Aa
wilson's disease
Can anyone tell me more about Wilson's disease? The Dr's are pretty sure my son has this?
Thanks
Campergirl
Thanks
Campergirl
I used to tan like crazy...then I got an atypical malignant basal cell carcinoma on my back. It was the size of a RibaBump at first. They cut if off it came back the size of a dime. They cut it off again it came back the size of a nickel. They froze it off it came back a bit bigger.
Finally I went to a different doctor who said that they NEVER would have gotten rid of it it was growing DOWN instead of UP and she would have to cut it out.
Well I thought it would be like the last few.
Nope...I now have a scar 6" long on my back that had 75 stitches. I keep thinking how lucky I was that this was not on my FACE.
I used to love the tanning booth and the beach. I find it VERY hard to stay out of the sun now but I try. Not worth it. Got enough diseases and problems already! ;-)
Finally I went to a different doctor who said that they NEVER would have gotten rid of it it was growing DOWN instead of UP and she would have to cut it out.
Well I thought it would be like the last few.
Nope...I now have a scar 6" long on my back that had 75 stitches. I keep thinking how lucky I was that this was not on my FACE.
I used to love the tanning booth and the beach. I find it VERY hard to stay out of the sun now but I try. Not worth it. Got enough diseases and problems already! ;-)
Hi,
Just wanted to let you know in case you did not see it posted over the last few days. Kalio2 is an imposter that we ignore because of his comments,Etc. I think you might have guessed some thing was not right with what he says. But Kalio 1 is the real thing.
Hope you are feeling well.
BB
Just wanted to let you know in case you did not see it posted over the last few days. Kalio2 is an imposter that we ignore because of his comments,Etc. I think you might have guessed some thing was not right with what he says. But Kalio 1 is the real thing.
Hope you are feeling well.
BB
Good news about your son!It,s amazing how your son recovered.That shows how much the human body can take and still heal!I too did alot of drinking but quit in 1992,shortly after hcv dx.I,ts hard but it can be done.Since that lifes been good!Good luck to both of you and may you all live happy sober lives!
Rick
Rick
So glad to hear your son is doing better. Thank you for updating us here, I'm sure a lot of us have been wondering. Wish you and your son good health and a safe journey with the Wilson's and in all you do.
Don
Don
I've had no problem not drinking, in fact I've lost about 8 lbs since I stopped. Drinking always gave me the serious munchies. And my son has no desire to drink whatsoever. In fact he looks forward to going to aa meetings just for the extra boost. He knows he can never drink again with Wilson's disease, so he welcomes all the help he can get. Also, lucky for him, he hates seafood. Chocolate also has copper in it in case anyone needs to know
Wilson's disease is an inherited condition in which copper is not excreted properly from the body. The excess copper can build up in the liver and/or brain causing liver damage and/or neurological problems. It can also collect in other parts of the body including the eyes and the kidneys.
Copper begins to accumulate immediately after birth but the symptoms usually appear in the 2nd to 3rd decade. The first signs are hepatic (liver) in about 40% of cases, neurological (brain) in about 35% of cases and psychiatric, renal (kidney), haematological (blood), or endocrine (glands) in the remainder.
What are the signs and symptoms of Wilson's disease?
In some cases these can be very mild, everyday symptoms such as tiredness, loss of appetite, abdominal pain, vomiting, weight loss, nose bleeds and anaemia. These symptoms may come and go over a period of months or even years, or they may be more persistent. Some patients also experience kidney problems, i.e. tubular dysfunction, which generally causes no symptoms, and joint problems, which are very rare. In other cases the symptoms may be more acute, especially when the liver is involved.
Liver disease can be broadly subdivided in to:
acute liver disease due to copper overload. In this case the patient is likely to be severely ill and yellow. A liver transplantation may be necessary if treatment does not quickly result in improvement
acute hepatitis: this is more or less the same as acute liver disease
chronic liver disease: slow scarring of the liver due to copper overload, which will ultimately also result in severe damage to the liver.
Some of the kinds of neurological problems can include:
deterioration in school performance or handwriting
mild tremors
dystonia: this is a type of cramping or stiffening of the muscles. Often this begins with muscle cramps in the arms or legs, and as the disease progresses, it may result into pulling parts of the body more or less permanently into abnormal postures
ataxia: loss of the ability to coordinate muscular movement
muscular rigidity
dysarthria: this is the medical term for speech abnormality. The dysarthria in Wilson's disease can take many forms, including slurring, low volume, a repetitive aspect in trying to pronounce certain words, and can progress to complete inability to speak (anarthria).
About one third of patients initially present with psychiatric abnormalities, including depression, personality and mood changes.
Hope that this helps
Copper begins to accumulate immediately after birth but the symptoms usually appear in the 2nd to 3rd decade. The first signs are hepatic (liver) in about 40% of cases, neurological (brain) in about 35% of cases and psychiatric, renal (kidney), haematological (blood), or endocrine (glands) in the remainder.
