572651 tn?1530999357

Welcome & Some Explanations for our New Members

We’re glad you have found this community and whether you are a Multiple Sclerosis  patient, someone in limbo looking for answers to unexplained symptoms, or a caregiver, we hope you find something here to keep you around and help you to deMyStify this disease.

We would like to share a few ideas with you that will make using this forum easier for everyone and keep this site user friendly.

There are many users of this site and we love new faces.    We encourage new members  to start a NEW thread that introduces yourself and a little bit of why you have joined us.   If you add your introduction onto the end of another person’s thread it may be missed by most of us.  When you feel comfortable doing so, we would love to know more about you and your situation.

As you look through some of our posts you will notice that we write very short paragraphs and like lots of white space.  You can write as many paragraphs as you want, but please keep all of them brief.  There  is a reason for this, and it’s not because we are keeping things simple.  

Many of our members have vision problems – that is a common symptom of MS.  Lengthy paragraphs of words and words and more words tend to turn into a blur of nothing but words for us to read.  It often  becomes visually unmanageable.  


If you post a question and you don’t get a response initially, please feel free to bring it to the forum members’ attention.  You may see posts that contain the single word “bump.”  This is just to bring the question back to the top of page 1.  There are some days that it gets so busy here that questions slip to the second page in a short time and can easily be overlooked.  Please “bump” your post if that happens.  

There are no subjects that are taboo.  Anything goes here when it coMeS to discussing this disease.   If you think it, you are welcome to ask it.  Really.

Don’t overlook one of the best resources on the WWW about Multiple Sclerosis – our own Health Pages.  These HP’s are written by our members and contain easy to understand explanations about the many facets of MS – from working with a neurologist and diagnostic testing,  to living with MS.    There is an index on the HP site that lists all of the available pages, we believe this index makes the HP's even more user friendly.

Before you post your question you may find it helpful to use the “search this community“ function and read the other information on our site.  Often the very question you have has been answered extensively in previous discussions.

We encourage you to use the “search this community” function for reference but to START A NEW DISCUSSION if you need help or more information.  If you add onto an old post (the dates are found at the top of the thread)  many people will not take the time to read your addition.  

There are several co-community leaders  (co-cl’s) here and each one has been diagnosed with this  MiSerable disease .   The co-cl’s are all volunteers and also have responsibilities outside this forum.  The co-cl’s are here as much as possible to help with questions, but this site relies heavily on its members to help.

Our members come from all walks of life, and have varying degrees of experience in battling this MonSter.   The diversity of our members is rich and keeps this forum interesting and engaged.  We count on each and every one of our members to pitch in and welcome new members, answers posts where they can make a contribution, and support each other with encouragement. This community belongs to everyone and is made stronger when there is a variety of voices being heard.   So please jump in and help.  

Welcome to this small haven on the web  – we hope to see you around often.

Your co-cls wish you well!


22 Responses
Sort by: Helpful Oldest Newest
739070 tn?1338603402
Helpful - 0
Avatar universal
I'm also an RN and have had MS since 1974, but not diagnosed until 1986.  It was quiescent until last 2 years, now I have trigeminal neuritis from a plaque in the brainstem and very low T cells, probably from the gilenya, but my neurologist wants me to stay on it.  I am also scared - sometimes it is worse to have knowledge of all that can go wrong.
Helpful - 0
Avatar universal
Helpful - 0
572651 tn?1530999357
greeting to all the new people here .  You can post here, but keep in mind we don't answer your questions in this thread.  This is meant to be a welcome statement and a quick overview of how this MS forum works.

Be sure to start a new thread and tell us all about yourself and your questions.  We love to greet new people.

best, Lulu
Helpful - 0
1691812 tn?1312953828
Thank you for the most welcome I've had in a long time! I feel as if I belong here, finally! I was diagnosed with Fibromyalgia in 2009. I didn't fit in at the local group meetings I attended nor did my symptoms come close to their symptoms-except for the fatigue-so I was treated as if I were from mars. The Group leader told me about the burning in my skin, "That's not a symptom of Fibro, have you talked to a Dr abt MS"? The Neuro sent me there!
I recently got a new Neuro & a 'Clinical diagnosed of MS', so far-more tests to come but some already....indicative.
Helpful - 0
Avatar universal
Thank for such a great welcome!! God Bless you all!!
Helpful - 0
1694605 tn?1306510027
this is a nice introduction and it makes me feel welcomed

thank you.
Helpful - 0
772941 tn?1306493974
I'm also new here and was hoping someone would respond to my post, just would like some input opinions
Helpful - 0
Avatar universal
One of the main causes for the tingling sensation is the deficiency of vitamin D3.
Helpful - 0
572651 tn?1530999357
hi naynayt and sldylani. You have posted on the introductory thread for this forum and you won't get a personal reply to your questions.  Please take a moment and copy what you have written here and paste it into a new question, please.  I'm sure everyone here would love to meet you and offer their welcomes and advice.  - Lu
Helpful - 0
Avatar universal

I just wrote a RN type of response to someone, but now thought I should come back-my story really is told in a prior posting, but thank you for showing me this.

Basically I'm in limbo land and am not sure if I have MS, but am a RN, and can take an educated guess at things as I cant get into see a doctor/specialists or get proper tests ordered right now.

I dont want to be one of those people obsessed with health, and really im not, but how can I not be when this disorder has affected all areas of my life??? Im 23 years old and cant do anything I could 1 year ago and am so sad. How much longer will it be like this???? I cant even leave my house anymore!!!

