Tysabri - hair loss?

[SarahL2491]

Anyone on Tysabri experience hair loss?  

After I had been on it for about a year (I have VERY thick hair), I noticed handfuls in my brush and my "braid" becoming much thinner.  Women in my family have very thick hair even in later years, so this came as a surprise to me.

Just wondering if it was just me or if I should let Biogen know

[candy158]

I'm sorry Sarah, wish they would have told you about hair loss as a possibliity huh?   I know there is a drug they suggest for me to do, and hair loss IS one of the things that can happen.

I'm so sorry, guess you can learn how to knit with your hair ..!!!   ( trying to make you smile) ....... maybe a new scarf ???  

(((HUGS)))) to you,
xoxox

[immisceo]

My hair's roughly half as thick as it was when I started treatment three years ago. I'm on a drug trial, therefore don't know which drug I'm on and which is placebo. It wasn't mentioned in the literature as a side effect for either of the drugs I'm potentially on, so I've just put it down to androgenic alopecia.

I did not monitor things as closely before treatment, so it could be something slowly coming on for much longer. I started being hyper-aware of many things when treatment started.

I'd love to think if I switched drugs it would change as it's pretty distressing for a 33 year old to see scalp the way I do now, but in my case I think it's more likely genetic or stress-related, though I do not know my familial predisposition.