I hope that you return back to this post some day. You see I also dealt with many of your symptoms. The key one I heard you say was this "I have numbness in my penis, anus, and all around that area." That sounds just like what I was going through. You started having these problems after 18, I'm assuming that was right after puberty? I started having these problems at about 14-15, right after I hit puberty, common with my diagnosis. I didn't have a lot of pain in my anus, until about 9 years later. Then I couldn't stand the pain in my anus, and during all 9 of these years my penis felt numb. My testicles are enlarged even more than normal too. My penis also seems a bit more contorted as well. Not only do these symptoms match, but I was diagnosed with depression and anxiety. After years of therapy dealing with that I realized I had yeast overgrowth causing my mood problems. I ate absolutely no sugar and some carbs mixed with grape fruit extract, seems to be helping my mood. I had given up on doctors as far as my penis, until a little while ago. I went to a rectal/anal specialist about my anal pain (I always felt numbness from my anus to my penis, but not a single doctor believed me) He hit a few parts that felt like my protstate, but infact it was a muscle. He told me I had Proctalgia fugax or levator syndrome. A muscle spasm, that also was hitting my prostate. It caused me to always have the numb feeling, painful ejaculations, and always felt I had to go pee. There's some drugs for it and excercise, as well as alternate medicine like shock therapy on the muscle to relax it. I'm trying it now, and am very excited, it explains a lot of symptoms wrapped in one. I hope that this helps anybody, as I vowed if I ever found an answer I'd try helping other people and I would thank God for allowing me to have a better life. I feel like God put me in a big trial and I am eleviated of it now after all these years.
**** I am so sorry for the multiple posts :( Damn PC!
'zoid;
Yeah, I heard the same thing from some of my wife's colleagues. She is a radiologist, interestingly enough, but not an interventionalist. The ones who do intervent say the same thing, that improvement with embolization is small and not really worth it. However, anything that can improve my quality of life is worth looking into.
I'm wondering what other kinds of vascular changes are occuring in my body. I have been experiencing really bad hemorrhoids (where it's painful to sit), and I'm wondering if I have some type of venous inflammation that has everything down there up in arms so to speak.
What kind of HRT therapy will you be on? Can you be specific with medicines and doseages?
Morg
'zoid;
Yeah, I heard the same thing from some of my wife's colleagues. She is a radiologist, interestingly enough, but not an interventionalist. The ones who do intervent say the same thing, that improvement with embolization is small and not really worth it. However, anything that can improve my quality of life is worth looking into.
I'm wondering what other kinds of vascular changes are occuring in my body. I have been experiencing really bad hemorrhoids (where it's painful to sit), and I'm wondering if I have some type of venous inflammation that has everything down there up in arms so to speak.
What kind of HRT therapy will you be on? Can you be specific with medicines and doseages?
Morg
'zoid;
Yeah, I heard the same thing from some of my wife's colleagues. She is a radiologist, interestingly enough, but not an interventionalist. The ones who do intervent say the same thing, that improvement with embolization is small and not really worth it. However, anything that can improve my quality of life is worth looking into.
I'm wondering what other kinds of vascular changes are occuring in my body. I have been experiencing really bad hemorrhoids (where it's painful to sit), and I'm wondering if I have some type of venous inflammation that has everything down there up in arms so to speak.
What kind of HRT therapy will you be on? Can you be specific with medicines and doseages?
Morg
'zoid;
Yeah, I heard the same thing from some of my wife's colleagues. She is a radiologist, interestingly enough, but not an interventionalist. The ones who do intervent say the same thing, that improvement with embolization is small and not really worth it. However, anything that can improve my quality of life is worth looking into.
I'm wondering what other kinds of vascular changes are occuring in my body. I have been experiencing really bad hemorrhoids (where it's painful to sit), and I'm wondering if I have some type of venous inflammation that has everything down there up in arms so to speak.
What kind of HRT therapy will you be on? Can you be specific with medicines and doseages?
Morg
'zoid;
Yeah, I heard the same thing from some of my wife's colleagues. She is a radiologist, interestingly enough, but not an interventionalist. The ones who do intervent say the same thing, that improvement with embolization is small and not really worth it. However, anything that can improve my quality of life is worth looking into.
I'm wondering what other kinds of vascular changes are occuring in my body. I have been experiencing really bad hemorrhoids (where it's painful to sit), and I'm wondering if I have some type of venous inflammation that has everything down there up in arms so to speak.
What kind of HRT therapy will you be on? Can you be specific with medicines and doseages?
Morg
'zoid;
Yeah, I heard the same thing from some of my wife's colleagues. She is a radiologist, interestingly enough, but not an interventionalist. The ones who do intervent say the same thing, that improvement with embolization is small and not really worth it. However, anything that can improve my quality of life is worth looking into.
