So glad to hear that you are, for the most part, doing well! Praying that these med changes work! Also glad your are busy - you have so much knowledge and caring! We have ALL benefitted from it. Glad you are busy in the cirrhotic community. -- it's just that we miss seeing you here. Of course, their need is great so that is where you can do SO much good.
Just letting you know we think about you often and wish you well!
Pat
Hi all.
I am usually online these days over on the "Cirrhosis of the Liver" community where I am the co-community leader.
I'm am still doing my volunteer work at my liver transplant center when I can supporting patients and their families through what for many is the most difficult time of their lives. HE comas, variceal bleeds, post transplant complications and other scary results of advanced liver disease.and post transplant complications. We've have had a lot of folks getting transplants recently including a number of living donor transplants.So I have had the privilege of talking with a number of donors who donated a portion of their liver to a family member. Definitely these people are true heroes and heroins. A really awesome life-changing event for these families. I also just had 3 friends who recently had transplant surgery within 2 weeks of one another. Luckily they are doing well and on the road to recovering after waiting for transplants for many years.
I have been having some post transplant issues myself so I have been undergoing lots of testing and making some immunosuppressant med changes that I am hoping will resolve this current speed bump on the road to recovery.
Hep C free after 45 years of infection.
New healthy fibrosis free liver.
All is good.
Hector
Yeah I talked to him a couple weeks ago, he was in good spirits. Just wanted to know he was ok, he's been thru hell and back.
he's such an inspiration to me and others I'm sure
Thank you ladies
Deb
HepCEducate.org
I have also seen him posting and "talked" to him last week. He is slowly improving from the tx and recently posted that he is SVR under his status
"HectorSF" posts regularly on the "cirrhosis of the liver" forum.
Howie posted a few days ago. He has been busy counseling liver transplant patients and being his gracious self to Heppers on many different fronts
I talked to him last week and seems to be doing better all the time. But his treatment was Not a walk in the park so I believe it has been a slow process
But new liver And SVR!
So happy for him!