Aa
Buzzing Painful legs.
Hi again Guy's, I'm having a lot of trouble with my legs. They are extremely heavy. They feel like they are buzzing and especially my right shin gets a different sensation than my left. It's like i feel a numbness coming and going. This tightening really hurts. My ankles and knees especially get a piercing pain.
I have to rest them a lot to ease the discomfort, but any length of time standing, walking, kneeling. Just kills them. My legs are so uncomfortable. Is this a symptom one would experience in MS? My legs are getting worse since all this began. Pain, odd sensations. buzzing. The pain is so bad i hold onto things for support because of weakness.
I sweat profusely at night, i wake with numb fingers. I am really concerned. I'm due to have my vitamin B12 checked this week. My GP prescribed Cytagon tablets. I did also receive weekly injections for 6 weeks. My GP than said she wanted to try tablet form to see how they would work. I will yet again just talk to her about my symptoms like i have been now for two years.
I think this is MS. If it isn't than why haven't they found what it is, treated it instead of leaving me deteriorate? I cannot understand this, it's dumbfounding?
I'm waiting as you know for clarification on questions which i think if answered will shed light. I know you guy's think perhaps not, but something is causing my symptomsand I'm really concerned it's MS, even though everyone else thinks it's not.
Hugs
Marian
I have to rest them a lot to ease the discomfort, but any length of time standing, walking, kneeling. Just kills them. My legs are so uncomfortable. Is this a symptom one would experience in MS? My legs are getting worse since all this began. Pain, odd sensations. buzzing. The pain is so bad i hold onto things for support because of weakness.
I sweat profusely at night, i wake with numb fingers. I am really concerned. I'm due to have my vitamin B12 checked this week. My GP prescribed Cytagon tablets. I did also receive weekly injections for 6 weeks. My GP than said she wanted to try tablet form to see how they would work. I will yet again just talk to her about my symptoms like i have been now for two years.
I think this is MS. If it isn't than why haven't they found what it is, treated it instead of leaving me deteriorate? I cannot understand this, it's dumbfounding?
I'm waiting as you know for clarification on questions which i think if answered will shed light. I know you guy's think perhaps not, but something is causing my symptomsand I'm really concerned it's MS, even though everyone else thinks it's not.
Hugs
Marian
Happy is the heart. I'm confident my clinical questions will be resolved.
It seems my thread has got people in a conundrum. Well that's why clarification is needed. I don't blame you guy's for getting impatient, angry, but it just goes to show, that people on this forum have more than one opinion on this.
It could be so many things, but it's not MS? I say let's wait for the clinical answers to come back. Until then i wouldn't rush to say it's not MS. I would also not rush to give an opinion on my character, because that's got nothing to do with MS.
It seems my thread has got people in a conundrum. Well that's why clarification is needed. I don't blame you guy's for getting impatient, angry, but it just goes to show, that people on this forum have more than one opinion on this.
It could be so many things, but it's not MS? I say let's wait for the clinical answers to come back. Until then i wouldn't rush to say it's not MS. I would also not rush to give an opinion on my character, because that's got nothing to do with MS.
6 Comments
Actually, some of us said we don't know whether it's ms or not. I never suggested it wasn't . It might be, but if it is, you are not yet disgnosable by the neuro. It might not be. Unfortunately that's limbo. It is a frustrating time of waiting. Getting angry, pushing buttons --
None of that helps you
Survive the unknowns, nor does anger and stress help your symptoms. It will aggravate them.
Please don't remind me of your lesions again. They are not enough for a diagnosis.
My main concern was your expectation that you would get answers by accusing the neurologist of missing a dx. He didn't miss it. You didn't meet criteria and you refuse to accept it.
I know it's hard -- my first two mris met McDonald criteria according to the radiologist. Neuro said no. He has more training than a general radiologist.
As I've said already ... You will find out eventually. Your questions will be answered. However the process is only fast when your tests and mris are textbook.
Yours are not. Honestly ...
As much as you think they are ...
They are not. Neither were mine.
Keep ruling out mimics ... Some of them are even more life altering and you don't want to miss them.
A psych could be your biggest ally --
Mine was. Don't discount the value of a MH assessment.
For what it's worth ...
None of that helps you
Survive the unknowns, nor does anger and stress help your symptoms. It will aggravate them.
Please don't remind me of your lesions again. They are not enough for a diagnosis.
My main concern was your expectation that you would get answers by accusing the neurologist of missing a dx. He didn't miss it. You didn't meet criteria and you refuse to accept it.
I know it's hard -- my first two mris met McDonald criteria according to the radiologist. Neuro said no. He has more training than a general radiologist.