I'm wondering what other kinds of vascular changes are occuring in my body. I have been experiencing really bad hemorrhoids (where it's painful to sit), and I'm wondering if I have some type of venous inflammation that has everything down there up in arms so to speak.
What kind of HRT therapy will you be on? Can you be specific with medicines and doseages?
Morg
Hello again.
Do you have any feedback on my results Megazoid?
I will give a fullier reply tomorrow. But to sum thing's up, there is no real cure for varicocele. Once it's there, that's it. One option is embolization (which is less invasive) that involves inserting a small wire through your vascular system and placing in small coils to remove the varicocele. I had this option myself, but can safely say i don't see much in the way of improvement personally (Expect i no longer get as much pain and no swelling from the varicocele).
I am 24 year's old and looking to be on HRT for life thank's to varicocele.
Megazoid;
That is an awesome post - thank you for posting your findings. My wife did notice a varicocele over my left testicle, so that might explain why the penis is bending to the left, if muscles are atrophying on that side. I seem to recall that varicoceles almost always happen on the left as well.
Is there a treatment besides surgery? I'd hate to have to do surgery, but will if needed.
Morgannon
I'm 21 now and I have the same problem as you. Since i was 15 I started to feel a decrease sensation of orgasm then the penis begun to feel numb.
It was getting worse over time, when i was 18 i could feel something but now it is almost completely numb. Plus I feel my penis doesn't get as hard as it used to but despite that I can still get erection and ***.
I've been to the neurologist and did some tests like you, which returned normal.
I've been taken anti-depressants and doing therapy since 16 but I didn't get better.
When i talk to the doctors about this always seem that I'm overreacting to something that is normal to feel.
I don't know what to do but I still have hope that is all psychological and will be gone soon.
Hi Megazoid,
I cant seem to find the shrunken penis thread so I'm posting my blood test results here in the hope you will see them.
The readout means nothing to me and some of the info might not be relevent but I just copied the
printout below.
My symptoms are my penis and scrotum has shrunk by approx a third over 2 years.
I have a constantly swollen stomanche
My previously very thick hair is now dry, thinning and receeding despite have brothers with good
head of hair.
I have uncomfortable bowell movements.
I have put on weight around my stomache and breast tissue. I was very thin before
I have numbness in my penis, anus, and all around that area.I get no sexual pleasure from
touch anymore all over my genitles. I can still gain a erection and ejaculate but the
pleasure is not a fraction of what it used to be and often do not gain a feeling of
complete physical satisfaction after orgasm.
I also seem to have a dull numbness on most other parts of my body. my nipples
are not sensitive and I am no longer tickleish. Things that felt nice before such
as my gf playing with my hair now just feel numb.
I am feeling very down. Probally depression.
I have seen neurologist, uroligist and had tests. Everything is "normal"
The latest is it's in my head which I know it is not.
There is obviously something wrong.
Here are my results anyway. I would really appreciate all the help you can
offer.
erythrocyte sedimentation rate
thyroid function test
liver function test
urea and electrolytes
combined pituitary function test
haemoglobin estimation 16 g/dl
reb blood cell (rbc) count 5.26 10*12/L
mean corpusc. haemoglobin (MCH) 30.4 pg
mean corpusc. hb. conc. 34.8 g/dl
haematocrit 0.46
serum testosterone 15.9
serum cortisol 477
mean corpuscular volume 87.5 fl
erythrocyte sedimentation rate 5 mm/l
total white cell count 7.27 10*9/l
platelet count 219 10*9/l
percentage neutrophils 57.7 %
percentage lymphoctes 30.7 %
percentage monocytes 9.1 %
percentage basophils 0.3 %
percentage eosinophils 2.2 %
serum free triiododthyronine level 5.2 pmol/l
serum free t4 level 16.4 pmol/l
serum tsh level 2.96 miu/l
serum total bilirubin level 16 umol/l
serum alkaline phosphatease 72 iu/l
serum potasium 4.7 mmol/l
serum sodium 139 mmol/l
serum calcium 2.41 mmol/l
serum creatinine 97 umol/l
serum urea level 5.5 nmol/l
serum total protein 80 g/l
serum albumin 45 g/l
serum globulin 35 g/l
I had a previous serum tsh level test on the 20/4/2006 which was 1.69 miu/l
Bill, it's worth taking a look at my replies to "shrunken penis" thread. Your problems are ALL caused by varicocele. I have done allot of research into this and also intend to setup a dedicated website + forum at the start of next year.
I can't post direct link's here, but please search for "Ananolic Minds" forum and look for my post on "Varicocele Research & New Findings". To give a rough breakdown, here goes:
- Varicocele directly effects adrenal cortex steriodgenesis, thus effecting sperm production on the effected side and also bi-laterally.
