Aa
Lonestar seeks weapons. ; ]
Hello everyone. Just checking in on you all here. I see some good news and some sad news. I'm sorry LadyE. There are a few of us here who have treated with infergen and went on to SVR.
I'm here to gather some information. Information that I had on my computer for a couple years. After achieving svr I went through a housecleaning spell and deleted everything pertaining to Hep C from my computer.
I have a friend in upstate NY who has hep C. She tried off and on for a couple years to treat but never became undetected. Finally I urged her to try the Infergen and it worked but slowly. She didn't become undetected until week 24. I'm a kinda deadly serious type when it comes to this disease and I have invested much time and emotional support to this friend helping her stick with treatment. Out of the blue the other day she sent me email telling me her doctor who is in Boston disagrees with me on the length of time my friend should treat because of her anemia. I think we all have had the anemic experience. ; ] He told her 48 weeks would do it. She sent her email from Florida where she is on holiday. She said she felt so well because her doctor had also told her she could take a break from all meds while she was away. I wanted to throw up. Can someone please repost some of the studies on length of treatment? She is 1A Grade 3/Stage 3. She is very happy with her doctor and trusts him completely. I don't know whether to run as fast as I can or stand and fight for her life. I'm in shock.
Dearest Y, Don't lose faith. Remember when I used to get so upset over your treatment plan? You had faith and I didn't. I wanted you to switch to Infergen. You considered it but your doctor chose to have you start the double dosing. I'm not so sure Infergen would have been a more powerful weapon than double dosing the Peg. Though your doctor's plan seems odd and unusual to me you are the closest you've ever been to "undetected" Please let us know what happens Monday soon as you can, okay? Remember Tallahassee who did 99 plus weeks and is now SVR? If you must do something like that and your doctor permits, you'll do it. I know you will.
Of course you are absolutely right Captain My Own. ;] Of course I know my calm is born of outrage and fear. It's only how I battle. It's the only way I know in order to achieve the best odds for victory. Think about what you know of me and you and Y probably know more of me than others here since we have shared many of our thoughts and feelings through private letters. I've stated here before, my voice is small. My vocal chords don't carry the weight, the confidence and strength like yours, New York Girl's or Lady Laurie's and others. Remember how long it took me to even post here? You and Y kinda dragged the words out of me after reading here for more than two years. Just remember and have faith that though I often appear quiet, my brain is never still. It's ticks and tocks and strategizes at simmer until it's time to turn up the heat.
Would I love to hit my friend's doctor over the head with a 2x4? Ooooh yeah. Her’s too? Yup. My life experiences though have taught me a different way to battle. Remember I'm the one who was born into a large family of seven big strapping brothers, a dominant mother, absence of father due to death at a young age. In order to survive this family of big, booming and commanding voices, I discovered my strength in quiet, calm fortitude. I'm not smart enough to give up. It's how I made it through 73 weeks of this horrific Infergen treatment. I breathe slowly; I don't waste my energy on rage or fear. I can't afford to because I think if I ever started to cry I'd choke to death on my tears, so I just breathe easy and never give up. I promise you I will never give up on my friend My Own. I don't know what she will do at this point. I treat her gently but I am persistent. I'm kinda like those little splinters we get that we can't see but always feel. ;] Don't worry I would ever be angry with you. You were one of my first friends here. Your Joan of Arc rages delight me and often enlighten. I wish God had built me more like you.
Would I love to hit my friend's doctor over the head with a 2x4? Ooooh yeah. Her’s too? Yup. My life experiences though have taught me a different way to battle. Remember I'm the one who was born into a large family of seven big strapping brothers, a dominant mother, absence of father due to death at a young age. In order to survive this family of big, booming and commanding voices, I discovered my strength in quiet, calm fortitude. I'm not smart enough to give up. It's how I made it through 73 weeks of this horrific Infergen treatment. I breathe slowly; I don't waste my energy on rage or fear. I can't afford to because I think if I ever started to cry I'd choke to death on my tears, so I just breathe easy and never give up. I promise you I will never give up on my friend My Own. I don't know what she will do at this point. I treat her gently but I am persistent. I'm kinda like those little splinters we get that we can't see but always feel. ;] Don't worry I would ever be angry with you. You were one of my first friends here. Your Joan of Arc rages delight me and often enlighten. I wish God had built me more like you.
D*m ! Sorry!
If you have yet to be UND....and I am sure I have read about this thru the mths., BUT-duh.....why are you in week 52 with no UND yet, still treating? I don't understand?
And are you double dosing Peg (2 x a week?) thru Dr. or was it you that's doing it on your own? That's a LOT of these drugs, how are you writing, standing??
LL
If you have yet to be UND....and I am sure I have read about this thru the mths., BUT-duh.....why are you in week 52 with no UND yet, still treating? I don't understand?
And are you double dosing Peg (2 x a week?) thru Dr. or was it you that's doing it on your own? That's a LOT of these drugs, how are you writing, standing??
LL
52 weeks....last PCR it was 14...I have yet to see UND. and I have been double dosing Peg and taking 400 extra mg. of Riba since 25th week. It's so frustrating and so hard.
Thank you for your prayers...so appreciated.
Yvonne
Thank you for your prayers...so appreciated.
Yvonne
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