Symptoms: Summarized

-Neuro. Diagnosed Cervical kyphosis, nerve related symtpoms.

-Perfect vision until 8th grade. Was so embarassed when they told me I needed glasses. It has been getting worse ever since and I see floaters.

-GI problems. Thats a crazy history. Right now I went from bowel obstruction constipation so severe to explosive diarrhea.

-Joint pain. My knees felt like grapefruits this morning, my walk is getting stiffer

-Im getting foggier/cloudier in memory

-Positive ANA-autoimmune history

-Weird reccurent sebacceous gland MRSA infection....

-Fatigue so bad it hurts me, it hurts to be tired.

-And pain so bad Vicodin doesn't work, nor do OTC meds. I just rub Icy Hot everyhwere and do epston salt tub soaks.

-And much more! :) Bbut this flareup all started after I got a recurrent and persistent infection of tonsilitis and thhis STD...yikes...Epstein Barr? I dont know

-My guesses: My friend just died, I just saw her 9 months ago, from lymphoma- with symtoms like mine-is it really sebacceaous gland MRSA or carcinoma, cancer. Muir Toures Syndrome, also Cancer. Or MS, with cervical spinal cord injury, secondary to head truma when I was much younger.

-Do you have any guesses? I'm just so tired and so sick and tired of being sick and tired. Literally. I cant leave the house anymore or drive and my phone died-bad luck I know. So my only communication now is the internet and screaming for help....

I just feel like Im dying. and I kknow what that feels like as I just recovered from anorexia 9 months ago, I almost died then apparently. I also OD'd 41/2 years ago and did die, but was brought back, so I do know what its like. I am stable, and happy, today. I worked with Hospice patients as well, I see the signs. Im scared and people listen but no one hears me. Its so much pain to not be heard
Helpful - 0
Avatar universal
I just read your story, I'm still trying to get the hang of things on this website...I'm an RN struggling with issues which is why I came here. But as far is I know, medically and personally, for MS, a positive ANA can be done in blood work but is only suggestive for a wide range of diseases. A spinal tap and MRI of the head and consultation with a neurologist can confirm diagnosis. I have had CBC blood work come back normal when I was obviously so sick. All a CBC really is is Hct, Hgb, RBC-baasically counting the blood cells and what they contain. Not specific at all.
Helpful - 0
1500294 tn?1290272209
do you think that my blood counts and complete blood count work would be off if it was something serious like ms? please read my full story on the forum thank you naynay363
Helpful - 0
1500294 tn?1290272209
i was on the dr's forum, and saw that it takes them quite a while to get back to us. just some questions for you kind people who may or may not relate, but have at least some experience. here is my issue----

im 29 years old, generally good health (besides high cholesterol and controlled asthma). I'm 28 weeks pregnant with normal blood pressure, and so far a pretty good pregnancy.  

one week ago, i woke up seeing a wierd spot in my eye, went to an opthamologist and a retinal specialst who both said they saw a little bit of fluid in the back of my eye, and that nothing to worry about that the few things that could have caused it will self resolve, and that the spot itself may be visible for a few months.

since then.... Ive been getting wierd symptoms for 4-5 days now. It's tingling/vibrating sensation thru my hands, feet, legs and arms....and very occasionally thru the side of my head. i have no pain..... and no other issues....(no walking issues, no pain, no blurreed vision etc)... i went to my neurologist, who did the "point to ur nose/touch my fingers, etc examination" , checked my blood pressure, etc. she said i look perfect, has no idea whats causing the tingling sensations and said if anything gets worse to call her back.

she did an mri of brain w/and without contrast 6 months ago witch was completely normal.....a cbc blood test 2 days ago, completely normal (accept for slight anemia probably pregnancy induced) .....also my thyroid was checked 6 months ago and perfectly fine.

my questions are --- from your experience do you see MS as a possibilty ?? or something worse??? im very concerned and scared. noone has answers for me.
Helpful - 0
1195464 tn?1279314981
I'm lost... might take me a while to figure this place out. Became a member in January, but wasn't too active. I want to try to use the different tools and get to know more people.
Helpful - 0
Avatar universal
Thanks for the computer tip about increasing and decreasing font size. I too am experiencing changes with my sight. I have asked my Opthamologist if there is anything that can be done!
Helpful - 0
1225331 tn?1333365769
Thanks, you have some good suggestons in here.
Helpful - 0
864831 tn?1243618672
I love the cap idea . My vision is messed up and it's hard for me to see. If you hold down CTRL and scroll the wheel on your mouse it makes everything bigger and smaller.
I found it out by accident a couple years ago and it helps me a lot.
Helpful - 0
Avatar universal
To all, sorry.  It's the writer in me.  Thanks for telling me so politely!!!
Helpful - 0
1216196 tn?1266457548
Hey thanks for making me feel welcome.  The info was very clear.I will surely be using this forum.  
Helpful - 0
Avatar universal
We are asking that no further comments be added to this thread.

For any questions, observations, or any new thoughts on this, please start a new thread and we can chat all we please.

Helpful - 0
Avatar universal
well spot the newbie. I posted something about a week ago and the only reply I got was:


I was here thinking to myself. Is this person for real? what help was BUMP to me?

Now I get it and feel so stupid. . . . Thanks for that helpful info.  

Ah well I'll get there.... eventually........Silly me.

Helpful - 0
Have an Answer?

You are reading content posted in the Multiple Sclerosis Community

Top Neurology Answerers
987762 tn?1331027953
5265383 tn?1483808356
1756321 tn?1547095325
Queensland, Australia
1780921 tn?1499301793
Queen Creek, AZ
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease