Aa
Aa
A
A
A
Close
Avatar universal

Lonestar seeks weapons. ; ]


Hello everyone.  Just checking in on you all here.  I see some good news and some sad news.  I'm sorry LadyE.  There are a few of us here who have treated with infergen and went on to SVR.  
I'm here to gather some information.  Information that I had on my computer for a couple years.  After achieving svr I went through a housecleaning spell and deleted everything pertaining to Hep C from my computer.
I have a friend in upstate NY who has hep C.   She tried off and on for a couple years to treat but never became undetected.  Finally I urged her to try the Infergen and it worked but slowly.  She didn't become undetected until week 24.  I'm a kinda deadly serious type when it comes to this disease and I have invested much time and emotional support to this friend helping her stick with treatment.  Out of the blue the other day she sent me email telling me her doctor who is in Boston disagrees with me on the length of time my friend should treat because of her anemia.  I think we all have had the anemic experience. ; ]  He told her 48 weeks would do it.  She sent her email from Florida where she is on holiday.  She said she felt so well because her doctor had also told her she could take a break from all meds while she was away.  I wanted to throw up.  Can someone please repost some of the studies on length of treatment?  She is 1A Grade 3/Stage 3.  She is very happy with her doctor and trusts him completely.  I don't know whether to run as fast as I can or stand and fight for her life.  I'm in shock.
37 Responses
Sort by: Helpful Oldest Newest
Avatar universal
I am on infergen now,  and I can't believe some of this.  Yes the anemia is a lot worse on Infergen I think, I have done pegasysus  and old inteferon.   Fighting the anemia is my constant battle!  

Said that tho it is a known side of all  ribas,  intefereons, My GI just said if I am und in April I can plan on 72 weeks of fighting of it.

She could take a break?  hmmm ....

Sure someone has some studies,   Not many of us here on infergen.  

Deb
Helpful - 0

You are reading content posted in the Hepatitis Social Community

Top Hepatitis Answerers
317787 tn?1473358451
DC
683231 tn?1467323017
Auburn, WA
Learn About Top Answerers
Popular Resources
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.