What are the signs and symptoms of Wilson's disease?
In some cases these can be very mild, everyday symptoms such as tiredness, loss of appetite, abdominal pain, vomiting, weight loss, nose bleeds and anaemia. These symptoms may come and go over a period of months or even years, or they may be more persistent. Some patients also experience kidney problems, i.e. tubular dysfunction, which generally causes no symptoms, and joint problems, which are very rare. In other cases the symptoms may be more acute, especially when the liver is involved.
Liver disease can be broadly subdivided in to:
acute liver disease due to copper overload. In this case the patient is likely to be severely ill and yellow. A liver transplantation may be necessary if treatment does not quickly result in improvement
acute hepatitis: this is more or less the same as acute liver disease
chronic liver disease: slow scarring of the liver due to copper overload, which will ultimately also result in severe damage to the liver.
Some of the kinds of neurological problems can include:
deterioration in school performance or handwriting
mild tremors
dystonia: this is a type of cramping or stiffening of the muscles. Often this begins with muscle cramps in the arms or legs, and as the disease progresses, it may result into pulling parts of the body more or less permanently into abnormal postures
ataxia: loss of the ability to coordinate muscular movement
muscular rigidity
dysarthria: this is the medical term for speech abnormality. The dysarthria in Wilson's disease can take many forms, including slurring, low volume, a repetitive aspect in trying to pronounce certain words, and can progress to complete inability to speak (anarthria).
About one third of patients initially present with psychiatric abnormalities, including depression, personality and mood changes.
Hope that this helps
Hi, yes it was a misdiagnosis. But because he is a heavy drinker, and the symptoms are basicly the same, they thought that must have been what it was. I read all the info I can find on Wilson's disease, and the Dr gave us some info, but untill the actual tests come back we'll just have to sit and wait.
For someone being close to death Fri eve Dec 23, And then 8 days later getting out of bed, taking a shower , being coharent, lucid, walking the halls, no tremors, no hallucinations, just being very tired, the Dr's were stunned at his turn around.
For someone being close to death Fri eve Dec 23, And then 8 days later getting out of bed, taking a shower , being coharent, lucid, walking the halls, no tremors, no hallucinations, just being very tired, the Dr's were stunned at his turn around.
There you are. I was afraid you weren't posting today. We'd miss your unique perspective. How's Mom?
Chev - I agee 100%... but I get the feeling that Kalio2 is purposely stalking Kalio1 just by some of the posts....
anyhow - I logged a complaint yesterday - I had also tried to address this in post to Kalio2 but this person cannot seem to respond or perhaps is not able to stand up to anyone really challenging them...
Kalio1 - hope all is well, you are fantastic - it's only 1 person here that disagree's with that
Oh yeah Chev thanks for advice re ad meds.... Any advice re photosensitivity... I read this somewhere - forgot about it & got the most horrible sunburn I have ever had the other - my skin now looks like it's read & bruised.
anyhow - I logged a complaint yesterday - I had also tried to address this in post to Kalio2 but this person cannot seem to respond or perhaps is not able to stand up to anyone really challenging them...
Kalio1 - hope all is well, you are fantastic - it's only 1 person here that disagree's with that
Oh yeah Chev thanks for advice re ad meds.... Any advice re photosensitivity... I read this somewhere - forgot about it & got the most horrible sunburn I have ever had the other - my skin now looks like it's read & bruised.
Hey there Lady,,,I'm confused which doesn't take awhole lot...whats up with the drummy? lol
1 year before sun exposure... hmmm I wish I knew that before.
I was covered in block out - hat on etc, just at beach for 2 hours swimming, lolling about... am outdoors all the time too but had not been in a bikini for while - this was my first venure out in one...
The weather's been awfully hot here in OZ & the only way to spend summer down here is swimming & lolling around, especially over the hols...
Going Lawn Bowls this afternoon, have hat in car & am covered, don't want to scare the locals with my crispy skins & the peeling !
I was covered in block out - hat on etc, just at beach for 2 hours swimming, lolling about... am outdoors all the time too but had not been in a bikini for while - this was my first venure out in one...
The weather's been awfully hot here in OZ & the only way to spend summer down here is swimming & lolling around, especially over the hols...
Going Lawn Bowls this afternoon, have hat in car & am covered, don't want to scare the locals with my crispy skins & the peeling !
Sorry about that. Sometimes I can't link for sh--!
http://www.medscape.com/viewarticle/467413?src=search
http://www.medscape.com/viewarticle/467413?src=search
Have an Answer?
You are reading content posted in the Hepatitis C Community
Learn about this treatable virus.
Getting tested for this viral infection.
3 key steps to getting on treatment.
4 steps to getting on therapy.
What you need to know about Hep C drugs.
How the drugs might affect you.
These tips may up your chances of a cure.
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.