As I've said already ... You will find out eventually. Your questions will be answered. However the process is only fast when your tests and mris are textbook.
Yours are not. Honestly ...
As much as you think they are ...
They are not. Neither were mine.
Keep ruling out mimics ... Some of them are even more life altering and you don't want to miss them.
A psych could be your biggest ally --
Mine was. Don't discount the value of a MH assessment.
For what it's worth ...
Hi aspen2,
I've got what you're saying, but the very fact that MS is mentioned as a cause for the first time in 2014 and again in 2016, is telling me, that there is evidence to support MS, more than not MS. I presented with double vision and balance problems in 2014.
Post traumatic and ischemia can be ruled out, because i didn't receive an injury to my head, and i didn't suffer stroke.
If i haven't met criteria for MS, then why would this neurologist ever refer to it and nothing else in asking for lumbar puncture. Why check for O Bands when there is nothing suggestive of MS.
If someone is going to make a claim, that i need to rule in or out MS using lumbar puncture as the decider, then i can only come to one conclusion. There is evidence of it. This is why i have asked the questions i have, based on what he himself said. I don't know what criteria he followed.
He has referred to many thing's this neurologist as being a cause for double vision and balance problems. He claimed it was psychological, following me having seen another neurologist for an opinion, which I am entitled to do. He claimed psychological, he needs to have evidence to make such a claim, which he didn't. He referred me to a psychologist, and as the psychologist said to me, did this neurologist know your past? I said he knew nothing of my past. Make out of that what you will.
The psychologist herself said, my physical symptoms cannot be ignored, she understood that i needed more clarification from this neurologist, in order to understand what evidence did he have to claim my symptoms are psychological. He had clinical evidence of changes on my brain Mri 2014, I presented with double vision and balance problems in 2014. He specifically referred to MS in 2014, not psychological, not any other possible cause. He didn't appreciate I going for a second opinion why? My vitamin B12 was within range but just about in his lab results, in 2014, now it's very low. If he is correct and my symptoms are psychological, he first needs to clarify what prompted him to refer to MS following my brain Mri 2014, and why was lumbar puncture the decider. If he can give the answers to this, i will then know whether MS is the most likely cause or not. He cannot rule it in or out definitely on lumbar puncture results alone, without having evidence to suggest why he needed to use it as the decider. Just like he cannot claim its psychological without having evidence to back up his claim. He needs now to decide which it is based on evidence.
I've had enough if running around like a headless chicken, and each time this Mri being avoided. I'm going back to the beginning because this is where my answer is. Let him deal with this, his claims, and his evidence. I have no idea what criteria this neurologist followed, but he is obligated to clear this up, because he made clinical claims of two things, which is it?
Marian
I've got what you're saying, but the very fact that MS is mentioned as a cause for the first time in 2014 and again in 2016, is telling me, that there is evidence to support MS, more than not MS. I presented with double vision and balance problems in 2014.
Post traumatic and ischemia can be ruled out, because i didn't receive an injury to my head, and i didn't suffer stroke.
If i haven't met criteria for MS, then why would this neurologist ever refer to it and nothing else in asking for lumbar puncture. Why check for O Bands when there is nothing suggestive of MS.
If someone is going to make a claim, that i need to rule in or out MS using lumbar puncture as the decider, then i can only come to one conclusion. There is evidence of it. This is why i have asked the questions i have, based on what he himself said. I don't know what criteria he followed.
He has referred to many thing's this neurologist as being a cause for double vision and balance problems. He claimed it was psychological, following me having seen another neurologist for an opinion, which I am entitled to do. He claimed psychological, he needs to have evidence to make such a claim, which he didn't. He referred me to a psychologist, and as the psychologist said to me, did this neurologist know your past? I said he knew nothing of my past. Make out of that what you will.
The psychologist herself said, my physical symptoms cannot be ignored, she understood that i needed more clarification from this neurologist, in order to understand what evidence did he have to claim my symptoms are psychological. He had clinical evidence of changes on my brain Mri 2014, I presented with double vision and balance problems in 2014. He specifically referred to MS in 2014, not psychological, not any other possible cause. He didn't appreciate I going for a second opinion why? My vitamin B12 was within range but just about in his lab results, in 2014, now it's very low. If he is correct and my symptoms are psychological, he first needs to clarify what prompted him to refer to MS following my brain Mri 2014, and why was lumbar puncture the decider. If he can give the answers to this, i will then know whether MS is the most likely cause or not. He cannot rule it in or out definitely on lumbar puncture results alone, without having evidence to suggest why he needed to use it as the decider. Just like he cannot claim its psychological without having evidence to back up his claim. He needs now to decide which it is based on evidence.
