Lonestar seeks weapons. ; ]

[Lonestar823]

Hello everyone.  Just checking in on you all here.  I see some good news and some sad news.  I'm sorry LadyE.  There are a few of us here who have treated with infergen and went on to SVR.  
I'm here to gather some information.  Information that I had on my computer for a couple years.  After achieving svr I went through a housecleaning spell and deleted everything pertaining to Hep C from my computer.
I have a friend in upstate NY who has hep C.   She tried off and on for a couple years to treat but never became undetected.  Finally I urged her to try the Infergen and it worked but slowly.  She didn't become undetected until week 24.  I'm a kinda deadly serious type when it comes to this disease and I have invested much time and emotional support to this friend helping her stick with treatment.  Out of the blue the other day she sent me email telling me her doctor who is in Boston disagrees with me on the length of time my friend should treat because of her anemia.  I think we all have had the anemic experience. ; ]  He told her 48 weeks would do it.  She sent her email from Florida where she is on holiday.  She said she felt so well because her doctor had also told her she could take a break from all meds while she was away.  I wanted to throw up.  Can someone please repost some of the studies on length of treatment?  She is 1A Grade 3/Stage 3.  She is very happy with her doctor and trusts him completely.  I don't know whether to run as fast as I can or stand and fight for her life.  I'm in shock.

[Lady Lauri]

Hi, glad to see you up and going back out there in life!

DON'T 'back off' at all! This is CRAZY for a Dr. to tell her to take a break from the meds!!
Or not extend not reaching UND until 24 wks. Even I -a 2b- know all that! Does she understand (really!) that you have LOTS of research in this, you, others here , to prove this moron Dr. wrong? Can you tell her you posted this and we are all screaming NO!?
God, it just kill's me when idiot Dr.'s do these things! What 'study' is this guy following??
Dealing with idiot Dr.'s with my brother-in-law....it is soooo frustrating. I feel for you, not being able to get thru to her. I say keep trying, even if she gets angry at you right now!
I also can't believe she wouldn't have researched all that, but some just go along with their 'Dr.s', sadly!
  Maybe get her not to skip any until she reads all the info. your gathering for her.
Good luck on this.

Walrus..... my very good Doc :) said it's okay to fluctuate a shot within a 12-24 hr. range. Don't worry too much on that.

LL

[Lonestar823]

Jeez, it's good to hear your voices Wyntre & Zaz.  It's amazing that either one of you are able to rally and respond.  I know first hand how "far away" you both feel this deep into treatment.  I was so out there even my voice seemed too small to even bother using it..  It was like no one would hear me anyway.  Thank you both for responding.  It's been 48 hours since I got the email from my friend and I'm still shaking when I think about it.  She's in the Albany area Wyn.  Wish I wasn't so deadly serious about this.  It's not healthy.  I'm wound way too tight anyway.  I have good reason.  When I was fourteen I met a young man I would love for the rest of my days.  He was too old at that time to be my boyfriend but we stayed in contact for over thirty years.  He came from a family of portrait artists.  He loved to paint.  He loved words.  He was a writer.  He was witty, charming and so very dear.  He left for Viet Nam when I was still a child.  He came home a junkie and stayed a junkie until he died of hep c related illness.  I cared for him in his home alone for the last six weeks of his life.  I never shared this story with my friend in Albany.  She has struggled so hard to beat this.  She has a lovely family and everything to live for.  Maybe I should tell her.  I'm not sure.  It would be wonderful Wyn if you are able to gather more information for me.  My very best to both of you.  You are mighty little warriors.

[Lonestar823]

Hope you made it home okay and I think Lady L is right.  You should be okay Walrus.  Where'd you come up with that name anyway? ; ]  Oh, I know.  It was an old Beatles song, right?  Get home safely and get those meds into you Mr. Constructive Paranoia.  I'm with you!

[Lonestar823]

Thanks LL.  It's not even six in the morning here yet and I'm up, got my coffee made and watching pieces of light peek through my trees from the east.  I'm worried about my friend but something about your post has pasted a smile on my face this early morning.  Jeez, I thought I was wound too tight! ; ]  
It's too late to talk to her about the break in meds.  That's why she sounded so wonderful in her email.  She had been off them with her doctor's approval for the whole length of her holiday!  I just hate to see her lose her chance at svr after everything she's gone through already.  48 weeks doesn't seem long enough for such a late clearing of the virus.  Here's what pasted the smile on my face.  If I fight for her to extend and if I lose, are you the girl that has a big Harley Davidson?  If you are, that motorcycle combined with your response could be the weapons I seek.  Will you roar into Boston and beat up my friend's doctor? ; ]

[wyntre9]

I'm gonna email you with my number. give it to your friend and tell her to call me.  I'm half an hour from Albany.  i have found a gastro up here for follow-up after i finish this TX and he may have suggestions as to who your friend might consult with at Albamy University mediacal Center.  Also, tone of the major studies about hepc was conducted at afacility in Albany - i think it was the Drusano study - and I would have her contact them as well.

i just got up so after coffee and churning back to motion I'll check through my files for the studies.

In the meantime, Tell her to CALL me!!!!!  NP!!!!!

Gonna email you now.

wynhe

[wyntre9]

You've got mail.

wyn