Was your bile duct removed during surgery? My husband was also born with this rare condition and is thinking of having this exact surgery. Would love to hear from you as I can't find much online about it.
Sorry, I meant "but female" not "and female" :P
Hi ola08,
Four years ago I was diagnosed with a choledochal cyst too. I found this when I went to the ER due to having a sudden onset of intense pressure/stabbing pain between my ribcage. This flare up of pain only happened once before when I was twelve but didn't go to the ER because I didn't know what it was. Those were my first symptoms.
So, the surgery involved removing the cyst and my gallbladder, as well as a performing a very extensive reconstructive surgery (Roux-en-Y hepaticojejunostomy).
Since then, I've had complications popping up after stages of feeling normal and thinking it's fixed. Like in 08 when I had an ERCP angioplasty done after feeling well for a year. Then in 09, I had sudden issues again and had interventional radiology come in and use internal/external stents to correct the issues of my bile ducts becoming dilated (they diagnose the reason for hospitalization as "cholangitis").
The reason I've been having problems is mostly because of how much they had to "cut and paste" due to the path lab showing the cells surrounding the cyst were precancerous. I was 18/19 at the time and I was born with this condition. I am no doctor but I've been dealing with this constantly for the past four years. I actually originally came to this site to ask about my symptoms now which include sharp stabbing pains in the RUQ and ribcage.
However, ironically, my liver tests have ALWAYS been normal *shrugs*
My GI believes that it's possible for one of the ducts to be draining properly while the other is slightly dilated, thus providing normal results (well, enough to be normal) on the tests since one is working.
In general, I wish you the best. I really do. I hope that this somewhat informed you since this is coming from someone who experienced this and I see that I also am around your age (and female). Feel free to ask any questions.
Hi,
Thanks for query,
As relapse of your pain occurred three time that means inspite of all reports normal, there is some pathology in the liver causes this problem and it requires evaluation.
Your doctor has taken correct decision to go for resection and diagnosis to rule out possibility of turned out cancer.
So go for surgical intervention and find out the cause.
Wish You Good Health