Lucia,
Your welcome. Did the link provide any insight on the MS centers in Europe? I hope the program provides funding for you soon. It is ok to wait, just so long as it's months, not years. Beta is well respected here in the states! Hope it's available to help you soon.
-Shell
Hi
Thanks for your response. It was very helpful in encouraging me to keep doing the things I love and for rearranging my lifestyle in a more self-protective way.
Currently I am not on any meds, here they give it to you through a national program and I'm still waiting for the funds. My doctor says it's ok to wait. Either way, it would be way too expensive for me to buy them.
Hopefully I'll start treatment with Betaseron this summer
Lucia
Also, you can look into finding MS specialists centers here:
http://mscare.org/cmsc/index.php?option=com_center_directory&Itemid=1379
Hi Lucia,
I found a 2nd opinion to be reassuring to me. I'm not they type to break down over things, nor let them get me upset - I'm moreso the type that thinks, yea? MS? If it's clinical, and there is no "one" test to prove it, then maybe I don't have it, haha (I've learned a lot since my dx then in 07)
So, I went for the 2nd opinion and it was confirmed. Early on it was difficult for me to distinguish between MS symptoms and medication, and also between MS symptoms and existing chronic problems on top of the dx. Time cured that for me - you'll sort them out.
It's going to be important to get a tight grasp on sadness and depression. Only then, are you going to be able to put up your best foot forward and deal with limitations as they come. Or, muscle to and through those things you have come to love. If you are lucky, some limitations that come, may go too. I've found that the lifestyle change you make to compensate stays with you - and it's a blessing because you'll always have it when you need it.
I'm glad being here makes you feel good :) So nice to have you. Hope some of this helps.
Happy Easter to you too!
-Shell
p.s. You on any meds for MS yet?