not sure what to do next?

[ack65]

So I have come to grips with my disaster of a neuro appointment that told me my stabbing head pain was normal and that I have nothing neurological going on and my symptoms no longer sound like ms - don't get me started.  I have made an appt with my GP for tomorrow. Yes, after all the support you all gave I have reluctantly got back on the medical rollercoaster.

So I am wondering what would be best.  Should I ask to be seen by an MS specialist for my "second opinion" ?  I guess I am concerned that my GP will assume I am invested in getting an ms diagnosis if I ask for an ms specialist and she has ruled it out since my brain mri said non specific hypersensitivities.  She, like the neuro, now thinks it's migraines.

She offered at my last visit to send me to a headache specialist after my neuro follow up so I am wondering if that would be a better route.  Then I could go to an ENT for the vertigo and tinnitis, back to physio for my muscle spasms and stiffness and a urologist...

I really am at a loss right now and can't even think straight.  I feel like I need a game plan so this appt doesn't leave me stranded once again without any help.  I welcome any ideas.  Thanks, Anna

[tonyad]

    Sorry that your appointment has made you feel so down.
please remember though...it sometimes takes a couple Neuro's before you can find one that knows enough about MS and the fitting criterea to dx.

     There are several on here and ones that I know personally, that have been to a few different Neuro's. I would say that you are probably..at least "most" of the time going to an MS Specialist. So w/ that being said, I would get all your records and copies of blood work as well as doctoer naotes and MRI's so that you have them when you get an appointment to a different Neuro.

   i hopoe that yopur appt w/ GP goes well with you tomorrow.  What does he think about your situation?


Keep your chin up and positive thoughts  :)
things will be OK...and turn out the way they are supposed to.
~Tonya

[lovemy6monkeys]

Anna,

My first neurologist was part of an MS Clinic at my local teaching hospital. I went in with such high hopes, and walked out crushed and doubting myself and if I will ever know what is wrong with me.

I then went looking for another neurologist. My daughters pre-k teacher's daughter was just diagnosed with MS. They love her doctor and they recommended him to me. He is actually a neuro-opthamologist, but he diagnosis and treats his patients. The main thing that I cared about is that he has a reputation for aggressively going after a diagnosis.

My symptoms are not clear cut. My tests are not abnormal enough to warrant a diagnosis. But, my doctor has ALWAYS tried to figure out a reason for my symptoms. He stresses to me that he wants to see me, the same day no appointment needed, when a new issue starts or if old symptoms get worse. And, just today, he put the official "Suspicion of MS" into my medical records. The puzzle pieces are coming together...slowly, but they are.

I know I'm new to this, and still in Limboland, but, I feel the BEST thing you can do is find a doctor that you are comfortable with. One that you feel will fight along side you to figure out what is going on.

I don't know if an MS specialist is any better then a neurologist who has a great reputation for finding answers. I think if there is any possibility of getting recommendations from patients on how they like their neurologist then I think that is the best way to go.

I'm sorry I'm not more help! ((hugs))
~Jess