I've had enough if running around like a headless chicken, and each time this Mri being avoided. I'm going back to the beginning because this is where my answer is. Let him deal with this, his claims, and his evidence. I have no idea what criteria this neurologist followed, but he is obligated to clear this up, because he made clinical claims of two things, which is it?
Marian
Hi aspen2,
Just a couple of things I would like to share with you.
SSEP's were carried out by the second neurologist, these were normal. This is what he wrote regarding my Brain Mri 2014. The September Mri shows multi focal juxtacortical white matter hyperintensities not involving the ventricular space or posterior fossa structure. Contrast not given.
This is what he wrote referring to his own Mri 2015. Her recent Mri of Brain shows some non enhancing tiny white matter hyperintensities in the juxtacortical right frontal lobe in a distribution not highly suggestive of demyelinating disease.
He then goes on to say that she does not meet the consensus diagnostic criteria for MS and in my opinion her risk of developing MS in the future low. Nonetheless she should continue to be monitored with clinical review and MRI on at least an annual basis with her next Mri in early 2016. This letter was written in February 2015.
He said in this letter, that there is hyperreflexia in the upper limbs, with spread from the biceps and supernator jerks to adjacent muscles and positive Hoffman's bilaterally. The knee jerks are brisk, left ankle jerk is absent, right is present, toes down. Detailed sensory exam to temperature, light touch , pin and vibration revealed only minimal subjective asymmetry to light touch over the right knee and upper outer leg in a non dermatomal distribution. She walks well with good arm swing, but may have a subtle tendency towards not lifting her right leg as well as the left. I could not be sure on this point.
The neurologist I've asked clarification from, this is his letter. She was admitted complaining of visual difficulties, focusing and occasional double vision as well as a feeling of unsteady gait and that she was favouring to her right side. He makes no reference to any neurological examination findings. He goes on to say, Routine Bloods on admission were normal. ESR normal, Thyroid function Normal. Lymes disease outstanding. Mri shows scattered T2 hyperintensities in both cerebral hemispheres. There was a slight increase in these compared to her previous Mri scan. There are no enhancing lesions, and although I have a low end suspicion for MS, i felt it would be important to try and exclude it definitely so i organized for her to have lumbar puncture. As I've said previously he didn't give contrast, and that has been written also by neurologist no 2.
I will post the third and fourth neurologist's findings later. I just want to highlight, that things were said that were not done, by neurologist no 1, and things were said that there was increase, and suspicion regarding MS, but to exclude it definitely, he needed lumbar puncture. He knows it cannot be excluded or included definitely on that result alone. So definitely is something needs further clarification on for me, because in order to say definitely, i need to know, was that because the slight increase was or was not what prompted him to advise lumbar puncture. And if the result were positive, what would he have said. My conclusion is it would have been a diagnosis of MS, but not based alone on that one result, but other maybe more important evidence. Do you see where I'm having difficulty ?
Marian.
Just a couple of things I would like to share with you.
SSEP's were carried out by the second neurologist, these were normal. This is what he wrote regarding my Brain Mri 2014. The September Mri shows multi focal juxtacortical white matter hyperintensities not involving the ventricular space or posterior fossa structure. Contrast not given.
This is what he wrote referring to his own Mri 2015. Her recent Mri of Brain shows some non enhancing tiny white matter hyperintensities in the juxtacortical right frontal lobe in a distribution not highly suggestive of demyelinating disease.
He then goes on to say that she does not meet the consensus diagnostic criteria for MS and in my opinion her risk of developing MS in the future low. Nonetheless she should continue to be monitored with clinical review and MRI on at least an annual basis with her next Mri in early 2016. This letter was written in February 2015.
He said in this letter, that there is hyperreflexia in the upper limbs, with spread from the biceps and supernator jerks to adjacent muscles and positive Hoffman's bilaterally. The knee jerks are brisk, left ankle jerk is absent, right is present, toes down. Detailed sensory exam to temperature, light touch , pin and vibration revealed only minimal subjective asymmetry to light touch over the right knee and upper outer leg in a non dermatomal distribution. She walks well with good arm swing, but may have a subtle tendency towards not lifting her right leg as well as the left. I could not be sure on this point.
The neurologist I've asked clarification from, this is his letter. She was admitted complaining of visual difficulties, focusing and occasional double vision as well as a feeling of unsteady gait and that she was favouring to her right side. He makes no reference to any neurological examination findings. He goes on to say, Routine Bloods on admission were normal. ESR normal, Thyroid function Normal. Lymes disease outstanding. Mri shows scattered T2 hyperintensities in both cerebral hemispheres. There was a slight increase in these compared to her previous Mri scan. There are no enhancing lesions, and although I have a low end suspicion for MS, i felt it would be important to try and exclude it definitely so i organized for her to have lumbar puncture. As I've said previously he didn't give contrast, and that has been written also by neurologist no 2.
