hi there to everyone :) explain your relapse

[angelbum31]

hello everyone i just wondered if you would care to answer some questions for me about relapses . i would like you to describe how it feels being in a relaspe ???? thanks very much angelbum :)

[angelbum31]

thanks to everyone who has commented on this :)

[lori115]

those symptoms are crazy so very close to mine. i still have no diagnosis. i have had off and on syptoms for the last yr. it first started right  side tingling, numbness, pins and needles, blotchy vision very weak extreme fatique, and slurred speech. this was on going at first it was every 3 weeks them dow to every 2nd week. then my symptoms changed again. i had pulsating twitching and numbness through both legs, blotchy vision, double vision off balance, clumbsy and paralysis right side, slow slurred speech. now my episodes come every week or so... from severe eye pain to ear pain, double vision, headaches and pulsating and twitching and even night tremors with my legs. i notice to that my brain and my legs do not work together. my Mr I' showed small abnoralities but at this time all 4 neurologists that i have seen said if it is going to be classified as neurological the symptoms will be ovious and it will stay all the time. i said what the hell are you waiting for  for me to be in a wheel chair then i will get the diagnosis? he basically said he was sorry and nothing he could do. i have been going to physio trying to do leg exercises to  strengthen my legs what a chore. but i do reccomend it. no guarantee it will be fully gone but at least you can work on getting strength back in the areas that are so weak. i also am seeing a natural path she has me on vitamin d and calcium aaand b12. i also take acidophilus which is good bacteria to kill off the bad.  just stay strong and know that you are not alone. take it one day at a time. and regardless of no diagnoses, believe in your self and at least it can't take our personalities away. day by day thats what i say and no one knows our bodies b etter than we do. take care and i hope this helps.

[numbness44]

Hiya
I to was recently fully dx , but for me its been going from one relapse to another from feb last year.  First of all starting in my toes till after a week or so finaly having numbness and tingling from my waist down, couldnt move toes at all.  Was put on steroids for that in May and that did help but the feeling in my toes and feet never fully left me and apart from my big toe i still cant move the others apart from downwards a tiny bit.  Also had numbness tingling in left hand.

Then in august last year I couldnt lift my right arm and it felt like a ton weight like carrying around a heavy bag of shopping .  Was nov/dec before it inproved somewhat, although still cant hold that arm up for any length of time, eg like to hold hair dryer to dry hair etc.

In december my forehead and face fell weird and hard to explain except forehead felt like was falling down over my eyes and was all tight feeling  and side of face felt tight.  Joked with m8s had my own botox lolol.  Forehead still feels heavy but not as bad as was.

In april the side of my right leg went numb felt like something heavy leaning against it and for the first time had that feeling of warm running water going down the top of my right leg and pain going into my thigh, still have that at min but now only yesterday my toes and feet
have started to go numb again the way it all started last feb, so fingers crossed it not moving up again as far as waist like last time.
i must add not on any dmd yet and wont being seeing someone about that till 10th May so maybe when get on something these flare ups will give me a break lolol

Hope havent went on tooooooo much lol
Val

[angelbum31]

if anyone else can comment the more the merrier i say :)

[Growing2Boys]

I am newly diagnosed, but I put off being diagnosed because I prefered not to have a name for my illness  which I feared was MS (weird I know)
Over the past few years I had various bouts. Optic neuritis several times that was a horrible pain in my right eye & blurred vision (my last trip to the opthomalogist had him say "you are scaring on your optic nerve...do you have MS?") My reply, "of course not- thanks see ya"
Loss of sensation on my right side (face, arm, leg, foot) slurred speech, extremem fatique, vertigo, an intention tremor, jello legs that give out.
What foreced me to get diagnosed was I lost the ability to stand up & I lost bladder control. That was 2 month ago. I took steriods. I got most of my function back immediately, but then I developed some weakness back & new problems of pins/needles, electric shock pains. I'm still dealing with that.

Hope this info helps, but MS is so different for everyone. I've read some people present with 50+ brain lesions & only minimal symtoms.

[QTPieRN433]

my 1st relapse unbeknownst to me consisted nly of Blurred vision/painful eye movement (optic neuritis) and severe fatigue. My second and the one that confirmed my MS was a right leg not functioning properly. I had pain in my hip and basically had to drag my right leg when I walked and could not wiggle the toes on that foot without seriously concentrating and telling my brain to wiggle my toes..it was like the signals from the brain did not go to that leg....

[Valerie64]

for me it's the legs, first one involved numbness with the left arm and hand and just the left leg, developed foot drop, left leg kept buckling, couldn't walk for weeks

Had various symptoms including L'Hermittes phenomenom over next 7 months but wasn't classed as having a relapse until the wobbly leg episode at Christmas which involved both legs as this now affected a part of my body which had not been affected before

sorry if I'm sounding dippy - I've trailed round town with my 17 yr old and my brain's gone to mush

Val x

[angelbum31]

bump

[angelbum31]

thanks for the information im hoping others well let me know how they experince this too :)

[Sparkysarah]

Well as someone who is very new to MS only diagnosed 10 days ago, my consultant neuorlogist says I have had relapses in 6 months and the first two were very mild with just new neurological symptoms (numb finger and numb half of face) and mild fatigue.

However I have been having what i would say was my first proper relapse for the last few weeks and for me this involved heat induced extreme electric tingling/pins and needles down left leg, left arm and left side of head, tingling in spine and an exhaustion/fatigue that virtually wiped me out unable to do much except rest and lie down. I looked like a ghost and just felt like ****.

So far it has lasted four weeks but I have felt a bit better for the last two days so am praying that it is on the way out.

I had some steroids about two weeks ago and am wondering what other people's experiences are of them and when these kick in as I felt no different immediately after taking them except my sleep was more disturbed but am beginning to feel better now
Also been put on amitriptyline and gabapentin to help with tingling (but still not under control).

I guess it is difficult to assess and that everyone's experiences will be different.

Hope this is of interest and cheers for now.

Sarah ;)