That is a good description of how mine feel! It comes in waves & happens more in the evening. Very weird sensation.
Do you have numbness in your feet with pins & needles sticking in your toes & randomly in legs at times too?
Thanks for responding. I am undiagnosed & trying to find answers.
Nancy
both my legs and especially my feet are constantly cold and I have the feeling of water running down my left inner thigh - I've had this feeling for just over a year now
val