oh my goodness you sound like me! I can give you some info as to what it could be, Fibromyalgia!!!!! I have Medullary sponge kidney disease, IC and chronic migraines, I now have officially been diagnoses with fibromyalgia. You sound like that could be a possibility. ITs very painful. I have the sore stiff neck and shoulders, back pain and ache hips and knees. Google Fibromyalgia and talk to your doctor, also have them give you something for migraines like Maxalt. Maxalt has saved my mind. I was gong crazy with a life long battle with migraines.
I sure hope you find relief soon. I hate to hear you are suffering. Get well and get some medical answers. Good luck!!!