I will post the third and fourth neurologist's findings later. I just want to highlight, that things were said that were not done, by neurologist no 1, and things were said that there was increase, and suspicion regarding MS, but to exclude it definitely, he needed lumbar puncture. He knows it cannot be excluded or included definitely on that result alone. So definitely is something needs further clarification on for me, because in order to say definitely, i need to know, was that because the slight increase was or was not what prompted him to advise lumbar puncture. And if the result were positive, what would he have said. My conclusion is it would have been a diagnosis of MS, but not based alone on that one result, but other maybe more important evidence. Do you see where I'm having difficulty ?
Marian.
Hi aspen2,
Just a couple of things I would like to share with you.
SSEP's were carried out by the second neurologist, these were normal. This is what he wrote regarding my Brain Mri 2014. The September Mri shows multi focal juxtacortical white matter hyperintensities not involving the ventricular space or posterior fossa structure. Contrast not given.
This is what he wrote referring to his own Mri 2015. Her recent Mri of Brain shows some non enhancing tiny white matter hyperintensities in the juxtacortical right frontal lobe in a distribution not highly suggestive of demyelinating disease.
He then goes on to say that she does not meet the consensus diagnostic criteria for MS and in my opinion her risk of developing MS in the future low. Nonetheless she should continue to be monitored with clinical review and MRI on at least an annual basis with her next Mri in early 2016. This letter was written in February 2015.
He said in this letter, that there is hyperreflexia in the upper limbs, with spread from the biceps and supernator jerks to adjacent muscles and positive Hoffman's bilaterally. The knee jerks are brisk, left ankle jerk is absent, right is present, toes down. Detailed sensory exam to temperature, light touch , pin and vibration revealed only minimal subjective asymmetry to light touch over the right knee and upper outer leg in a non dermatomal distribution. She walks well with good arm swing, but may have a subtle tendency towards not lifting her right leg as well as the left. I could not be sure on this point.
The neurologist I've asked clarification from, this is his letter. She was admitted complaining of visual difficulties, focusing and occasional double vision as well as a feeling of unsteady gait and that she was favouring to her right side. He makes no reference to any neurological examination findings. He goes on to say, Routine Bloods on admission were normal. ESR normal, Thyroid function Normal. Lymes disease outstanding. Mri shows scattered T2 hyperintensities in both cerebral hemispheres. There was a slight increase in these compared to her previous Mri scan. There are no enhancing lesions, and although I have a low end suspicion for MS, i felt it would be important to try and exclude it definitely so i organized for her to have lumbar puncture. As I've said previously he didn't give contrast, and that has been written also by neurologist no 2.
I will post the third and fourth neurologist's findings later. I just want to highlight, that things were said that were not done, by neurologist no 1, and things were said that there was increase, and suspicion regarding MS, but to exclude it definitely, he needed lumbar puncture. He knows it cannot be excluded or included definitely on that result alone. So definitely is something needs further clarification on for me, because in order to say definitely, i need to know, was that because the slight increase was or was not what prompted him to advise lumbar puncture. And if the result were positive, what would he have said. My conclusion is it would have been a diagnosis of MS, but not based alone on that one result, but other maybe more important evidence. Do you see where I'm having difficulty ?
Marian.
Just a couple of things I would like to share with you.
SSEP's were carried out by the second neurologist, these were normal. This is what he wrote regarding my Brain Mri 2014. The September Mri shows multi focal juxtacortical white matter hyperintensities not involving the ventricular space or posterior fossa structure. Contrast not given.
This is what he wrote referring to his own Mri 2015. Her recent Mri of Brain shows some non enhancing tiny white matter hyperintensities in the juxtacortical right frontal lobe in a distribution not highly suggestive of demyelinating disease.
He then goes on to say that she does not meet the consensus diagnostic criteria for MS and in my opinion her risk of developing MS in the future low. Nonetheless she should continue to be monitored with clinical review and MRI on at least an annual basis with her next Mri in early 2016. This letter was written in February 2015.
He said in this letter, that there is hyperreflexia in the upper limbs, with spread from the biceps and supernator jerks to adjacent muscles and positive Hoffman's bilaterally. The knee jerks are brisk, left ankle jerk is absent, right is present, toes down. Detailed sensory exam to temperature, light touch , pin and vibration revealed only minimal subjective asymmetry to light touch over the right knee and upper outer leg in a non dermatomal distribution. She walks well with good arm swing, but may have a subtle tendency towards not lifting her right leg as well as the left. I could not be sure on this point.
