nephew has reccuring Burketts Lymphoma

[momoftwo74]

Hi everyone. I have a  10 year old nephew in the family who was diagnosed with Burketts about 5 months ago. He had a tumor in his abdomen. The surgery to remove and the Chemotherapy brought him into remission (although he was very very sick with the chemo and they almost had to stop treatment before his cancer went into remission.)After his last dose of chemo he was sent home and seemed to be doing better until 2 months later, when he suddenly began to vomit and have severe headaches. Tests showed that he had cancer cells in his spinal fluid. The doctors suspected that the cancer had come back, possibly to his brain. Fortunately my nephew's scans showed no tumors. Still, they gave him only a 20% chance of beating the cancer. The treatment plan was to do the chemotherapy again, and once the cancer cells were gone, they would do a stem cell treatment (im not sure how that works). Well,after second round, scans etc show no cancer cells in his system. They gave him his last dose of chemo a couple of days ago with stem cell treatment planned for August 29. The last dose of chemo sent him into a coma. Although the doctors know which medication my nephew had the reaction from its pretty much a waiting game for the medicine to clear out of his system.My nephew is breathing on his own, athough they are helping him to assure he is getting adequate oxygen. He also is responding to commands and can squeeze his mothers hand and lift his leg. The doctors say they believe he will probably come out of the coma but arent saying 100% positive. Does anyone here have experience with recurring Non Hodgkins, Burketts, or has someone ever heard of this sort of reaction to chemo meds? Also, please pray for my nephew. His name is Mason. Thanks to all
MM

[luvmyfrogs]

you said it perfect..being sick all them time, and he wants to go to chuck e cheese. im sure that would be fine by mom ,,being able to watch her child play and have fun at chuck e cheese!!!

[momoftwo74]

Hi,thanks for your post back. Yeah, its awful when an adult gets cancer, but when its a kid its absolutely heart wrenching. Just 6 months ago my nephew was a star player on his flag football player.One day he was fine and the next, he was very sick. When he was going through his first round of chemo and was so sick from the medicine he told his mom that the first thing he wants to do when he gets well is go to Chuck E. Cheese and eat pizza. Its amazing to me how resilient kids can be. When an adult is that sick sometimes they think "I just want to give up", But what a kid thinks is "When I get better Im going to do something fun."

MM

[luvmyfrogs]

im new here, so im just learning about leukemia but reading your post brought tears to my eyes, someone so young just pulls at my heart strings.. thinking about how strong these kids have to be going through everything that they do at such a young age when they should be having able to spend their lives as kids.. they ARE going to grow up to be such a strong adult, going through what they do, WHEN they grow up they will have different values, strengh, and achivements they will be a huge assest to this country..maybe if everyone had to live as a sick child and had to fight for your life,, maybe the world would be a different nicer place..just my thought..diane