- It's common for varicocele sufferers to have elevated levels of cortisol and progesterone. High progesterone is similar to what happens to people on "Deca". Symptoms of high progesterone are possible.
- Either due to direct tissue changes, leydig cell dysfunction occurs due to down regulation of thyroid hormone. The testicles also output TRH hormone which is effected with varicocele. It's common for varicocele suffers to have elevated TSH and low thyroid hormone output.
- Varicocele causes renal hypertension on the effected side (high blood preasure) that in turn causes an increased production of progesterone to compensate.
- Due to progesterone alterations, estridol (and total estrogens) are effected. This can negatively effect sperm production.
- It's normal for SHBG changes to occur due to hypothyroidism. It's common to find lowered SHBG in varicocele sufferers.
- Low testoserone (total and free) are common.
- Varicocele is also known to cause hyperprolactima (elevated prolactin levels that can contribute to ED, low libido, etc).
- If low thyroid hormone is present a blunted response to HCG will be noted. Thyroid hormone is important for testicular cell receptors and spermgenesis.
- Scrotal, penile and prostate muscles can be weakened due to low hormone activity.
- Reduced penile sensation can occur due to hormonal alterations such as lowered thyroid hormone, progesterone effecting estridol balance, etc.
- Increased cortisol in the left prepherial vein (alongside increased progesterone and adrenal steroid hormones) down regulate testicular function (testosterone production, etc). Cortisol is an antagonist to testosterone.
- Anti-Inflammatory medications will lower testosterone further and effect adrenal output.
I need to see your blood work. There isn't such a thing as "normal", just standard deviation. I've dealt with ALL the symptoms you have. I've also felt suicidal due to this (and still do on occaisions). None the less i have "some" answers to our problems.
Thyroid/adrenals are the main cause of the problems with varicocele. Your sex hormones will most likely be low/low-normal too.
It's xmas, so i will check this thread tomorrow and find out more :-)
Any more suggestions I could really use some.
I am curious if any of you know if doctors actually come to this site and read up on these post?
Thank you for the reply. I do have some burning sometimes when I urinate but not very often. I have noticed that sometimes my urine will be cloudy white looking but again not very often. I am not sure if that is related though.
I do not have itching/redness of the scrotum though. I will definitely try somethings you mentioned. I do not know if I can talk the doctors into trying antibiotics on me though. I swear my family physician acts if I am making this up or something. It is driving me crazy to suffer with this and the family doctor not acknowledge it after test have come back normal.
Any more information would be great, I would like to hear if others have had any successful attempts in getting this diagnosed.
I personally have done alot of crazy things. I have been to natural doctors that have had me to take alot of herbs and fast on water before. When you have this issue five days on water doesn't seem that bad. The fast made me feel bright eyed and healhier than I ever felt in a while but no luck relieving these symptoms. I have tried eating healthy very strict diets of no processed foods as suggested by natural doctors with no luck.
Recently I got so desperate believing the doctors after so long that it might be in my head, after hearing it so long you start to believe it. They gave me some meds for depression/anxiety and it just made me feel even more numb .. which in turned depressed me further.
The meds they prescribed seemed to make me smaller there as well, after a few months I discontinued the meds and told the doctors that I am still depressed and have physical reasons that no depression pill is going to cure. That is the point I haven't been back to any doctors. I just lay around the house with no desires, will power, or ambitions. I am 30 years old but I feel like my future is bleak. I have had thoughts of suicide just to end this suffering.
It isn't something I just can cope with. I awake thinking about it and go asleep thinking about it.
Bill;
I too have the same syndrome, and the doctors are stumped. My testicles have also gotten bigger, my penis more crooked to the left, etc. etc. You could be me.
I've been trying different things but so far nothing has cured me. However, certain things have helped:
1.) Zinc supplements - since taking zinc my symptoms have diminished. Not gone yet, but diminished. My penis and testicles feel normal, the veins don't seem as engorged, etc.
2.) Tinactin (anti-fungal) - believe it or not, when I aplly Tinactin to my whole scrotal area my symptoms diminish. Again, they aren't gone, but diminshed. I have used this in conjunction with the Zinc, and they seem to complement each other.
3.) Antibiotics - I went through two courses of antibios, two months on Cipro, one month on Doxy, because I was having hesitant urinary flow, burning in my penis, etc. These seem to have helped the most. Especialy the Cipro, my symptoms went away completely while I was on it.
Do you have itching / redness of the scrotal skin? Also, does it burn or sting when you pee? I have these symptoms as well - my wife (a radiologist) and my personal doctor think that I have chronic prostatitis, and the swelling of veins is a consequence of irritation throughout the whole genitourinary system.
Morgannon
I have also had hormone test complete that have came back as normal.
I forgot to add that I see blue veins in penis now as well that were not there before.