Well it sure is a small world, way back i use to call my place Aspie central because we've got 4 altogether (both my brothers, and both children, daughter and son) hmm DD is pregnant with our first grand baby so it could actually be 5 soon :D
Getting diagnosed with MS even when it's not totally unexpected can still be very scary but one thing i've learnt over the years is that even though everyone is dx with MS, each MSer is unique because no two can ever be exactly alike....
Disease modifying treatments targets the disease to slow down and or minimise relapses, and on top of that there are different types of symptom medications, physio, orthotics etc etc etc which helps you manage or improve function etc for all the different specific issues you have.
Technically nothing can undo the damage a lesion or lesions has already caused but and there is a big but, both brain and spinal cord lesions can actually shrink, remyelinate, heal partially-fully, disappear etc etc as well as cause intermittent or permanent symptoms. Spinal cord lesions are more predictable than brain lesions because the brain has millions of neuron's and might not even cause a symptom and or with 'brain plasticity' the brain with focused help can rewire around the road block the lesion is causing. um that might be a tad confusing sorry but the point is that lesions don't always cause permanent damage and if or when it does, you do have treatment options...
"I can't believe there's nothing they can do about the numbness sensations and tingling. What does everyone else take, and does it help with whatever symptoms they're having? " You are right because there are a lot of different symptom treatment options depending on the type of issue, location etc and what works for one person may not work for another but there will definitely be 'something' that helps YOU function better!
Whether of not you should have a lumber puncture or not you honestly need to discuss with your neuro more, you may already have enough MS specific diagnostic evidence to diagnose you with out it but you may still require additional diagnostic evidence too. You can i believe be sedated but that would be unusual, personally the idea of it and the horrible experience stories you'll read about online if you go looking are pretty much chalk and cheese from the reality of having the LP done, i was expecting it to be terrible and it honestly wasn't.
I am happy to talk and listen any time you need, no question is off the table here, hugs..........JJ
Hi and welcome,
If MS has been suspected for years you'll know your Thoracic MRI was specifically looking for spinal cord lesions, which seems you do have, one at T7 and one at T10 but i honestly can't tell from the language if the report is referencing them as being seen in your 2018 MRI as well. The "poorly visualized nonenhancing T2 hyperintense" is basically just saying they are very hard to see, which from my understanding isn't uncommon with Thoracic lesions because the spinal cord gets narrower and the lesions are also smaller.
I can't give you much more than that sorry, it's late over my side of the globe and my brain is mushy peas at the moment but i'll have a look in my research files tomorrow to see if there is anything specifically about Thoracic spinal cord lesions that you might be helpful to you.
Do you know why your neuro hasn't committed to diagnosing you with MS, there is usually a reason but it's not always a good reason and IF you do have enough diagnostic evidence to meet the minimum required for the MS Mcdonald diagnostic criteria it might be worth considering getting a second opinion with an MS specialising neurologist if you haven't already that is..
Hope to have more information for you tomorrow......JJ