The neurologist I've asked clarification from, this is his letter. She was admitted complaining of visual difficulties, focusing and occasional double vision as well as a feeling of unsteady gait and that she was favouring to her right side. He makes no reference to any neurological examination findings. He goes on to say, Routine Bloods on admission were normal. ESR normal, Thyroid function Normal. Lymes disease outstanding. Mri shows scattered T2 hyperintensities in both cerebral hemispheres. There was a slight increase in these compared to her previous Mri scan. There are no enhancing lesions, and although I have a low end suspicion for MS, i felt it would be important to try and exclude it definitely so i organized for her to have lumbar puncture. As I've said previously he didn't give contrast, and that has been written also by neurologist no 2.
I will post the third and fourth neurologist's findings later. I just want to highlight, that things were said that were not done, by neurologist no 1, and things were said that there was increase, and suspicion regarding MS, but to exclude it definitely, he needed lumbar puncture. He knows it cannot be excluded or included definitely on that result alone. So definitely is something needs further clarification on for me, because in order to say definitely, i need to know, was that because the slight increase was or was not what prompted him to advise lumbar puncture. And if the result were positive, what would he have said. My conclusion is it would have been a diagnosis of MS, but not based alone on that one result, but other maybe more important evidence. Do you see where I'm having difficulty ?
Marian.
Hi aspen2,
This is neurologist no 3 findings in London.
She was alert, lucid, and oriented. Ocular examination. At times there was intermittent opthalmoplegia on lateral gaze which was self correcting. Tone, power and reflex pattern normal. I felt her plantars went up bilaterally with altered heel to toe movements.
I do think she requires further investigation, though her symptom complex is difficult. Mri imaging to be reviewed. Neuropscyometery and neuro ophthalmology is what he advised.
Saw the neuro ophthalmologist, i posted his findings awhile back. Neuropsycometery i will be attending in June. The neuroradiologisit reports from London i also posted awhile back.
The fourth neurologists findings and diagnosis.
Neurological examination was normal, including visual acuity, visual fields, eye movements, fundoscopy, screening tests for pronator drift and ataxia, tandem gait, reflexes and plantar responses. In particular there is no evidence of fatigability on prolonged upgaze or on prolonged activation of the upper. limbs. We looked at her Mri Brain scans. May i add here, he didn't want to view my brain Mri 2014. I showed her that there are some small white matter changes on the brain scan, which are commonly seen as incidental findings. They do not have the pattern and volume typical for demyelination. There is no significant cumulative increases in these white matter changes with time.
In summary the symptoms are more suggestive of chronic fatigue type / Fibromyalgia syndrome. Her story and examination is not typical for MS, She has been doing a lot of reading on MS, and was able to quote the McDonald Criteria to me regarding Mri imaging, and ask me questions about possible juxtacortical lesions. He himself when asked about juxtacortical said yes they are on the tip of the juxtacortical. He didn't however want to discuss my brain Mri 2014, particularly the 6.6mm lesion. Her normal neurological examination would go against her symptoms being related to her borderline low vitamin B12, levels nonetheless i would agree with continuing replacement of this vitamin. I told her multiple sclerosis is very unlikely and would not recommend further neurological imaging at this point. I have not arranged to see her back in clinic routinely. If you meaning my GP, feels she warrants further assessment please don't hesitate to contact me.
That's it all their findings, and opinions. But neurologist no 1 never gave his findings on my neurological examination, before he admitted me to hospital, and while I was there.
Four neurologists, avoided my brain Mri 2014 in some way. Neurologist no 1, doesn't want to discuss it personally, and i got the impression he didn't like i had a copy of the report, because having gone back to see him, following my consultation with neurologist no 2, showing him his letter, and the spinal surgeon's letter, he said to me i don't know my own mind, and stop going to other neurologists. This has to stop right now he said. Your symptoms are psychological.Didn't want to discuss the brain Mri 2014.
Neurologist no 2 arranged a second Mri with contrast. He gave no clinical question or previous imaging for comparison to the radiologist. The radiologist wrote in his report that no clinical question was given for which prompted this Mri.
The third neurologist, said it would be very important that a neuroradiologisit view my MRI's. All were viewed, except 2014. Almost a year later, having asked for a copy of the radiologists report, i asked why this was. The clinic in London told me it wasn't listed on their system. No explanation other than that. I returned the disc to be viewed along with my Mri 2016. This is the neuroradiologisits report.
