!!!
eric
Welcome to the board. I haven't tried the triple cocktail, but several people on here have. There are several threads dedicated to side effects,
Take care,
christina
eric
http://www.fda.gov/downloads/AdvisoryCommittees/CommitteesMeetingMaterials/Drugs/AntiviralDrugsAdvisoryCommittee/UCM252562.pdf
http://www.fda.gov/downloads/AdvisoryCommittees/CommitteesMeetingMaterials/Drugs/AntiviralDrugsAdvisoryCommittee/UCM252343.pdf