Aa
What do I do next ?
Today marks the 3rd day on prednisone and I feel well, I randomly get “shocks of pain”on knees that last about 3-5 seconds, other than that I feel fine :) it’s odd because 5 days ago I also started developing jaw pain on left side of cheek and felt a small lump was going to form (I thought it was my anxiety ) but now that pain is also gone and no lump formed. I still have slight pain on my lower left back but i can do my daily activities. I was able to do a UA everything came back normal no protein or blood :) , PH was 6.0 and SG 1.025. I am still pending the CT scan appointment, But am drinking teas and plenty of water and am hoping my body can get rid of this on its own. It’s okay I want to know what can happen having this stone? Even if it’s bad news :( In regards to protein, I used to buy the Costco vegan brand and when I started lifting I began with whey. I wanted to add that before all of this happened to me, the only new product I had introduced in my body was the creatine. what do you think? Can creatine contribute to erythema nodusm? Around that time I was having so many calf cramps, I would randomly wake up at 3 am due to the cramps. I no longer have them they went away completely once I stopped doing leg work outs. I’m really hoping I can one day put all this behind :( I view life so differently now, I appreciate the small things more than I ever have.
COMMUNITY LEADER
Please let me know once you are okay. Then we can talk about the other stuff.
COMMUNITY LEADER
SG, PAY CLOSE ATTENTION: If you are worse this morning then GO STRAIGHT TO THE ER. Have somebody else drive you. You might even pass out. Do not fool around with this. Do not try to tough it out. You are having BAD prednisone withdrawal.
If you are any better this morning, then call the rheumy immediately. You are close to having a medical emergency. Whoever answers the phone, tell them you are having worsening symptoms of prednisone withdrawal. DO NOT LET THEM SAY THEY WILL CALL YOU BACK. Hopefully the rheumy will say to take more of your remaining pred tablets right away. If you have 1mg tablets, she might say to take two of them.
Or else GO STRAIGHT TO THE ER. Have somebody else drive you. You might even pass out. Do not fool around with this. Do not try to tough it out.
If you get worse you might even need IV steroids. PLEASE DO NOT TAKE THIS LIGHTLY. Do not let yourself be alone, someone needs to be with you in case you pass out.
The leg bumps don't matter right now. All that matters right now is this below:
"I feel so exhausted ken :,( I feel dozed off all the time now. And even my family is noticing and I’m becoming more forgetful. I feel like I’m dieing, like it’s a matter of time before it’s to late for me."
If you are any better this morning, then call the rheumy immediately. You are close to having a medical emergency. Whoever answers the phone, tell them you are having worsening symptoms of prednisone withdrawal. DO NOT LET THEM SAY THEY WILL CALL YOU BACK. Hopefully the rheumy will say to take more of your remaining pred tablets right away. If you have 1mg tablets, she might say to take two of them.
Or else GO STRAIGHT TO THE ER. Have somebody else drive you. You might even pass out. Do not fool around with this. Do not try to tough it out.
If you get worse you might even need IV steroids. PLEASE DO NOT TAKE THIS LIGHTLY. Do not let yourself be alone, someone needs to be with you in case you pass out.
The leg bumps don't matter right now. All that matters right now is this below:
"I feel so exhausted ken :,( I feel dozed off all the time now. And even my family is noticing and I’m becoming more forgetful. I feel like I’m dieing, like it’s a matter of time before it’s to late for me."
I’ve noticed the tacrolimus is actually making one of my nodules more inflamed, its a flat nodule, red, and very big in size. I can’t even walk without it bothering me,all I want to do is jump back into my prednisone and never come off of it :’( I wanted to give these new cremes and ointments a try before calling my rheumy but I think tomorrow I’m calling her to get me in sooner and see if we can work something out or have a different med similar to prednisone. I feel so exhausted ken :,( I feel dozed off all the time now. And even my family is noticing and I’m becoming more forgetful. I feel like I’m dieing, like it’s a matter of time before it’s to late for me. :(
My derm prescribed me an ointment and a cream they are called “clobetasol” and “tacrolimus” . I thought she would prescribe tablet medications but I misunderstood. She stated that one of these is carcinogenic, and is known to cause lymphoma. But she said to not worry about that, because it’s in very small amount and will have no effect. I’m still worried though, what do you think about this . Are you familiar with these prescriptions?I guess my rheumatologist thought my body was ready to let go of the prednisone, and I thought so to. I have a weeks worth of prednisone, I’m noticing that my upper arms and hips are starting to itch, so many odd things are going on with me ken. I feel like just quitting everything and running away idk how to explain how I feel.
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is it working well?
tacrolimus is an immune system suppressant.
"she said to not worry about that, because it’s in very small amount and will have no effect"
true
"my rheumatologist thought my body was ready to let go of the prednisone"
It was worth a try, but unfortunately didn't turn out. Contact the rheumy and tell what is happening. They might up the dose or Rx another med. Don't let yourself slide down into a bad state.
"so many odd things are going on with me ken"
It's all the same thing, SG. Just in different places and with different "manifestations". But it's all your immune system.