2016 report.
Comparison made with the previously reviews Mri Brain dating back to 2011. The only interval change is some increase in size of nasopharyngeal mucous retention cysts that are of no clinical significance. The few unconcerning previously described tiny predominantly subcortical T2 hyperintense foci in both frontal lobes are unchanged.
2014 report.
Comparison made with the previously reviews Mri Brain studies dating back to 2011, and from 2015. The study under review shows no additional Parenchymal lesions or other adverse features when compared with the penultimate or subsequent study. As previously described, there are a few tiny predominantly subcortical T2 hyperintense foci in both frontal lobes which although non specific are within normal limits for age, a common incidental finding and essentially stable for several years. Very broad terms regarding location are given in both her reports.
The neurologist himself in London never made a comment either way regarding my imaging.
The fourth neurologist, said he doesn't look at past MRI's, only present ones. Twice i asked him to view 2014, he didn't, and when he did load it, he very quickly skimmed through just the sequences that were written, but never brought up any images.
I felt he wanted me out the door and he just didn't want to discuss this Mri with me. None of them want to discuss this, why?
Is it because there simply is absolutely nothing on it, or is there something on it? It's the only one out of all radiologists reports given, noting a 6.6mm lesion. Is this why?
I'm sorry aspen2, but when something is wrong here, and i need clarification. Am i crazy? Or is something else amiss?
Appreciate your thoughts. I have now given the points as to why i need clarification. Have i lost it or what?
Hugs Marian
This is neurologist no 3 findings in London.
She was alert, lucid, and oriented. Ocular examination. At times there was intermittent opthalmoplegia on lateral gaze which was self correcting. Tone, power and reflex pattern normal. I felt her plantars went up bilaterally with altered heel to toe movements.
I do think she requires further investigation, though her symptom complex is difficult. Mri imaging to be reviewed. Neuropscyometery and neuro ophthalmology is what he advised.
Saw the neuro ophthalmologist, i posted his findings awhile back. Neuropsycometery i will be attending in June. The neuroradiologisit reports from London i also posted awhile back.
The fourth neurologists findings and diagnosis.
Neurological examination was normal, including visual acuity, visual fields, eye movements, fundoscopy, screening tests for pronator drift and ataxia, tandem gait, reflexes and plantar responses. In particular there is no evidence of fatigability on prolonged upgaze or on prolonged activation of the upper. limbs. We looked at her Mri Brain scans. May i add here, he didn't want to view my brain Mri 2014. I showed her that there are some small white matter changes on the brain scan, which are commonly seen as incidental findings. They do not have the pattern and volume typical for demyelination. There is no significant cumulative increases in these white matter changes with time.
In summary the symptoms are more suggestive of chronic fatigue type / Fibromyalgia syndrome. Her story and examination is not typical for MS, She has been doing a lot of reading on MS, and was able to quote the McDonald Criteria to me regarding Mri imaging, and ask me questions about possible juxtacortical lesions. He himself when asked about juxtacortical said yes they are on the tip of the juxtacortical. He didn't however want to discuss my brain Mri 2014, particularly the 6.6mm lesion. Her normal neurological examination would go against her symptoms being related to her borderline low vitamin B12, levels nonetheless i would agree with continuing replacement of this vitamin. I told her multiple sclerosis is very unlikely and would not recommend further neurological imaging at this point. I have not arranged to see her back in clinic routinely. If you meaning my GP, feels she warrants further assessment please don't hesitate to contact me.
That's it all their findings, and opinions. But neurologist no 1 never gave his findings on my neurological examination, before he admitted me to hospital, and while I was there.
Four neurologists, avoided my brain Mri 2014 in some way. Neurologist no 1, doesn't want to discuss it personally, and i got the impression he didn't like i had a copy of the report, because having gone back to see him, following my consultation with neurologist no 2, showing him his letter, and the spinal surgeon's letter, he said to me i don't know my own mind, and stop going to other neurologists. This has to stop right now he said. Your symptoms are psychological.Didn't want to discuss the brain Mri 2014.
Neurologist no 2 arranged a second Mri with contrast. He gave no clinical question or previous imaging for comparison to the radiologist. The radiologist wrote in his report that no clinical question was given for which prompted this Mri.
The third neurologist, said it would be very important that a neuroradiologisit view my MRI's. All were viewed, except 2014. Almost a year later, having asked for a copy of the radiologists report, i asked why this was. The clinic in London told me it wasn't listed on their system. No explanation other than that. I returned the disc to be viewed along with my Mri 2016. This is the neuroradiologisits report.
2016 report.
