Weird sensation in head and Lhermitts

[Judyooo]

Hello everyone.  Im a newbie.  I was diagnosed in March with the Relapsing Remitting type.  I went blind in the left eye suddenly in August 2012 and ON was diagnosed but no steroids given for a month.  The neuro at the hospital got to hear of my case and suddenly I was on steroids for five days.  Not sure if they did anything as I wonder if it was too late anyway the sight has come back 80% over time then last autumn I started to have pins and needles/buzzing down both arms when I put my head forward.  First I thought it was just a trapped nerve as I had started doing some different exercise but in January after a stressful visit with my aged mother I went to the gym and went on the running machine.  Next thing I knew about it I was in hospital diagnosed with Transient Global Amnesia where you lose all memory of time.  Mine lasted about 5 hours but whilst in A+E I mentioned the pins and needles thing and the doc said it was probably Lhermitts and to see a neuro.  Did that and after first MRI it was inconclusive, then another MRI showed some 'activity' in my neck, then a third MRI with some fluid put in, there it was.  My little lesion with long swelling over 5 vertabrae.  So then I was told its MS but could be Devics desease but thankfully that came back clear so its 'only' Multiple Sclerosis. Never thought I would say those words !

Sorry for rambling but there is something very therapeutic about putting all this down.  Im scared and worried about the future and have some questions.

Does LHermitts ever go away?

I have weird sensations in my head.  It happens every other day and has continued for about a month.  I suddenly go deaf in one ear, then the hearing comes back, then I go deaf in the other ear and that comes back and whilst all this is going on I feel like a strange wave sensation going through my brain.  Its like my skull is moving then that stops. And thats it until the next time. Anyone had the same?

Judy

[Judyooo]

Thanks HVAC. Good idea re the journal. I've got notes written on bits of papers all over the place. Will format it. Thanks.
Judy

[HVAC]

Welcome. Your symptoms with the hearing is new to me. As it has been said before MS is different with every person. You will get used to your new symptoms. You can keep a symptoms journal.

Alex

[Judyooo]

Thanks immisceo. For your words and guidance. I'm taking it all in and every opinion is grabbed with both hands but hearing from a fellow bod makes all the difference.  Really..
Judy

[immisceo]

I'm so sorry you've joined the club.

As I'm sure you're sick of hearing, MS is a very individual disease. What symptoms remain or remit or recur is really up to the individual's disease course and how well they response to treatment. In other words, I can't really tell you if it will go away. That unknown is tough to come to terms with, particularly early after diagnosis (at least for me), but there are a lot of supportive people around here who've been there too.

I'm not familiar with transient hearing loss in MS. It's possible this is unrelated, especially as you said it's changes sides. Perhaps one of our other forum members will chime in with more information on that.

As you're new to the world of having MS and it can all be a little overwhelming, I feel the need to make sure you're not steered in the wrong direction by well-meaning, but misinformed opinion. Homeopathy and oils will not treat what you've described. And that's not an opinion.