HI Elaine,
I had no idea he was suffering with this. I didn't know either that it was a side-effect. I don't know anything about these centers, but wanted you to know I'm thinking of you both. How many injections did he make it through?
I know he's PPMS, but did you look into the Rebif at all for this? I know on the surface it doesn't mention treatment for PPMS, but I could of sworn that it has been used. I'll do some digging, see see what I come up with and pass along.
I'm glad you are going to the Director though, sounds promising to me
ttys,
Shell
Elaine,
I have to say, just from my experience with drugs, that some are just not worth the side effects.
I feel so heartbroken for Craig and for you and the kids. I am not going to stop praying until he gets well.
I have lost confidence in doctors, entirely.
I'm so frustrated with the whole medical community.
Love & Hugs & Prayers,
Sheila
I am so sorry the Copaxone didn't work for Craig. There is nothing worse than nausea, caused especially by something that isn't (or doesn't seem to be) helping. My heart crys for both Craig and you, and your family. You both fought so hard for a diagnosis, and must feel horribly let down that after getting the diagnosis, things haven't gotten better. Just know that your whole forum family are keeping you all in their hearts and prayers. It must be hard for you to keep us updated, when there is no good news, but we appreciate your taking the time to share with us. We all worry about you all so much.
Many hugs & Prayers, Maggie
I am sorry...I made a mistake. In the Copaxone studies with less than 50 people with PPMS, only 22 to 25 percent showed a SLOWING of their disease, not a progression.
In either case, it makes me wonder if the quality of your life is bad and you feel like you can't enjoy your days with all the side effects, is it worth it to go ahead and take the drug anyway??
Thanks for all the support. It is appreciated.
Elaine
Elaine,
I am so sorry the Copaxone did not help Craig.
I am praying Jacobs can help Craig.
Please tell Craig not to give up. Sometimes I feel the same way, but we have to keep hanging on to hope.
Hugs,
Sheila
P.S. Hugs my girls for me.
Elaine, my heart breaks for you. I don't know anything about these centers, but I am sorry about the Copaxone issues. Don't give up. Love, Amy