Comparison made with the previously reviews Mri Brain dating back to 2011. The only interval change is some increase in size of nasopharyngeal mucous retention cysts that are of no clinical significance. The few unconcerning previously described tiny predominantly subcortical T2 hyperintense foci in both frontal lobes are unchanged.
2014 report.
Comparison made with the previously reviews Mri Brain studies dating back to 2011, and from 2015. The study under review shows no additional Parenchymal lesions or other adverse features when compared with the penultimate or subsequent study. As previously described, there are a few tiny predominantly subcortical T2 hyperintense foci in both frontal lobes which although non specific are within normal limits for age, a common incidental finding and essentially stable for several years. Very broad terms regarding location are given in both her reports.
The neurologist himself in London never made a comment either way regarding my imaging.
The fourth neurologist, said he doesn't look at past MRI's, only present ones. Twice i asked him to view 2014, he didn't, and when he did load it, he very quickly skimmed through just the sequences that were written, but never brought up any images.
I felt he wanted me out the door and he just didn't want to discuss this Mri with me. None of them want to discuss this, why?
Is it because there simply is absolutely nothing on it, or is there something on it? It's the only one out of all radiologists reports given, noting a 6.6mm lesion. Is this why?
I'm sorry aspen2, but when something is wrong here, and i need clarification. Am i crazy? Or is something else amiss?
Appreciate your thoughts. I have now given the points as to why i need clarification. Have i lost it or what?
Hugs Marian
Sorry aspen2, but can i just say i know you didn't want me to talk about my lesions, but facts are facts. All other Mri reports talk about 3mm over the years. It's 2014 which notes 6.6mm. 2015, 2016, notes 2/3mm in 2015. Up to 3.5mm in 2016. Tell me aspen2 if they can see this 3mm, why can't they see the 6.6mm ?
The same radiologist, sees 2/3 and 3.5mm. Was supposed to do an addendum regarding my Mri 2015/2016 didn't do it. Just verbally confirmed through someone else, there is no change.
6.6mm and 3.5mm are two different measurements. They can all talk about the 3.5mm, but they don't want to discuss the 6.6mm. Is this not odd?
Marian
The same radiologist, sees 2/3 and 3.5mm. Was supposed to do an addendum regarding my Mri 2015/2016 didn't do it. Just verbally confirmed through someone else, there is no change.
6.6mm and 3.5mm are two different measurements. They can all talk about the 3.5mm, but they don't want to discuss the 6.6mm. Is this not odd?
Marian
Hi JJ,
Just to let you know, i will update you when i receive clinical answers. I'm confident my issues will be resolved.
It shouldn't be too long now.
Marian.
Just to let you know, i will update you when i receive clinical answers. I'm confident my issues will be resolved.
It shouldn't be too long now.
Marian.
COMMUNITY LEADER
Gosh your a sweetheart, I've always been calm and patient, brutally honest though, very open minded, and i think it's mainly my desire to understand and support my family members and friends with disabilities, having a life long fascination in psychology, brain plasticity and working with children finding their strengths to work around their weaknesses, has all definitely helped me keep a healthy head space lol and never giving up until it's done is what probably still keeps me climbing ladders no matter how many times i find my self unexpectedly on my butt yet again.....
hmmm poor DH is threatening to strap me into a harness and attach me to an adult sized babies jolly jumper lol it's not actually a bad idea, what ever works, right? :D I may not be able to see what i'm painting but i've got a paint brush and this woman ain't afraid to use it ROFL
dodgy-builders-R-us......JJ
hmmm poor DH is threatening to strap me into a harness and attach me to an adult sized babies jolly jumper lol it's not actually a bad idea, what ever works, right? :D I may not be able to see what i'm painting but i've got a paint brush and this woman ain't afraid to use it ROFL
dodgy-builders-R-us......JJ
COMMUNITY LEADER
Gosh your a sweetheart, I've always been calm and patient, brutally honest though, very open minded, and i think it's mainly my desire to understand and support my family members and friends with disabilities, having a life long fascination in psychology, brain plasticity and working with children finding their strengths to work around their weaknesses, has all definitely helped me keep a healthy head space lol and never giving up until it's done is what probably still keeps me climbing ladders no matter how many times i find my self unexpectedly on my butt yet again.....
hmmm poor DH is threatening to strap me into a harness and attach me to an adult sized babies jolly jumper lol it's not actually a bad idea, what ever works, right? :D I may not be able to see what i'm painting but i've got a paint brush and this woman ain't afraid to use it ROFL
dodgy-builders-R-us......JJ
hmmm poor DH is threatening to strap me into a harness and attach me to an adult sized babies jolly jumper lol it's not actually a bad idea, what ever works, right? :D I may not be able to see what i'm painting but i've got a paint brush and this woman ain't afraid to use it ROFL
dodgy-builders-R-us......JJ
JJ, thank you for your always-well-reasoned and calm approach. I am not very knowledgeable about this potential psychiatric issue and tend to take people at face value. (Presumed) abuse could certainly leave scars, I get that. it's odd, though, that this could take the form of verbally attacking someone else, a total stranger who had spent quite a lot of time trying to be of help. Perhaps though, it could form a pattern, and lashing out at others, possibly doctors, is part of that. Live and learn.
