List of symptoms and lab results

[volp2955]

I have been from doctor to doctor and continue to experience overwhelming apathetic gaslighting responses from all doctors and specialists. I have done my own research as much as possible, but obviously am not a doctor, so I cannot diagnose myself. I am on my fourth doctor. I have been to dozens of chiropractors, physical therapists. I have seen a pain management specialist, an orthopedic surgeon. I have had spinal injection therapy. I have done spinal decompression, massage therapy, yoga, and taken many different pain meds that haven't seemed to work at all. Because of the unfortunate response from physicians, I have taken it upon myself to get the following labs done. I will include my results. I am also going to list my ongoing symptoms and limitations. What else should I be trying to get tested? Any suggestions?

ANA, with reflex to titer - Positive with results of 1:160
Sedimentation rate - 32
C-Reactive Protein - 12.6
Vitamin D - 20
WBC - 15

◦      Constant neck pain, 7/10 - chin to chest fatigue, daily neck circles/rolls, gravity pull ear to shoulder on both sides

◦ Constant pain behind/under shoulder blades at rib connection, 8/10 -craving to “dig in”, daily roll back on chirp wheel, pops relieve some tension momentarily, also daily presses hands straight out behind back to promote movement in the scapulas

◦ Constant low back pain (8-9/10) increases in response to pressure in small of back (can’t lie on stomach due to gravity on low back, cannot be touched) daily stretches to bend/touch toes

◦ Hamstrings cannot be touched without extreme pain / sudden pass out pain, full of fibrous clusters, painfully stretch daily (10/10 when touched)

◦ Cannot be “poked” in upper arms without shooting pain as if tiny fists punched me with hundreds of pounds of force (10/10)

◦ Pain lingers for much longer than it should when poked, bumped, etc.

◦ Unnatural amounts of hair loss

◦ Restless leg syndrome, especially at night

◦ Extreme constipation without daily use of Miralax

◦ Very easily bruise, have sore spots all over, trigger spots

◦ Random and sudden (no warning at all) onset of emergency room levels of abdominal pain followed by full body waves of rapid temperature increase then rapid temperature decrease, followed by explosive diarrhea (10/10 pass out on toilet)

◦ Occasional dark blood, black spots, in stool

◦ Random debilitating headaches/migraines

◦ Acne on face, chest, arms, and back - dry itchy skin all over back and legs. Scratching until skin bleeds sometimes because the pain of the scratch/sore is more favorable to the itching.  Skin crawls all over at night.

◦ Weeping sores under breasts - treating with nystatin daily without improvement

◦ Insomnia, nightmares/night terrors, trazadone as needed

◦ Chronic gum disease/bleeding when brushing/flossing

◦ Bad night vision/ see major halos/glows, sensitivity to light

◦ Chronic fatigue, always tired and exhausted

◦ Difficulty focusing on one task for any length of time

◦ Occasional confusion in thought or conversation, zoning out when being spoken to

◦ Periodical wrist flare ups - unable to put ANY weight on it at all or twist or touch wrist, ice sometimes helps

◦ Periodical shoulder bicipital tendinitis, radiating pain down arm

◦ Periodical very real feeling of hot/warm water pouring down my arm or on my leg. I often have to check to make sure I’m not actually wet. Sometimes it’s prickly, “asleep” feeling

◦ Periodical knee give out/ causes limping, inability to walk up/down stairs safely

◦ Irregular menstrual cycles sometimes bleeding for multiple weeks at a time  

◦ Extremely sensitive to temperature changes, or even feeling drastically different in the same temperatures from day to day. Heat flashes and cold flashes frequently.

◦ Feeling of internal temperature rapidly fluctuates with no fever present. (Extremely hot, need to stand in front of a fan with ice packs and then an hour later will be shivering needing a blanket and layers.)

◦ Frequent UTIs, sinus infections, ear infections

◦ History of diverticulosis and burst ovarian cysts

◦ Infertility, irregular and unpredictable menstruation often with extremely painful symptoms paired with diarrhea and vomiting

◦ Swollen and painful feet, soles and ankles

◦ Extreme fight or flight response often with a physical nauseating connection to certain noises such as styrofoam, repetitive clicking or toe tapping, throat clearing or the lack of throat clearing, the sound of dry hands rubbing on paper, dry skin getting caught on fabric

◦ Sensitivity to strong odors in a similar way and can often smell things long before others

◦ PTSD, depression, manic depressive bipolar disorder, anxiety, sometimes paranoia

◦ Rapid mood fluctuations, sometimes illogical/unwarranted anger/feeling attacked

◦ Yo-yo dieting often ends in binge eating disorder

◦      History of Raynaud's disease in fingers and toes especially in the winter

◦ Generally very clumsy, dizzy, lose balance

◦ Limitations: cannot stand without support comfortably for more than 30 seconds (I need a shopping cart to use as support, needed to hang on husband’s arm during a memorial service, etc.) cannot sit right for more than 60 seconds, cannot bend for any prolonged period of time (get frozen in place with low back pain) cannot get up from the ground without heavy assistance, cannot do any repetitive movements without intense repercussions the next day such as vacuuming