Could these cold sensations be MS or could the cardiac Drs be missing something?

[spitfire777]

Let me start by letting you know I have had a full recent cariac workup....completely normal, to include a cardiac pet scan and a cardiac mri. My problem is my classic cardiac symptoms have continued and worsened so i started trying to research and my symptoms led me here. I have no health insurance currently. Too much income for medicaid, too little for private insurance. I am really starting to think this is MS. Problems started in 2001, autonomic dysfunction issues were diagnosed but noone ever knew WHY?  Since then I have had a few blood clots, and have 2 benign tumors in my right breast that we are watching. This all started with an enlarged goiter and overactive thyroid in 2000. They killed it with radioactive iodine and I currently take 75 mcg levothyroxine daily. My recent symptoms that have sent me to yet another couple emergency room visits with normal test results...ice cold sensations in my legs and shoulders, (sometimes in my chest but rarely), and a few times when I have gotten up (no physical exertion) my legs feel like they are so heavy and that i just need to sit back down so I can function. From what I have read this and a few other symptoms that i havent' mentioned lead me to believe all these problems could be pointing to an ms diagnosis. I am at a loss and was hoping for some input in here. Thank you in advance for any advice you might give me.

[supermum_ms]

Hi and welcome,

One of the problems with a neurological condition like MS is that the majority of it's associated symptoms are also associated with just about every other medical conditions, so you could look up just about any symptom and MS will come up because MS is a condition that effects the central nervous system.  

The thyroid hormone influences the autonomic nervous system, and with your time line it's quite likely connected to your hyperthyroid issues if no other cause had been diagnosed as a more likely causation. To be honest you haven't really mentioned anything that would be particularly suggestive of MS and what you have mentioned, are issues that are not typically connected with neurological conditions like MS eg enlarged goiter, hyperthyroidism, blood clots, tumors.....and whilst automatic dysfunction is definitely associated with MS, MS is not the most likely underlying cause (http://www.dysautonomiainternational.org/page.php?ID=150)

It might be worth considering that cardiac symptoms, sensory symptoms (parasthesias) and small-fiber sensory neuropathies have all been associated with thyroid conditions and cold sensation in limbs can be caused by poor circulation in the blood vessels, and if thyroid and blood clots are medical situations you are aware of, it makes more sense to me that the more likely underlying condition is connected to what you already know about....

Hope that helps...........JJ