Lonestar seeks weapons. ; ]

[Lonestar823]

Hello everyone.  Just checking in on you all here.  I see some good news and some sad news.  I'm sorry LadyE.  There are a few of us here who have treated with infergen and went on to SVR.  
I'm here to gather some information.  Information that I had on my computer for a couple years.  After achieving svr I went through a housecleaning spell and deleted everything pertaining to Hep C from my computer.
I have a friend in upstate NY who has hep C.   She tried off and on for a couple years to treat but never became undetected.  Finally I urged her to try the Infergen and it worked but slowly.  She didn't become undetected until week 24.  I'm a kinda deadly serious type when it comes to this disease and I have invested much time and emotional support to this friend helping her stick with treatment.  Out of the blue the other day she sent me email telling me her doctor who is in Boston disagrees with me on the length of time my friend should treat because of her anemia.  I think we all have had the anemic experience. ; ]  He told her 48 weeks would do it.  She sent her email from Florida where she is on holiday.  She said she felt so well because her doctor had also told her she could take a break from all meds while she was away.  I wanted to throw up.  Can someone please repost some of the studies on length of treatment?  She is 1A Grade 3/Stage 3.  She is very happy with her doctor and trusts him completely.  I don't know whether to run as fast as I can or stand and fight for her life.  I'm in shock.

[Lady Lauri]

Hi, glad to see you up and going back out there in life!

DON'T 'back off' at all! This is CRAZY for a Dr. to tell her to take a break from the meds!!
Or not extend not reaching UND until 24 wks. Even I -a 2b- know all that! Does she understand (really!) that you have LOTS of research in this, you, others here , to prove this moron Dr. wrong? Can you tell her you posted this and we are all screaming NO!?
God, it just kill's me when idiot Dr.'s do these things! What 'study' is this guy following??
Dealing with idiot Dr.'s with my brother-in-law....it is soooo frustrating. I feel for you, not being able to get thru to her. I say keep trying, even if she gets angry at you right now!
I also can't believe she wouldn't have researched all that, but some just go along with their 'Dr.s', sadly!
  Maybe get her not to skip any until she reads all the info. your gathering for her.
Good luck on this.

Walrus..... my very good Doc :) said it's okay to fluctuate a shot within a 12-24 hr. range. Don't worry too much on that.

LL

[IAmTheWalrus]

Sounds like not good medical advice from everything I read. I got stuck overnight tonight in Little Rock and won't get home tonight for my usual Friday night shot and I am worried about the effects of delaying it a day! Somewhere between my paranoia and your friend's doc's laid back attitude should be the truth. I'm siding with a little constructive paranoia.

[zazza]

SCREAM! Take a break from the drugs! What kind of doctor is that?!!

This is really a tough one - whether to realize you are powerless or to fight...

I am really feeling for you and your friend.

[wyntre9]

Tonight is shot night for me and my HgB is at 10 so i'm very weak but tomorrow I will send you some of the links others have sent me.

Where in upstate NY?  that's where I am, too.

[Lonestar823]

Thank you Deb.  Yes, they work but I'm just now home and haven't read them yet.  I still don't know what to do.  I'm horrified but she's so comfortable with her treatment plan I kinda feel like I should back off.  This just seems so crazy to me.  My very best to you too.  I hadn't realized you were doing the long haul with Infergen.  It's quite a battle isn't it?  I did it too.  

[Deb_c430]

pulled some out fo ryou

http://consensus.nih.gov/1997/1997HepatitisC105PDF.pdf


http://www.
medscape.com/viewarticle/547344

http://www.

natap.org/2005/AASLD/aasld_46.htm

Not sure if urls will work, if not let me know i will private message them to you