pseudo, flare, or just simple consequence??

[luvnGod]

I posted earlier, but I think my question got lost in the mix.  When you over do it, do you pay for it the next day or more?  I am really having a tough day today after cleaning, and I'm assuming, overdoing it. The left side of  face, my tongue, chest, left arm, leg, foot all numb and stiff.  Vision in left eye has been blurry and eye hurts.  Been this way since I woke up this morning and started moving around.  HAS just seemed to spread over my body.  I've been extrememly fatigued.  Want to get feedback and your experiences.  Thanks and many blessings
Stacie

[luvnGod]

Thank you guys, it really helps to get the feedback.  The best thing I think I can do at this point is communicate to the MS specialist what has been going on and then do my best to rest as much as I can.  Thank you so much for the hugs and prayers!!  Love you all very much!

[ku111]

Although we are in Limboland, our Ms Specialist explained to us and my son that he can do whatever he feels like doing but he needs to understand there will probably be consequences such as the "pseudo-flares".  Happens all the time.  If he gets a few days of feeling really good and over-does-it then he is really down after.  He sleeps a lot from the fatigue.  Only difference, he doesn't have to clean the house.  I can't imagine!  It's hard enough for him to be 12 and just be a kid.  It's really hard for him to do many things (chores) around the house.  Rest helps.  Wishing you the very best!  Very frustrating I imagine...

[Sailorsong]

Yes, over doing it make me worse off....It usually take me at least a week to recover when I over do. I was also on oral steroids for about 6 months at one point but it did nothing to help with my symptoms nor elevate those crashes when I over did it.

Dennis

[Sidesteps]

PS. I wanted you to know I am say hugs and prayers. Thinking of you.

[Sidesteps]

Oh Stacie --- hang in there.  It is so fustrating to be in limboland/

I am not sure about the steroids. Everything I've read has lead me to believe that oral steroids will not work as well.

Are you seeing an MSologist?

[luvnGod]

I also wanted to ask... has anyone taken steroids and it hasn't helped?  I just finished Prednisone yesterday and my hubby is so ticked after the way I'm feeling today.  He said I should've never taken them that he thinks I'm worse now than before.  I had a couple of decent days, but I have certainly went down hill. Thoughts?

[luvnGod]

Thank you all so very much for responding!  By spreading over my body, I mean I would start with a numb spot in my hand and the more I did things the numbness covered my whole arm.  Same thing in my left leg.  Started off numb calf and then whole leg was stiff and numb.

I was out of it all yesterday.  It hasn't been too much better today.  I had a Family Resource Day event I had a table for with a couple other church members and the day started off "okay", just a little shaky and then before I knew it, I was dragging my left leg around, vision blurry, left arm completely numb, chin numb, tremors and extreme fatigue.  I had to leave eearly and come home and sleep.  I honestly feel like I'm getting worse.  I just can't get away from it.  I have tried calling the MS doctor to let them know what's going on but I haven't heard back from the nurse.  I guess I'll call again on Monday.  It's been a week that I've called.  She called once and I wasn't home.  Phone tag.  

I just can't help but feel time and time again as I experience this that  MS is to blame.  I just don't feel this is Celiac Disease causing this stuff.

Anyway, thank you all for listening and sharing your thoughts.  It certainly helps to know I'm not alone!!

HUGS

[Sidesteps]

I meant pseudo-flare...not actually *flare*. lol ~

[Guitar_grrrl]

I think it's definitely pseudo flare happening, here.  I discussed similar happenings with my neuro, and he confirmed it.  

As you know, I'm still a total "Fun Hog", and I still ride my bike, do whitewater rafting and kayaking, etc., and my feet and legs go numb after about 20 minutes.  My muscles still work, and that's just sensory stuff going on with the increase in body temp.  I do take frequent breaks, and if I'm kayaking, I take a 20 minute break every 2-3 sets of rapids.  It usually takes 2-4 days to recover from these activities (extreme fatigue, tremors, etc.), but it's SOOOO worth it (to me, anyway...)!

So, yeah, cleaning, vacuuming, etc. do it to me too, but my house tends to look more like a disaster area, because I'm outside having other fun. :-)

[Sidesteps]

Stacie -

ANY stress on the body will cause me to flare but over-doing it tends to cause immediate increase in symptoms (tremor's, twitching, eye pain, numbness) and long term symptoms (fatigue, blurring of my vision and weakness.)

How do you mean "spreading of the body" exactly? The only thing that spreads around my body is my muscle twitches... and I think it's mostly that I get them in so many different places that I can't keep track of which muscles are affected. MS usually has areas of damage so like I have decreased sensation in my left leg and near my right eye.  Those are constant they just become less noticeable at times but that doesn't really move around.

[debgen]

I am always In bad shape after I over do it. I always need to sleep it off at first. I truly come home,fall on to the couch and fall right to sleep for a few hours! I feel much better after I wake up but I 'm still very weak. The next day I am still weak and really need to take it easy. I've really learned that I need to pace myself whenever possible. I hope things get better for you!!
Deb

[bettebelle]

Stacie,
I experience the same consequences for over doing. Some times it lasts a day and other times a few days or just results in a crappy week! But the symptoms usually dissipate over time. If they don't and or you get new symptoms...that's when I call and have a chat with my neuro's nurse. Better to be safe than sorry in my book. Rest rest rest and get more rest! Hope you feel better.
Belle