Taking any immunosuppressive meds would likely be quite bad. Vaccines might be bad.
In another vein, blood thinners like aspirin, vit E, fish oil and even cinnamon would be bad.
Well, Cris, there's definitely something pervasive going on - despite all the negative tests.
Normally, I'd follow Occam's Razor and look for one single underlying cause. But in your case, there might be at least two:
- early hemachomatosis creating various bad effects (such as your heart SVT; and perhaps your early onset cataracts [without hyperglycemia] because of hyperferritinemia)
- some genetic immunodeficiency leading to the intractable cold sores, toe fungus, and also to the possible granulomas and to the lymphadenopathy
The geographic tongue is seen by most docs to be just an isolated, benign oddity; but I'd see it as as sign that there is other immune dysfunction present.
It's good that you are so thorough. I think your best chance is to become very educated in this theory as above; and then you can make a logical presentation to any consultant that you see, and hopefully get them to investigate. I'd want a serum ferritin test for starters. This is guesswork but that's the only way to proceed for now.
That's off the top of my head. What's your reaction? This can use further discussion.
Why taking Bromelain and Quercetin?
A small matter: I'd triple the zinc for a month to see if the nail ridges lessen.
You are 6' 7"? That might also correlate with something.
You've traveled a lot. No exotic infections? Anything besides the HSV? Frequent colds or very infrequent colds? Severe allergies or sensitivities?
"Moving to the cold sores…I’m going to risk jinxing myself here and say that I haven’t had any since I got the yellow fever vaccine in early 2019. I know it’s just a coincidence"
Probably not coincidence at all.
"stretchy skin"
Oh, I was thinking of a Connective Tissue Disorder, which can have a dizzying array of symptoms.
"As a kid I grew up flipping through my mom’s nursing books, so I figure at least I’m not starting from scratch with all of this.?"
Yes, you have advantages over the average patient.
"combating general inflammation"
Yes, that's a worthy and necessary goal.
"I have wanted to up the zinc, but every thing I read talks about the dangers of over doing it."
It's maybe possible to overdo it, that's why I'd said "...for a month" as a trial. (The Polident zinc-copper lawsuits were inconclusive, as I recall.) I personally have taken that much. You can find warnings about anything and everything online. It's important to know what's credible as opposed to what is just talked about at the health food store.
"I really am 6’7”….and it’s mostly terrible."
How is it terrible? Healthwise, or just for buying clothes, etc?
"Again, since the 2019 yellow fever shot I’ve only gotten truly sick (stay at home in bed style) twice."
Likely because it changed your immune system generally. Btw, as something of a parallel: there are a few credible stories of spontaneous cures of cancer, most or all involve the person getting some infection which changed their immune system generally.
"(I was 210ish then and lifting all the time, eating a 3000-4000 calorie diet (not a very healthy one) just to stay that weight)."
That shows true dedication and discipline, which ability will be very useful now.
"I was prescribed doxy 100mg per day as a preventative. It made my hair and skin look great and I never got even a sniffle when I took it. The more I read about it the more I am impressed by it!"
Interesting. Please elaborate some more on that. Doxycyclne has anti-inflammatory and antiviral properties, not only anti-bacterial - as you likely know.
"You’ve given me more feedback and more to think about in these past few days than any doctor I’ve seen to date."
And we're just beginning :)
from your tests:
C-Reactive Protein <1 0-4 2
Was that CRP or hs-CRP? The latter is what we'd want.
Height: you apparently aren't near to being anything like Marfan Syndrome. Nor acromegaly. Still, it might somehow correlate with something somewhere along the line.
Doxy: I found just a little as to the Method Of Action. "There are indications that the anti-inflammatory actions of doxycycline and minocycline in osteoarthritis are mediated via inhibition of nitric acid synthase."
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4958212/
So you might see if you can identify and take a natural inhibitor of NO, just as a shot in the dark.
But now listen, same source: "Attempts have also been made to elucidate the mechanism by which doxycycline reduces pathology in lymphatic filariasis." That might be nothing but it does involve tropical parasites AND the lymphatic system. And granulomas: https://www.cdc.gov/parasites/lymphaticfilariasis/health_professionals/index.html
"More recently it has showed promise against COVID-19..."
Yes, and was suppressed for political reasons, the same now with Ivermectin.
"I was given to think low C-Reactive Protein was actually sort of a good thing (low level of inflammation)."
Yes, a very good thing. hs-CRP became popularized ~2008 in the famous JUPITER trial as relates to heart disease. However, I'd say there is no such *single* thing as inflammation, so then low CRP or low hs-CRP doesn't mean there is no inflammation.
"Just so I am straight here, are you leaning more towards hemochromatosis and less towards cancer (lymphoma, leukemia, or otherwise)?"
I personally won't give any more thought to cancer in your case, unless new evidence arises.
"I just wonder because lymphadenopathy still trends toward cancer"
Nope.