Warning: Long post. I typed it up while I was on break from the site.
I was looking up side effects for Welbutrin, then I found something in the alcoholism forum abut using alcohol and welbutrin together. I was a bit side tracked. I really wasn’t planning to look up the alcoholism forum, but I was doing research on alcoholism before that and I had not found anything on it except the information that “experts” put out about alcoholism. I was looking up news articles and medical stuff. I wrote my story with my recovering alcoholic character up to a certain point then I had a nagging question in my head:
How much do I really know about alcoholism being an outsider? How much of my research was based off textbook knowledge I learned in high school health class. That was when I started to wonder, how many misconceptions are out there on alcoholism? I know from personal experience that there are a LOT of misconceptions on autism. Just listen to a conservative talk show radio host… He called autism nothing more than being a spoiled brat. Sadly many people carry this misconception. Sure enough the more I learned, the more I realized I had NO clue what I was writing about… My poor character before somehow managed to kick his addiction on his own with very minimal support. After reading enough from those who’ve been there I realized that to expect someone to recover an addiction on their own without any help whatsoever was very unrealistic… Not to mention having the character stay sober for any length of time with just his own will power alone would likely be impossible… I gave him a support group and some other friends who were also struggling. Believe it or not prior to 2007, I had my recovering character as the only recovering alcoholic in the entire colony… In reality I don’t know how many recovering addicts would be able to do well if they were truly alone in their community knowing what I know now.
When I looked at the autism community, it was then I decided to join. I couldn’t think of a username, so I picked my initials + “the writer” to describe my passion. It looked like a new forum and there were several parents asking questions. That's when I decided I'd give it a go and try to answer their questions. I soon got my dad involved. When they started taking community leaders, that's when I took the opportunity and also got my dad to co-lead. The plan was; he answers questions specifically related to parenting, then I answer what it's like from an autistic person's viewpoint. That way the parents can understand their children a little better.
I'm also trying to get some of my friends with autism into the community because after all, when you meet one autistic person, you meet one autistic person. (that was quoted from a speaker in an adult forum I was at this Sunday, talking about autism.)
My first post...I believe I was excited but nervous. It's always intimidating to join a new community of any sort. You don't know what to expect when meeting new people.
http://www.medhelp.org/posts/show/381729
But I'm glad I took that leap. It makes me happy to hear feedback from parents saying thanks because I helped them in some way understand their child. It was kinda neat to get my mom in there too.
You can also read my blog to find more about my autism advocacy:
http://detailedthinker.blogspot.com/