Gone Fishin'

[Quixotic1]

Hi, all.  I want to thank everyone who has written worried that I haven't been posting.  Sorry to drop from site, but I just couldn't bring myself onto the 'puter during the bad days.  First, I'm doing a little better.   The weird Uro-G visist with the 6 stairway fire alarm was just the beginning of a particularly horrid interval in this MiSerable disease.
  
She gave me a med (Enablex) to try to calm the painful bladder spasms and help with the worsening urinary incontinence.  However, the med, even at its lowest dose, made everything worse and made me feel very sick, nauseated and depressed.  Instead of quieting the excited bladder, it caused it to cease emptying (she thinks) and caused acute retention.  Then my bladder stayed full all the time and the overflow overflowed.  The bladder twitched, spazzed, and cramped all the time, but wouldn't empty much at a time.   So, instead of being incontinent only when I needed to go (along with painful cramping) I was leaking constantly and dumping some when the bladder spasms were worst.  I was running through a dozen and half of the extra large pads every day, plus rushing to the bathroom to piddle a liddle.   Any energy I have had was used up mopping the hardwood floors and doing laundry.   Sorry to be graphic.

Has anyone else noticed that the faster you try to walk (with spasticity) the stiffer and lower you move?  That demonstrates the "rate-dependent" nature of spasticity.

I had a horrible public flooding and stopped leaving the house.  We thought maybe the full dose would reverse things, but it got even worse - So, I've been feeling wretched and feeling very embarrassed which is not like me.  Clearly it was interrupting my sleep.  I stopped the med on Wednesday, but it is an extended release med and is taking a while to get out of my system.  Today is the first half decent day I have had, but I'm really sleepy.

So, the Sleeping Beauty awakened only in time to be kissed by a toad and transported to a swamp. I am awaiting someone to magically save me from the ongoing tsunami which is my life.  I see the Uro-G in 11 days for a new urodynamic study and a new plan.  And hopefully a pair of paddles and hip boots.  The whole thing has left me feeing cruddy and weak.  Yesterday I was bent over behind my recliner trying to plug something in to an electrical strip.  My weak leg slid slowly out from under me, and I slid down.  I was left to contemplate the various dust puppies, lost pens, empty cups and a dead mouse who had apparently died in one of the floods, that have accumulated over time.  I looked for the lawn snake that Clyde had brought in which made a dash for freedom back there, but he was long gone.  I yelled for my sister, but she didn't hear me.  Of course then was when I also needed to rush to the bathroom - natch'.  So I sat and played "Battleship" with the dust bunnies and petted the worried felines as they wandered past until I rested enough to haul myself up.  Of course now my shoulders and wrists are sore from the pull back to my feet.  I need to get this wretch into shape...(and someone needs to sweep this place!)

There are so many interesting things being discussed so well on the forum.  You are carrying on nicely.  Newcomers are so impressed with the place you are creating.  This is quite the remarkable place we have.  I realize that I can spare my family the litany of my woes when I have all of you to dump on.

I hope to feel more like using my waterlogged brain soon.  Still incapacitated by Cog Bog - an apt expression if CCSVI is playing a role, don't you think?

Well, off to the BR.

Love ya all

Quix

[DawnYM]

I hope you feel better soon!!! Take care of yourself... Hugs and prayers, Dawn

[jensequitur]

Oh, ack, no fun at all.  It sounds quite horrible.  Here I was being distressed over leaking, when you've got a breach in the dam.

I think WeakandFalling's suggestion is excellent.  I really dread the moment when I fall for the first time.  If I had something like the Lifeline, or even just a cell phone, that would be great.

It seems like a fully charged cell phone, even without a whatsis card, will work to call 911.  

[Sailorsong]

Wow, I don't know what to say, you have had about all anyone could possible stand. I sure hope that next week will bring a bright streak to your days in that everything will go right.

Dennis

[michelleric]

Quixie,

I am so sorry to hear about your ongoing struggles with the bladder issues, and so glad you didnt get hurt falling from the chair.

I am thinking about you lots and truly hope the new plan with the uro, will go well and be the thing to fix everything. Sounds good, doesnt it?!

Tons of hugs to you my friend,
Michelle

[goofysmom1]

So sorry to hear about your current troubles!

Take good care of yourself!

Sending you hugs,
Chrisy

[meg321]

Its all been said but as you 'went fishin'  Laura 'should have gone fishin'  ....was that an accident ?  I know, I know, am I asking a dumb question?  I do that a lot.  

After I get this far my head is swimming from all the posts..

please get better, sounds just awful..I don't want it !

hugs, meg