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572651 tn?1530999357

Describing symptoms - putting it in words

Doctors always want something more specific in our descriptions when they ask us to describe what is going on with our bodies.  Just saying *it hurts* or *It doesn't feel normal* is not enough - and that is understandable.

Likewise saying *I feel like I was run over by a truck* doesn't fit the bill, either.  These are all too general or vague for our doctors to get a true picture of what is going on.

I am wondering what phrases or combinations of words you use to relay these strange blips, twinges and pulsations we get with MS.

Some examples I can think of -----

buzzing = feels like a cell phone on vibrate

piercing pain = like an ice pick is stabbing me repeatedly

Do you have descriptors that can be added to a list for use?


Normally I'm not at a loss for words,
Lu

48 Responses
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2154900 tn?1336617072
   I tell doc fell like I have held on to an electric fence and days later still feel it. After reflex test  I still vibrate later into the night
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572651 tn?1530999357
I got luck and searched for 'how do you describe' and this was at the top of the list.  I hope this helps.
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1337734 tn?1336234591
Great thread I have been on vacation for a week so I am reading it for the first time. It is the most comprehensive  description of Ms symptoms that I have ever read!
New addition:
Leg spasticity- feels like dragging a thick, stiff heavy log everywhere I go
Mixed brain signals-my leg doesn't  move when I try to move it, I feels like someone unplugged it from my body
Fatigue- so tired that I feel like I've swollowed an entire jar of sleeping pills
Muscle fatigue- when I literally have to sit down immediatlely or I wil fall over
Deb
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572651 tn?1530999357
bump for Sarah's question about names for symptoms.  These might not be names but are all good descriptors of the weird buzzes, zaps and pings we get.

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Avatar universal
Years ago I used to describe the weak feeling in my arms as "limp celery."  They don't feel that way now, so I guess I need to come up with something else.  Maybe celery that has turned into a brown sludge puddle in the bottom of the crisper.  

Bottoms of my feet feel like I am standing on either freezing cold bars or burning hot bars, I can't tell or they switch back and forth.

MS hug -- feels like heavy gauge wire wrapped tightly around and around my chest just above my bra strap.

Emptying my bladder -- my boyfriend commented he never knew anyone who takes so long to pee, because it takes so long to get started and then I have to sit there and dribble for a couple of minutes at the end before I can get it all out.  Since that time it also involves pushing on my bladder with my fist and bending over to help things along.

I don't have to pee while I am sitting down, but as soon as I stand up I need to find a toilet NOW.

parasthesias -- like electrical shocks are running up and down the outsides of my legs

falling -- I am walking along and suddenly I am on the ground.  I don't remember the actual fall.

cognitive -- People say things that do not make sense like, "It is time to put the dog on the clothesline."  (Actually said, "It's time to change the oil in the truck.")






Helpful - 0
704043 tn?1298056844
well maybe we need a ms dictionary!! a thought..
brain fog- cant think of the right word-have to say a complete diff  sentance with a diff word!
fatigue-soo drained just need to go to bed-if you can get there-eyelids are even heavy
numbness- in random places, just a spot can go numb-wierd
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