Lonestar seeks weapons. ; ]

[Lonestar823]

Hello everyone.  Just checking in on you all here.  I see some good news and some sad news.  I'm sorry LadyE.  There are a few of us here who have treated with infergen and went on to SVR.  
I'm here to gather some information.  Information that I had on my computer for a couple years.  After achieving svr I went through a housecleaning spell and deleted everything pertaining to Hep C from my computer.
I have a friend in upstate NY who has hep C.   She tried off and on for a couple years to treat but never became undetected.  Finally I urged her to try the Infergen and it worked but slowly.  She didn't become undetected until week 24.  I'm a kinda deadly serious type when it comes to this disease and I have invested much time and emotional support to this friend helping her stick with treatment.  Out of the blue the other day she sent me email telling me her doctor who is in Boston disagrees with me on the length of time my friend should treat because of her anemia.  I think we all have had the anemic experience. ; ]  He told her 48 weeks would do it.  She sent her email from Florida where she is on holiday.  She said she felt so well because her doctor had also told her she could take a break from all meds while she was away.  I wanted to throw up.  Can someone please repost some of the studies on length of treatment?  She is 1A Grade 3/Stage 3.  She is very happy with her doctor and trusts him completely.  I don't know whether to run as fast as I can or stand and fight for her life.  I'm in shock.

[Lonestar823]

Some time ago I had the pleasure of hosting a young university student from Thailand for a few weeks.  I learned many things from her but my most favorite was the Thai tradition of the "wai" as greeting.  The hands are placed together as in prayer and raised upwards towards the face while the head is lowered in slight bow.  That's how I feel when I enter the forum.  I'm a lot calmer the last few days.  Wyntre mustered the strength to copy and paste the whole Drusano/Berg study for me.  I struggle looking at that report still, and I've been off treatment for a year and a half.  I've forwarded a simple version of all Wyn sent me on to my friend and asked her to share it with her doctor.  I'm not sure my friend is any better able to absorb some of that information than I am.  She's into her thirties weeks with the daily infergen.  I sent it along with a letter written from "calm" not crazy, scared, intense, the way I felt when I first learned about her doctor's treatment plan.  So, Lady Laurie, I guess you can turn off your motorcycle and put it back in the garage for now. ; ]
I'm going to take Deb's advice and trust that my friend will do what is best for herself and her family.  Wyn gave her the Drusano study as weapon should she choose to use it.  At least she is armed.  
A deep "wai" for Wyn, Deb, Child Angel, LL, My dear Y and My dear MyOwn.  And how about that post Zazza made?  Whew, it made me cry. It was so beautiful Zazza and so true.  I come and I go, to and fro because here lives comfort and friendship.  This I know.

Lonestar

[Myown]

Unbelieveable.

If he was an Oncologist, I guess he would tell his cancer patient that she could stop the chemo while on vacation?:)

[Lady Lauri]

LOL, LOL! Absolutely (did ya see the post of my 128 lb arse up in a 300lb (at least!) guys face at 1 AM while on tx, for hurting my son:)

And I can bring friends too :)

The FIRST thing my sister said to me when we found out her MORON Dr. had dismissed her symptoms as 'hemorrhoids' and a year later we'd found it was stage 4 colon cancer was......."PROMISE me you will not go there or do ANYTHING yet! You have to PROMISE me!" She knows me :)

I can not deal with Dr.s making huge, life threatening mistakes on people, let alone always just getting away with it! I’m not finished with mine that missed this Hep c for 10 years there!

Hope you get thru to her, really! Too bad she already missed the dose’s…what a mistake! Ya' got me riled up again ! :)

LL

[Deb_c430]

zazza. what a wonderful post,  life and how it can change us.
I think they have it so much worse today.  Sad...

Lonestar, sometimes you just have to let things go.  Pass on the the info and let our friends family make the decision for their selves.

Maybe she is just tired of txing and wants to enjoy her holiday.  Deal with it all later. Who knows?

Take care and hoping you are ok and that you
have found a little peace.

Deb

[ladywhy]

Zazza: Wow, what a synopsis...sad...yet lovely. How are you holding up w/thyroid situation.?

Lonstar: You have mail!

[Wassup]

I posted to jmjm on the post by Tigerspaw, Re: starting tx, choices, Dr's , (know it alls ). G'nite Hugs, Y'all, Ant B