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ERCP Scheduled for Tomorrow
I could never imagine how a complication from my recent MS relapse would lead to my getting pancreatitis, but it did.
I have pancreatitis and although my liver function and lipase levels are "normalizing", the GI team want to find out what caused it. I had an ultrasound on Saturday night, MRCP on Monday afternoon, and am now scheduled for an ERCP for tomorrow morning. The GI team, 2 doctors and 2 students came in this evening to tell me that they are suspicious that there is a stone hiding out in my gut somewhere and that the ERCP was necessary in trying to find in and hopefully find it and move it on its way.
I wish I didn't have to go through this, but it is what it is.
I also spoke with the rehab doctor and he said the team agreed that I lost ground in what I accomplished in getting back on my feet due to being in bed for 3 days straight. So, the new discharge date is next Tuesday - a week from today. I am also being pumped through IVs with fluids and magnesium and taking potassium orally as my labs came back showing low levels. My WBC is 3.2 and my lymphs are in the 2 range which means if it goes below 2 then I will have to notify Novartis the company that makes Gilenya and most likely will have to go off until the numbers come up.
So, where is my neuro while I'm going throug all this? He didn't even know I was still in the hospital and he was angry that I got pancreatitis. I hope he is angry at himself. I'm not blaming the pancreatitis on his not giving me steroids after the IVSM, but it sure is a coincidence.
Otherwise I am doing fine. Eating for the first time in 4 days I got to have chicken borth and Italian Ice Cream. Of course I got a tummy ache after eating it but it was pretty good for being only on clear liquids. I can't wait to get back to real food.
I hope that by this time tomorrow that I am feeling better, much better. Hopefully I will not have nay more issues before I leave and thankful that this was caught before I went home. There is always a silver lining when bad things happen.
Julie
I have pancreatitis and although my liver function and lipase levels are "normalizing", the GI team want to find out what caused it. I had an ultrasound on Saturday night, MRCP on Monday afternoon, and am now scheduled for an ERCP for tomorrow morning. The GI team, 2 doctors and 2 students came in this evening to tell me that they are suspicious that there is a stone hiding out in my gut somewhere and that the ERCP was necessary in trying to find in and hopefully find it and move it on its way.
I wish I didn't have to go through this, but it is what it is.
I also spoke with the rehab doctor and he said the team agreed that I lost ground in what I accomplished in getting back on my feet due to being in bed for 3 days straight. So, the new discharge date is next Tuesday - a week from today. I am also being pumped through IVs with fluids and magnesium and taking potassium orally as my labs came back showing low levels. My WBC is 3.2 and my lymphs are in the 2 range which means if it goes below 2 then I will have to notify Novartis the company that makes Gilenya and most likely will have to go off until the numbers come up.
So, where is my neuro while I'm going throug all this? He didn't even know I was still in the hospital and he was angry that I got pancreatitis. I hope he is angry at himself. I'm not blaming the pancreatitis on his not giving me steroids after the IVSM, but it sure is a coincidence.
Otherwise I am doing fine. Eating for the first time in 4 days I got to have chicken borth and Italian Ice Cream. Of course I got a tummy ache after eating it but it was pretty good for being only on clear liquids. I can't wait to get back to real food.
I hope that by this time tomorrow that I am feeling better, much better. Hopefully I will not have nay more issues before I leave and thankful that this was caught before I went home. There is always a silver lining when bad things happen.
Julie
Best Answer
Hey you!
I care so very much,and I know others do too. So many things keep us on, or off each day, and then when you get back it takes some time to get through posts and see what's happening to who.
I can't believe I'm just seeing this now, and I've been online.
Back to you! Oh my - so you went back into the hospital since the last nightmare, and now because of pancreatitus?
It's super important to tell about the ugly that can happen with relapse, regardless the twists and turn inbetween.
Tell us how you are feeling now? Sorry you have to deal w/yet another consequence of the initial mistakes that were made in your care :(
((((((Hugs)))))))
~Shell
I care so very much,and I know others do too. So many things keep us on, or off each day, and then when you get back it takes some time to get through posts and see what's happening to who.
I can't believe I'm just seeing this now, and I've been online.
Back to you! Oh my - so you went back into the hospital since the last nightmare, and now because of pancreatitus?
It's super important to tell about the ugly that can happen with relapse, regardless the twists and turn inbetween.
Tell us how you are feeling now? Sorry you have to deal w/yet another consequence of the initial mistakes that were made in your care :(
((((((Hugs)))))))
~Shell
(((Julie))),
I think of you often, and like Ren, wish I was there to hold your hand and offer you support. I am sure you are so down and frustrated, and need all this "stuff" to be over. You have been through the ringer, and I know, hospitals are very lonely and a sad place to be.
I am so sorry you are going through all this, and hope and pray you get out of there as soon as you can!
Hang in there my friend...
