HI all!
Been forever since I posted.... Been doing pretty good. Still working the part time job, almost a year now, tho its getting more and more stressful because I keep getting pulled into other people's problems and projects.
Had my second go round with the MS Hug on Friday night. Actually had two visits in one night... second woke me up about 4 am and lasted probably close to 90 minutes, was just beyond words to describe how painful. Visiting the primary doctor today to talk about some meds that might help when the monster visits. I have baclofen, but that does nothing.... I take LDN, so can't take most of the painkillers, had a bad experience with flexerell back in early days of MS diagnosis, it actually caused my legs to lockup even worse. He had mentioned valium which I was not in favor of, but after Friday, considering it....
So, when I post last.... think when the nightmare with my mother began after her strokes last summer. We moved her up here, but I could not take care of her, so we went looking at nursing homes and she picked out a place she liked that is still fairly close by. She is on a downhill slide, which might be adding to stress, she forgot my oldest brother had passed and the other day she thought the home had taken the glass out of the windows and wanted to know if I was picking my brother up from school (really ironic, I'm the youngest)... But she is in a safe place that is well run and they keep her busy and active, so all things considered, its about as good as it could be...
Biggest news... my baby girl (okay, she's 22), is on Semester at Sea voyage, in Italy right now! Was a bit of a financial strain, but its a once in a lifetime trip for her, so my husband said just take the extra student loans and give her the experience. Exciting part for me, I'll be meeting her in London on August 22nd and we're heading to Ireland for a 10 day road trip. Anyone here from Ireland!??
I posted on another thread, had my MRIs earlier this year, still no lesion progression, so something is working! Existing lesions keep finding new ways to be a pain, but I am not complaining, I'm thankful there is no lesion progression.
Do have a question for the ladies, so men look away now.... :) I've noticed that right before I get my period, I have the worst expression of symptoms. The fatigue doesn't surprise me, understand the body temp rises just slightly and there is the hormone shift. But, then I have more of muscle issues, crazy part, its more torso related. The MS hug was the worst on Friday and not sure that was coincidence or not. Just curious if any other women here have more problems right before their periods start.
I hope everyone is doing well!!! Reading thru posts now and catching up with new members and what everyone has been up to!! And sorry for being MIA so long :(
Hugs,
Jen