Maya Angelou said, 'If someone shows you who they are, believe them (the first time).' Should have. My face-value self tells me that I didn't 'pre-judge,' but now, not venturing into the psychiatric realm and backing out of this fray, I can post-judge at leisure.
Maya Angelou said, 'If someone shows you who they are, believe them (the first time).' Should have. My face-value self tells me that I didn't 'pre-judge,' but now, not venturing into the psychiatric realm and backing out of this fray, I can post-judge at leisure.
JJ,
I asked for all your guy's thoughts. I took them on board. I don't agree that I don't have MS. I'm entitled to agree or disagree, just like you guy's are entitled to agree or disagree with me.
However, not once did i pre judge or condemn anyone's character on this forum, until my character was brought into this by someone else. I defended my character because it was attacked.
I've set the record straight, by letting the person who took it upon themselves to attack my character, that until you walk in my shoes, don't judge me. I have my opinion, you guy's have yours.
Just like you've given your opinion above about seeing a psychiatrist for conversion disorder, I've taken on board. The point I'm making here is I can take criticism to a certain extent, but attack who i am without knowing me just went a step too far.
I hope by me sharing my life sentence, that it shows my strength of character,. I'm proud to say I've achieved tremendous strength of mind, because i didn't have a choice but to find that strength myself, and when i say myself, i mean myself and no one else.
Psychological, psychiatry, I've been there, and I found that for me personally, that I'm my own best councillor when it comes to my mental health. I also know the difference between physical and mental illness. My symptoms are not i firmly believe as a consequence of my upbringing. This is why also I've asked questions of this neurologist, because claimed they were, when i know from experience they are not, anything I've ever suffered with depression, and I've been in the depths let me tell you.
My stance remains the same. When clarification is given first on my MRI's that my symptoms are not related to the changes noted, then i will see psychiatric help.
I read an article on schizophrenia. where brain imaging is concerned, i don't believe I have schizophrenia, not based on the reports of my MRI's, or my symptoms.
Marian
I asked for all your guy's thoughts. I took them on board. I don't agree that I don't have MS. I'm entitled to agree or disagree, just like you guy's are entitled to agree or disagree with me.
However, not once did i pre judge or condemn anyone's character on this forum, until my character was brought into this by someone else. I defended my character because it was attacked.
I've set the record straight, by letting the person who took it upon themselves to attack my character, that until you walk in my shoes, don't judge me. I have my opinion, you guy's have yours.
Just like you've given your opinion above about seeing a psychiatrist for conversion disorder, I've taken on board. The point I'm making here is I can take criticism to a certain extent, but attack who i am without knowing me just went a step too far.
I hope by me sharing my life sentence, that it shows my strength of character,. I'm proud to say I've achieved tremendous strength of mind, because i didn't have a choice but to find that strength myself, and when i say myself, i mean myself and no one else.
Psychological, psychiatry, I've been there, and I found that for me personally, that I'm my own best councillor when it comes to my mental health. I also know the difference between physical and mental illness. My symptoms are not i firmly believe as a consequence of my upbringing. This is why also I've asked questions of this neurologist, because claimed they were, when i know from experience they are not, anything I've ever suffered with depression, and I've been in the depths let me tell you.
My stance remains the same. When clarification is given first on my MRI's that my symptoms are not related to the changes noted, then i will see psychiatric help.
I read an article on schizophrenia. where brain imaging is concerned, i don't believe I have schizophrenia, not based on the reports of my MRI's, or my symptoms.
Marian
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Yes, it's confusing. But you are not hearing the explanations. You did say you would consider moving on to a new neuro or ms neuro and that seems like a good decision.
Not much else any of us can do at this point ... Hopefully you can come to peace with your time in limbo. It IS dumbfounding, however you will have an answer at some point.
I had a permanent disability by the time I was finally diagnosed ... It is upsetting and frustrating ... But the diagnostic process depends on certain elements that must be there ... Not for us, but for the diagnosing neurologist.
Don't forget the link I sent you ... ☺️
aspen