Love,
M
I think of you often, and like Ren, wish I was there to hold your hand and offer you support. I am sure you are so down and frustrated, and need all this "stuff" to be over. You have been through the ringer, and I know, hospitals are very lonely and a sad place to be.
I am so sorry you are going through all this, and hope and pray you get out of there as soon as you can!
Hang in there my friend...
Love,
M
Praying you are better soon!! Wow..I have heard pancreatitis is painful!! So sorry your going through all of this!! Sending my thoughts, prayers & big hugs your way!!
I gave you a big ((((hug)))) on a previous thread of yours, and I'll surely give you another! ((((Julie)))).
I must admit, I've been lurking more than participating, lately.
I hope you bounce back sooner than later. Hang in there, dear!
I must admit, I've been lurking more than participating, lately.
I hope you bounce back sooner than later. Hang in there, dear!
I totally agree with you about the lack of compassion that the forum has lost. Everyone is only interested in themselves and what they can gain from the forum and not what they can give in return for the compassion and information that they receive.
The forum I joined offered compassion and information and yo gave back in kind. I do hope we can slowly build this forum back to what it was. A place to run to in despair and a place to get accurate information. If everyone does their part , we will once again regain the the best forum on the internet.
Ren
The forum I joined offered compassion and information and yo gave back in kind. I do hope we can slowly build this forum back to what it was. A place to run to in despair and a place to get accurate information. If everyone does their part , we will once again regain the the best forum on the internet.
Ren
I'm so sorry. Sometimes after a relapse it seems like one step forward, two steps back. I hope your neuro learned a valuable lesson! It really stinks though that his education was at your expense.
I came through the ERCP well. The team took care of the narrowed bile duct so things should be normal again.
I think some people might think that we shouldn't discuss our othe medical issues (non-MS) but anytime we get ill it affects our MS. I don't mind sharing but I have the feeling no one really cared about what I went through. I do appreciate those who showed their care and compassion and love them for it. I just hope this is not the case and that the lack of response from our forum family doesn't mean no one cares. I just neded the support and thought our forum would be the best place to turn to since we are all in the same boat and know that at times it is hard to talk to our families or friends about our issues.
I hope this doesn't offend anyone. It is only how I feel right now and well, I am still under the effects of anethesia and pain meds.
Julie
I think some people might think that we shouldn't discuss our othe medical issues (non-MS) but anytime we get ill it affects our MS. I don't mind sharing but I have the feeling no one really cared about what I went through. I do appreciate those who showed their care and compassion and love them for it. I just hope this is not the case and that the lack of response from our forum family doesn't mean no one cares. I just neded the support and thought our forum would be the best place to turn to since we are all in the same boat and know that at times it is hard to talk to our families or friends about our issues.
I hope this doesn't offend anyone. It is only how I feel right now and well, I am still under the effects of anethesia and pain meds.
Julie
Thanks for the support you guys. I really do apprecaite it.
The doctor came in this morning and said the procedure won't likely happen until this afternoon. I am a bit nervous as there are more risks than just having a regular endoscopy, which I've had several in the past - cake.
They are very hopeful that they will find the culprit hiding out somewhere. I will fill so much better afterwards for sure. They will also widen the bile duct. It looks like a funnel, wide at the top and narrowing at the bottom. The narrowed part is practically closed so the doctor said they may consider putting a stent to not only widen it but keep it from getting too narrow. Wel'll see how it goes.
Thanks again for taking the time to show your support. Showing support for each other here on the Forum is what makes this a good group.
Julie
The doctor came in this morning and said the procedure won't likely happen until this afternoon. I am a bit nervous as there are more risks than just having a regular endoscopy, which I've had several in the past - cake.
They are very hopeful that they will find the culprit hiding out somewhere. I will fill so much better afterwards for sure. They will also widen the bile duct. It looks like a funnel, wide at the top and narrowing at the bottom. The narrowed part is practically closed so the doctor said they may consider putting a stent to not only widen it but keep it from getting too narrow. Wel'll see how it goes.
Thanks again for taking the time to show your support. Showing support for each other here on the Forum is what makes this a good group.
Julie
J - Italian Ice Cream? Will you do anything to get ice cream? LOL
Seriously, I am glad to hear you got some food today and take it slow in introducing those solids. It sure stinks that this story continues to take the twists and turns. But It is good news that you get to stay in rehab and not put back into the general population, right? (sounds like prison talk to me!)
hugs, L
Seriously, I am glad to hear you got some food today and take it slow in introducing those solids. It sure stinks that this story continues to take the twists and turns. But It is good news that you get to stay in rehab and not put back into the general population, right? (sounds like prison talk to me!)
hugs, L
I hope the ERCP is successful and they get that stone out! Soooo sorry you are going through this. I am impressed with your positive attitude.
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I know this is a very painful, and scary problem. Since this was related to a flair, this seems like an appropriate place to me. Even so, this is where the people who understand you are. I hope you and I get to know each other too.
Very Sincerely,
Tammy