Hi there,
I can't help you with your symptoms as I've never experienced it before sorry.
I can only advise you to find a new doctor or ask this one what he is laughing at and then find a new doctor. I try to look at a any doctor like a plumber or an electrician, they provide us with a service that we are paying for.
I don't like the attitude of some doctors these days because some seem to view their patients as below them & I just don't get that. They are no better than you or I and should not ever think they can put themselves up into a superior position.
You have a history of type 1 diabetes and your doctor should not be ignoring a long standing history of this type. I am really sorry you have been having this problem for 4 years now but I honestly think you need to find yourself someone who is going to provide you with the care you need.
It really gets me going when I hear stories like this...hence the ranting in my reply to your post.
Take Care,
Karry.
Sounds like some referred pain from a neuralgia. I know occipital neuralgia can cause pain behind and around the eyes. Sounds like you need a new doctor. Pain is not normal.
Thanks hun, I appreciate your concern for me. you are absolutely right, I am going to get another Dr
If "laughed and shook his head and said, he didn't know it could be" is not IMMEDIATELY followed by a referral to someone with deeper knowledge, he gets an immediate pink slip.
I don't mind it when doctors tell me an honest "I don't know". I do NOT tolerate it when they do not steer me in the direction of someone who might.
Catherine, what are the shocks like? Are they painful?
I was surprised to see you say they make you close your eyes. I never heard of anyone else having that until now! I am wondering if it's similar to what I had most strongly in 1999 and continuing for many, many years but less strongly (now they are rare, only when I've had some kind of sleep disruption). Mine were not painful and at first were so strong my eyes would close (I couldn't help it) and I felt like I was going to conk out for that split second. I am sure that mine were due to some problem with the brainstem/hearing system as I had recently experienced a sudden severe hearing loss and increased dizziness problem.
Do they happen when you move your eyes a certain way? (Like sideways?)
Do they happen more when you're sleepy, or between sleep and waking (like when you wake up in the middle of the night)?
Do they come in bunches?
Do they happen when you hear certain types of staticky noises?
Just curious... I never got an answer for this (nor most of my other weird symptoms all these years, the most I got was a kind-of diagnosis of "cranial neuropathy" and later some kind of unspecified "polyneuropathy").
I actually did have the "shocks" again for a short period a year or two ago, when I was playing around with migraine meds and was on Effexor for about a month... when I went OFF the Effexor I had those "shocks" in my head a LOT, though not so strongly as in 1999. This is apparently a common occurrence with coming off Effexor. But I was not taking ANY meds when the original, really strong ones (the eye-closing ones) started in 1999.
Best of luck and let me know if you get any info about this.
Nancy
I have these also, but only when I am trying to fall asleep. They are very scary. Mayo Clinic calls them "Exploding Head Syndrome" that is typically a benign condition that is indicative of "nothing". :)
Here is a link.
http://www.riversideonline.com/health_reference/Nervous-System/AN00929.cfm
I had shocks in my face for several months before diagnosis - it's what led me to go to the doctor. She diagnosed it as trigeminal neuralgia and sent me to a neurologist. Mine were in my chin and nose.
I have heard of exploding-head syndrome, and maybe this is some variant, but it's definitely not the same... I did not get a loud noise in my head, only a momentary intensification of the normal tinnitus in my hearing-loss ear.
I also experienced (and still occasionally get) shocks in my face of an electric nature, around my eye, side of nose, and upper lip, but these were COMPLETELY separate from the "eye-closing" "shocks," which I first called "brain blinks" because that's what it felt like, as if my brain/consciousness blinked violently off for a split second. I thought I was getting epilepsy or something!