Hmm... should have said - I had three relapses every year I was on Copaxone! That makes more sense... kinda.
Johnny, it looks like you've got plenty of links to go through!
I wanted to share my personal experience with you, since you're considering what to take.
I started out on Copaxone. What I didn't realize is that your neuro should monitor you, and every relapse you have should be reported to the doctor. I didn't report every one of mine, but I noticed that when I did report one, he didn't write it down. Nor did we talk about changing medication if the DMD didn't seem to be working. Which is the whole point - if your DMD isn't working, the neuro should try to switch you to one that does.
I had about three relapses the first three years on Copaxone. I would regard that as the Copaxone not working!
Apparently some react better to the interferon-based drugs, and some do better with Copaxone. Evidently I should have been on the interferon-based drugs to begin with.
I didn't get this information from the sources that I consulted before picking Copaxone, so I thought I'd better pass that along. (It's quite possible that the information is there, and I just didn't absorb it.)
The NMSS site mentions Gilienya as well as LDN in their options.
funny I just recommended that site to another person who was just dxd and needs to make a decision about dmds. It really does step you through the pros and cons of the injectibles. I don't think they have added gilenya, the oral med, yet.
good luck, Lu
Here's a site Lulu has posted before. It's a UK MS site but applies to us all. I found it very helpful in learning about the drugs and confirming my choice of which to use.
http://www.msdecisions.org.uk/
I give you a lot of credit for starting your research now. I'd have been thinking about how I should get it done but would have left the actual work until March and then been scrambling for info.
Mary
John,
Below are 2 more links. The first is a draft from our Health Pages using the National Multiple Sclerosis Society information.
http://www.medhelp.org/health_pages/Multiple-Sclerosis/DRAFT---The-Disease-Modifying-Drugs/show/1192?cid=36
The second is a direct link to the same info from the NMMS:
C:\Users\Brenda\AppData\Local\Temp\12.3.7_DiseaseModifyingDrugs-2.pdf
Feel free to ask any questions. I believe there is at least one person who has tried these drugs and/or are using them for treatment.
Ren
http://friendswithms.com/crabscomparison.html
Kind of basic, but it is a start